Thread: 2 questions
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Old 12-12-2006, 08:37 AM   #9
pattyz
Senior Member
 
Join Date: Mar 2006
Posts: 306
Eric,

In the past four plus years of brain mets, my tumor markers are always in the low normal range, using the CA27-29. I think Steph? mentioned that hers is elevated, but a different test/marker.

My tm was way over 300 when first dx'd with mets back in mid 2002. That was mets to mediastinal nodes, spot on lung and pelvis. And then brain. However, after NED in body ever since, the CA27-29 is as I said: normal.... and I currently have 8 brain mets that I've been living with, treating, for over 18 months. Same with my first brain recurrance.

So, once dx'd with mets, I do NOT think it's out of line for us Her2+++'s to get brain MRi's every 6 mos.!

And: Once dx'd with brain mets, I have learned that it is not an immediate death sentence. Many fears and terrors, yes. But doable, too.

Very best wishes to you, your wife and children,
pattyz
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