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Sandy H · 02-25-2007, 02:15 PM

Hi Sara: This comes from Dr. Lupe Salazar from UW/Seattle. I talked to her in San Antonio and she told me she was working on a trial for skin mets to start up in April. It is a Phase I and a topical application to try and activate the T-cells on the skin. One would have to be off Herceptin. As soon as I get home from Florida I will be giving her a call and see where this is at in the process. I will also put this on the IBC board as well and keep everyone updated on it. She said it would require a trip to Seattle to get started and than be followed by our oncologist at home. May have to make another trip to end the trial she wasn't sure about that. I have already talked to my oncologist about it and he was excited about it. I don't know of any other trials except the Tykerb/Xeloda and Tykerb/Hercetpin. Usually, it requires systemic treatment this being a lymhethetic disease. Please feel free to e-mail me if you have questions and need to talk. Have been dealing with skin mets for 5 years now. I hope this helps. hugs, Sandy

02-25-2007, 02:15 PM	#5
Sandy H Senior Member Join Date: Feb 2005 Location: Norridgewock, Maine Posts: 778	Hi Sara: This comes from Dr. Lupe Salazar from UW/Seattle. I talked to her in San Antonio and she told me she was working on a trial for skin mets to start up in April. It is a Phase I and a topical application to try and activate the T-cells on the skin. One would have to be off Herceptin. As soon as I get home from Florida I will be giving her a call and see where this is at in the process. I will also put this on the IBC board as well and keep everyone updated on it. She said it would require a trip to Seattle to get started and than be followed by our oncologist at home. May have to make another trip to end the trial she wasn't sure about that. I have already talked to my oncologist about it and he was excited about it. I don't know of any other trials except the Tykerb/Xeloda and Tykerb/Hercetpin. Usually, it requires systemic treatment this being a lymhethetic disease. Please feel free to e-mail me if you have questions and need to talk. Have been dealing with skin mets for 5 years now. I hope this helps. hugs, Sandy __________________ Dx. 03/01, Rt. IBC AC/Taxatere Rt. MRM-with graft Lt. simple 5 rads-skin mets Herceptin, taxol, carboplatin (taxol seem to be the magic drug) Navelbine & xeloda (did not work) topical miltex for skin mets Tykerb/xeloda thoracentesis x 2 left lung fluid shows cancer cells Port removal (4 years) with power port replacement Doxil Updated 05-07 Scans show no bone or organ involvement we shall see! I shall not pass this way again. Any good I can do or any kindness that I can show let me not defer or neglect it for I shall not pass this way again.