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Old 03-03-2007, 02:22 PM   #12
fullofbeans
Senior Member
 
Join Date: Jan 2007
Location: UK
Posts: 617
Thank you all so much, it made me so happy to read your answers. It really did. I think I was also somewhat relieved to have responses, I knew Americans were pretty open minded in that way, but still I was wondering if I would receive any reply ...

Anyhow yes AlaskanAngel & Suzan definitely lets stay in touch and meet up whilst I am Seattle. On on my return to the UK I will check where next to go.. this is so exciting!!

All the cities in the States to me are reminiscent of films/movies. Chicago for me is stuck in the 20’s with men that are always dressed in elegant suits & wear hats, many talking with an Italian accent. In Houston ‘au contraire’ people are dressed in a all-in- one uni-coloured uniform, and I can imagine hearing someone “calling Houston..” from some space shuttles..

In the meantime Seattle is‘romantic’. But I hope I will get some sleep there.. However I am not surprised that people remain sleepless in Seattle with the amount of coffee they are drinking..

Thank you Janet for the offer to show me Florida that sounds great and do not worry about being older as I would otherwise have doubted your authenticity, as it is well known State requirement that to live there you have to be of retirement age ..(By the way thank you so much for checking flights price).

Anyhow I will stop being silly that is what I do when I feel a bit nervous (I am a bit of a Chandler (from Friends)). About Philadelphia, I will try to come there when I visit New York later on, same goes for you when you go come to London. Joy I would love to meet you too lets stay in touch and wait for Colorado to warm up. All the best for the 8<SUP>th</SUP> my thought are with you.

Thank you all again for your offers, when I read them I felt the adventure had just started and I hope I will get to meet all of you.

Lots of love

Kx
__________________

35 y/o
June 06: BC stage I
Grade 3; ER/PR neg
Her-2+++; lumpectomies

Aug 06: Stage IV
liver mets: 6 tumours
July 06 to Jan 07: 2*FEC+6*Taxotere; 3*TACE; LITT
March 07- Sept 07: Vaccination trial (phase 2, peptide based) at the UW (Seattle).
Herceptin since 2006
NED til Oct 09
Recurrence Oct 2009: to internal mammary gland since October 2009 missed on Oct and March 2010 scan.. palpable nodes in May 2010 when I realised..
Nov 2011:7 mets to lungs progressing fast failed hercp/tykerb/xeloda combo..

superior vena cava blocked: stent but face remains puffy

April 2012: Teresa Trial, randomised to TDM1
Nov 2012 progressing on TDM1
Dec 2012 blockage of my airways by tumours, obliteration of these blocking tumours breathing better but hoping for more- at mo too many tumours to count in the lungs and nodes.

Dec 2012 Starting new trial S-222611 phase 1b dual egfr her2+ inhibitor.



'Under no circumstances should you lose hope..' Dalai Lama
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