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Old 03-15-2007, 01:31 PM   #1
Sherryg683
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Join Date: Feb 2006
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Spoke with my Oncologist about Tykerb

I spoke to my Oncologist about putting me on Tykerb with Herceptin to prevent my mets from coming back...I am presently NED. He said he would be leaning towards saving Tykerb for when I needed it instead of putting me on it now. He also added that he really wasn't sure because there just wasn't any data on if it would indeed be beneficial being on both when there are is no active cancer, risking getting immune to it. He went on to say that he would do whatever I wanted, that he would put me on it an I would be sort of his trial case ..lol. I guess it's really just too early for them to have any concrete answers. I did bring up that it does cross the brain blood barrier and that I would really like to try and keep this cancer away rather than wait for it to return and fight it later. He said that since I have been in remission almost a year that undoubtly the Herceptin is working well for me..but indeed it was my choice. So now I'm more confused. I told him to go back and do ALOT of research on it and that I would see what the women on my board are going to do and I would get back to him with my decision next month. He always laughs at me about the women on my board. I always tell him "the women on the board say this, or the women on the board are doing that"..but hey..he does admit that I am one of his most informed patients. So now I wait to hear what the rest of you are going to do..I don't know, I'm still leaning towards getting on it..sherryg683
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Sherry

Diagnosed: December , 2005 at age 44
13+ positive lymph nodes
Stage IV , Her2+, 2 small mets to lungsChemo Started: Jan, 2006
4 months Taxotere, Xeloda, Hercepin
NED since April 2006!!
36 Rads to follow with weekly Herceptin indefinately
8 years NED now
Scans every year

Life is not about avoiding the thunderstorms, it's about learning to dance in the rain!
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