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Old 12-29-2006, 01:25 AM   #19
Chelee
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Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
Update...

I finally got ahold of the nurse at my surgeons office regarding my mammo results that were mailed to me. I really thought they mailed these to me during the holiday weekend as payback for my complaint against my onc.

But when I got the nurse Wed at my surgeons office and told her I got this letter that says they found something on the mammo and to follow-up in six months...she was ticked. (Not at me.) She said "they" weren't suppose to mail me anything. She said she talked to them personally and told them how it was to be handled. She said my surgeons office is supose to notify me with the results.

(Plus I talked to my chemo nurse that had her mammo the SAME day I did...but she had her mammo there at my surgeons office.) I had to go across town. I asked if she got hers and she said NO...they were SUPPOSE to mail her the results but she *hasn't* heard from them.

I didn't dare tell her I got mine in the mail. Maybe the place I went too mailed them to me because I called then a couple times telling them I wanted the results asap. Either way...unless they are all very good story tellers...it really sounded like my surgeons nurse was mad that they mailed that too me. (But it sure NOT nice to make someone like me with my kind of bc WAIT that long!) Thats un-acceptable to me.

But I told her what the mammo report said and that there was NO WAY I am waiting SIX months for a follow up. I told her I want a MRI of it and I also want to talk to my surgeon about a mastectomy of that breast regardless of what they find or don't find. I want it GONE. This is TOO stressful. My surgeon SHOULD of removed it last year like I wanted him too and I wouldn't be going through all this.

So the nurse has an appt set up for me NEXT Wednesday morning.

Chelee
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DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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