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Tykerb is expected to be released next month (update from San Antonio)and then the oncologist would be able to give a prescription but not until then. It has to come from the drug company and one needs to be in a trial. I am in the Tykerb/Xeloda trial which has a strict protocal of seeing the doctor every 3 weeks with blood work and every 6 weeks follow up bone, cat scan. Was getting muga but that has been changed to every 3 months for me. Don't know if that is the same for everyone. I have to see the same doctor at each visit. I get a new supply of Tykerb every 6 weeks handed to me by the oncologist I am seeing. I get Tykerb for free because it is a trial as soon as it gets released then my insurance will pay for it. I hope this helps. The docs have no control here its the drug company. hugs, Sandy
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Dx. 03/01, Rt. IBC
AC/Taxatere
Rt. MRM-with graft Lt. simple
5 rads-skin mets
Herceptin, taxol, carboplatin (taxol seem to be the magic drug)
Navelbine & xeloda (did not work)
topical miltex for skin mets
Tykerb/xeloda
thoracentesis x 2 left lung fluid shows cancer cells
Port removal (4 years) with power port replacement
Doxil
Updated 05-07 Scans show no bone or organ involvement we shall see!
I shall not pass this way again. Any good I can do or any kindness that I can show let me not defer or neglect it for I shall not pass this way again.
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