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Hi, I also had a similar diagnosis and I go for pet/ct scans just to make sure everything is ok. At first my onc told me the same thing that your onc did, but I told him I didn't agree and wanted to have scans. I also talked to my insurance b4 talking to my onc, to see if they only covered so many pet/cts in a year, etc. They told me that they will cover anything my onc orders. So, when I talked to my onc and he started saying something about ins maybe not covering, I already told him what I had found out.
I told him I am 37 with 3 small children, I want to catch the mets as early as I can. I would rather deal with the anxiety of waiting for the results and possible false positives, than the wondering of whether I had mets.
If you really want a pet scan, demand it.
Laurie
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