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Old 11-12-2006, 06:17 PM   #4
tousled1
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Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
Kim,

I can really sympathize with your friend as I too suffer from severe bone pain. With each infusion of Herceptin the pain worsens. I go to a pain management doctor once a month -- currently taking Vicodin 4 times a day and morphin sulfate 2 times a day. Neither of which are helping. I was sent for a scan in August and again in October and absolutely no mets. I know Herceptin is the culprit and am seriously considering taking a few months off just to see if the bone pain subsides as I don't want to keep taking pain meds. I have also tried gloucycomine (spelling) with no relief. Bottom line, I don't know what to recommend for your firiend but let her know she not alone in the bone pain boat!
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Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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