HER2 Support Group Forums - View Single Post - "The Scoop" - what is going on with Lisa

StephN · 12-14-2006, 12:41 PM

What HELL our poor Lisa has been enduring! Well, at least they found out the "rest of the story" about her stomach. There must have been a whole platoon of specialists working on her case to sort all that out.
No wonder she felt "poopy."

Good to know that she now has the opportunity to get all the help she needs and get her stomach working again. Please let her know that I will be doing some leg lifts and light arm weights for her!

Hopefully you have a nutritionist that can advise on the right foods and supplements to get the enzymes back in sync. I know it is a baby step at a time. You did not say what intervenous nutrition she was getting, but she must have had some at the hospital.

Hey, Lisa. I know you can get over this major speed bump. What a shinning bit of news that you had be able to have some Tykerb and see results. I will hold that thought for you.

12-14-2006, 12:41 PM	#5
StephN Senior Member Join Date: Nov 2004 Location: Misty woods of WA State Posts: 4,128	My Goodness! What HELL our poor Lisa has been enduring! Well, at least they found out the "rest of the story" about her stomach. There must have been a whole platoon of specialists working on her case to sort all that out. No wonder she felt "poopy." Good to know that she now has the opportunity to get all the help she needs and get her stomach working again. Please let her know that I will be doing some leg lifts and light arm weights for her! Hopefully you have a nutritionist that can advise on the right foods and supplements to get the enzymes back in sync. I know it is a baby step at a time. You did not say what intervenous nutrition she was getting, but she must have had some at the hospital. Hey, Lisa. I know you can get over this major speed bump. What a shinning bit of news that you had be able to have some Tykerb and see results. I will hold that thought for you. __________________ "When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau Live in the moment. MY STORY SO FAR ~~~~ Found suspicious lump 9/2000 Lumpectomy, then node dissection and port placement Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR - Adriamycin 12 weekly, taxotere 4 rounds 36 rads - very little burning 3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED! 2003 & 2004 no active disease - 3 weekly Herceptin + Zometa Jan 2005 two mets to brain - Gamma Knife on Jan 18 All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying Continue as NED while on Herceptin & quarterly Zometa Fall-2006 - off Zometa - watching one small brain spot (scar?) 2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava 2008 - Brain and body still NED! Port removed and scans in Dec. Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011 STILL NED everywhere in Feb 2014 - on wing & prayer 7/14 - Started twice yearly Zometa for my bones Jan. 2015 checkup still shows NED 2015 Neuropathy in feet - otherwise all OK - still NED. Same news for 2016 and all of 2017. Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.