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Adriana Mangus · 01-26-2007, 12:36 PM

Hi again Grace: In my situation my markers were kind of "stable" for about a year (24.5), I decided to wait and see-in November I had a chest scan and it showed the tumor was growing back -almost the same size as the one when I was originally diagnosed (recurrence) in 2003,-mets to one organ, only. I then had a CA2729 test done and indeed the marker was up to 53!. So in my case the CA2729 is proven to be a useful tool. My oncologist was not too worry to have waited this long to put me on chemo (Xeloda, oral med) since you have to keep your body healthy and ready for when the big one comes.

In my opinion, you should talk with your onc. first, but I was in your shoes I will definitely go for the chemo. It's not as bad as it used to, yes, you're going to lose your hair, but it will come back, plus you are going to have lots of fun wearing different wigs!!! I hope this helps.

01-26-2007, 12:36 PM	#4
Adriana Mangus Senior Member Join Date: May 2006 Location: California Posts: 668	Elevated markers Hi again Grace: In my situation my markers were kind of "stable" for about a year (24.5), I decided to wait and see-in November I had a chest scan and it showed the tumor was growing back -almost the same size as the one when I was originally diagnosed (recurrence) in 2003,-mets to one organ, only. I then had a CA2729 test done and indeed the marker was up to 53!. So in my case the CA2729 is proven to be a useful tool. My oncologist was not too worry to have waited this long to put me on chemo (Xeloda, oral med) since you have to keep your body healthy and ready for when the big one comes. In my opinion, you should talk with your onc. first, but I was in your shoes I will definitely go for the chemo. It's not as bad as it used to, yes, you're going to lose your hair, but it will come back, plus you are going to have lots of fun wearing different wigs!!! I hope this helps. __________________ 1994 - rt brst, .lump, underarm node dissection,chemo+rad 1.2 cms, Grade 3. 28 nodes neg Er,Pr, Positive HER2 status unknown 2003- Recur to rt lung.July 16 ( B-Day!) Her2+++ Er,Pr, Negative 2003 - Aug04--Navelbine + Herceptin 2004- 2007--NED - Herceptin, only 2007 Feb-April Xeloda added to hereceptin 2007-May Back on Navelbine+Herceptin 2008-Feb-Mar 15 Ses Rad to Rt. Lung 2008- Oc 17 Add Tykerb to Herceptin 2009- June-- Discont Tykerb 2009 July 7--Current Taxol + Herceptin 2009 Dec--Discontinued treatment due to progression. Looking into cyberknife. 2010-Aug Accepted to TDM1, no SE, except liver count went up. 2010-2011 September got kicked out of the trial, due to a small spot found on lung. 2011- 2012 September thru early 2013 on Herceptin 2013- March Bone density shows small spot on 5th rib. 2013 - April 4th appt with onc. will post after discussing course of treatment. 2013-March-April Cyber knife to brain and radiation to rib. Chest --base line before chemo-CT-Scan stable for lung issue. CA2729 Normal. 2013 April Herceptin- TDMI 2013 Sept Herceptin + Perjeta . CA2729 within normal range. Brain and Pet scans October 31st. will post results. 2013 October Brain MRI- mixed response. Will see Onc/rad on Halloween. 2013 October/November Brain-MRI nothing new. Repeat MRI next year in May. 2013 December Continue Herceptin and Perjeta. Stable at the moment. 2014 February Brain MRI -clear! 2014 January Added Taxotere to Perjeta+Herceptin. 2014 March Stopped chemo-chest ct-scan next. 2014- March Scans shows tumor's larger, CA2729 higher. Discontinue Herceptin. 2014 April Perjeta+ Halaven 2014 April CA2729 went down 60 points after one cycle. Cough does not want to go away. 2014 June Continue on Perjeta + Halaven-- no more cough. Stable 2014 June Back on Herceptin + abraxane