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Old 03-26-2007, 09:21 AM   #9
Jean
Senior Member
 
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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Great Thread,

I was a little annoyed this morning when I caught the view channel 7
(I do love this show) they were speaking about Elizabeth Edwards.
It was mentioned how bone mets are terminal with a 5-10 yrs.
survival...I was so angry and annoyed with them. I know a gal who
is a 20 yr. bc surviver - Oh and by the way has bone mets! With
all the new breakout drugs etc. who knows what we may have at
our finger tips in two years - five years - etc.

Reminds me of my first onc. Dr. Gold (Gold she was not- more like nickel) when I asked her do you think in the next ten years
we will have a cure for this disease? She did not even look up
and continued to write..." no I doubt it" she said. I knew I was
in the wrong place right away.

Of course we are not expecting fairy tales just a positive approach
to treatment.

I think I will e mail the view and tell them they did a dis-service to their
viewers this morning..by stating that early bc is curable but bones mets
has a time line....I am really annoyed....with them..they did not mention
that Elizabeth will have the newest and best treatment. What is really
concerning me at this point is that she is a central figure in the media
and this can cause great mis-information and stress to those women
who do not have inter-net access or are isolated - also to their
loved ones. Such as older parents who do not use the inter-net
to obtain current medical break outs which fight this bc back and keep
in down.

Kind Regards,
Jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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