Being IBC, mine was not detected on mammogram. I had been having them every 6 months for several years. Even when we knew what I had it still never showed on the ultra sound. I have read that MRI is the best but because of the cost they will not use them for this purpose. I don't think this is the real reason because it seems lots of money is being spent on other testings. IBC is s lymphathic disease so scanning is almost useless here but it is still being done. I think its each one's responsibility to do what they and their doctor feel comfortable in doing. hugs, Sandy
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Dx. 03/01, Rt. IBC
AC/Taxatere
Rt. MRM-with graft Lt. simple
5 rads-skin mets
Herceptin, taxol, carboplatin (taxol seem to be the magic drug)
Navelbine & xeloda (did not work)
topical miltex for skin mets
Tykerb/xeloda
thoracentesis x 2 left lung fluid shows cancer cells
Port removal (4 years) with power port replacement
Doxil
Updated 05-07 Scans show no bone or organ involvement we shall see!
I shall not pass this way again. Any good I can do or any kindness that I can show let me not defer or neglect it for I shall not pass this way again.
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