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Chelee · 03-26-2007, 11:35 PM

Jean, I was getting ready for an appt this morning and just caught the beginning of the "View". I heard the same thing you did and I was angry. In fact enough so that when I got home from my appt. I fired off an email to the View. (I never do things like that...this was my first time.)

Especially when some new person is just DX and hears something like that. The fact remains hearing something like that can take away any hope someone has....let alone the fact is that isn't true. I talked with a women at the ACS that was a 18 year survior with bone mets. As you already stated...there are alot of people that don't have access to the internet. I swear...I had absolutely NO hope at all until I found this board. God forbid had I turned the *View* on a year ago when I was DX and heard that. I was grasping for any hope and that would of really depressed me. It was this board that saved my life.

I am all for you firing off an email to the View...I did first thing today. I hope and pray they got flooded with mail over saying that. They might mean well...but that was so wrong. They said it like it was a matter of FACT. No exceptions. (Wrong, & they should be told.)

Chelee

03-26-2007, 11:35 PM	#17
Chelee Senior Member Join Date: Feb 2006 Location: Southern, CA Posts: 2,511	Jean, I was getting ready for an appt this morning and just caught the beginning of the "View". I heard the same thing you did and I was angry. In fact enough so that when I got home from my appt. I fired off an email to the View. (I never do things like that...this was my first time.) Especially when some new person is just DX and hears something like that. The fact remains hearing something like that can take away any hope someone has....let alone the fact is that isn't true. I talked with a women at the ACS that was a 18 year survior with bone mets. As you already stated...there are alot of people that don't have access to the internet. I swear...I had absolutely NO hope at all until I found this board. God forbid had I turned the View on a year ago when I was DX and heard that. I was grasping for any hope and that would of really depressed me. It was this board that saved my life. I am all for you firing off an email to the View...I did first thing today. I hope and pray they got flooded with mail over saying that. They might mean well...but that was so wrong. They said it like it was a matter of FACT. No exceptions. (Wrong, & they should be told.) Chelee __________________ DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes. Rt. MRM on 1-3-06 -- No Rads due to compromised lungs. Chemo started 2-7-06 -- TCH - - Finished 6-12-06 Finished yr of wkly herceptin 3-19-07 3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07 9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV. 9-28-09 Loading dose of Herceptin & started Zometa 9-29-09 Power Port Placement 10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head. 11-19-09 RT. Femur surgery - Rod placed 12-7-09 Navelbine added to Herceptin/Zometa. 3-23-10 Ten days of rads to RT femur. Completed. 4-05-10 Quit Navelbine--Herceptin/Zometa alone. 5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy. Results to FISH was unsuccessful--this happens less then 2% of the time. 7-7-10 Recurrence to RT axilla again. Back to UCLA for options.