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Chelee · 04-12-2007, 12:28 AM

Some very good points were made, & many of which went in to my initial decision making on continuing herceptin or not. But since I am a stage III'er, 5 positive nodes, & no radiation I feel like it might be a good idea. Plus, now a yr later from my DX I see most with a similar DX or less had AC, followed by TH. (Some with DD.) I was *never* even given a choice in my trt plan. I was given TCH...& I missed an entire month of it since I landed in the hospital. TCH is good, but I *should* of had a *say* so in what trt I went with. I was told they wanted NO inturruptions when I started my chemo yet I missed an entire month. So I am leaning towards extra herceptin trts if they will let me have it? (I'm glad to see a few of you had extra trts of herceptin also.)

I was due herceptin this last Monday but my onc AS ALWAYS played her little game & ignored my request. I went around her today & spoke with someone else thats been trying to work with me. It sounds like I *will* be able to continue on herceptin. I just wish they would of let me have it this last Monday that way I wouldn't have to start back up with a loading dose if they say yes. My ECHO's have been good since I started. (Knock wood.) My most recent one was 69%. As several of you mentioned the high 2 yr recurrance rate is a big concern to me. I would like the herceptin to get me through at least another 8 months which would complete two full yrs. I should hear no later then next Monday if its ok to continue. I feel its a good decision since nothing about my path report is good. So I will take all the help I can get. Thanks so much for all of your thoughts on this...it was very helpful.

Chelee

04-12-2007, 12:28 AM	#10
Chelee Senior Member Join Date: Feb 2006 Location: Southern, CA Posts: 2,511	Some very good points were made, & many of which went in to my initial decision making on continuing herceptin or not. But since I am a stage III'er, 5 positive nodes, & no radiation I feel like it might be a good idea. Plus, now a yr later from my DX I see most with a similar DX or less had AC, followed by TH. (Some with DD.) I was never even given a choice in my trt plan. I was given TCH...& I missed an entire month of it since I landed in the hospital. TCH is good, but I should of had a say so in what trt I went with. I was told they wanted NO inturruptions when I started my chemo yet I missed an entire month. So I am leaning towards extra herceptin trts if they will let me have it? (I'm glad to see a few of you had extra trts of herceptin also.) I was due herceptin this last Monday but my onc AS ALWAYS played her little game & ignored my request. I went around her today & spoke with someone else thats been trying to work with me. It sounds like I will be able to continue on herceptin. I just wish they would of let me have it this last Monday that way I wouldn't have to start back up with a loading dose if they say yes. My ECHO's have been good since I started. (Knock wood.) My most recent one was 69%. As several of you mentioned the high 2 yr recurrance rate is a big concern to me. I would like the herceptin to get me through at least another 8 months which would complete two full yrs. I should hear no later then next Monday if its ok to continue. I feel its a good decision since nothing about my path report is good. So I will take all the help I can get. Thanks so much for all of your thoughts on this...it was very helpful. Chelee __________________ DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes. Rt. MRM on 1-3-06 -- No Rads due to compromised lungs. Chemo started 2-7-06 -- TCH - - Finished 6-12-06 Finished yr of wkly herceptin 3-19-07 3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07 9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV. 9-28-09 Loading dose of Herceptin & started Zometa 9-29-09 Power Port Placement 10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head. 11-19-09 RT. Femur surgery - Rod placed 12-7-09 Navelbine added to Herceptin/Zometa. 3-23-10 Ten days of rads to RT femur. Completed. 4-05-10 Quit Navelbine--Herceptin/Zometa alone. 5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy. Results to FISH was unsuccessful--this happens less then 2% of the time. 7-7-10 Recurrence to RT axilla again. Back to UCLA for options.