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Barbara H. · 12-12-2006, 05:46 AM

My necrosis or tumor grew from 1cm to 3cm in 3 months. I am having surgery this Thursday. I had virtually no symptoms. I was NED from 8/04 to 3/06 from Herceptin alone. I had extensive lung, lymph, skin, liver (currently NED), and this current brain issue which resolved for 1 1/2 years and came back as necrosis a year ago. Since March of last year I developed minimal bone mets and have been dealing with them. My tumor markers just rose to 2.7 and for me that is significant. Good luck, but I think it is important to scan twice a year for brain mets when you are stage 4, or have symptoms.
Best wishes,
Barbara H.
P.S. I am active and teach third grade so your wife can live with this for a long time. If your markers are low, scanning is less important, but MRI's need to be done for stage 4 patients.

12-12-2006, 05:46 AM	#8
Barbara H. Senior Member Join Date: Sep 2005 Location: Newton, MA Posts: 951	Brain MRIs My necrosis or tumor grew from 1cm to 3cm in 3 months. I am having surgery this Thursday. I had virtually no symptoms. I was NED from 8/04 to 3/06 from Herceptin alone. I had extensive lung, lymph, skin, liver (currently NED), and this current brain issue which resolved for 1 1/2 years and came back as necrosis a year ago. Since March of last year I developed minimal bone mets and have been dealing with them. My tumor markers just rose to 2.7 and for me that is significant. Good luck, but I think it is important to scan twice a year for brain mets when you are stage 4, or have symptoms. Best wishes, Barbara H. P.S. I am active and teach third grade so your wife can live with this for a long time. If your markers are low, scanning is less important, but MRI's need to be done for stage 4 patients.