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My oncologist and I have been talking about the same thing. I am a stage 2b, but really want to do whatever I can to prevent recurrance (sp?). He is willing to give it to me off label. I have similar questions- 1. can it be taken with Herceptin safely, as I will only be 1/2 way through my "year" of Herceptin and 2. I am afraid of using it now and then it not being effective later if I need it.
I really like the fact that it crosses the BBB and might give me some added protection.
Love, Kelly
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dx'd 05/06, 37 years old
er/pr-, Her2+, grade 3
double mastectomy, immediate reconstruction- implants
Stage 2b, 2 tumors- 2.2 cm and 0.6 cm, 3/5 + nodes
all scans clear
genetic testing- negative
06/06 began dd A/C x 4, 12 weekly Taxols w/ Herceptin
30 rads
Herceptin weekly x 1 year
Herceptin completed 08/07
Port removed 12/26/07 MERRY CHRISTMAS!!!!!!
05/17/08 Two year anniversary NED
"We gain strength, courage, and confidence by each experience in which we really stop to look fear in the face... you must do the thing that you think you cannot do."
-Eleanor Roosevelt
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