So good to hear Dace
Good to hear you are going to begin the Tykerb/Xeloda trial.
I started in August and am in my 4th cycle now. I am on 2650 mg Xeloda (down from 3000mg) and 1250mg Tykerb daily.
The Xeloda can be a little mean on the hands/feet but hopefully it won't bother you. Keep your hands and feet well lubricated with creams. The Tykerb is an easy drug. No side effects from that one.
I have had one scan and tumor marker test done after 6 weeks on and my CEA tumor marker went down from 35 to 3.5 which is great. I know I am very sensitive to this marker so I was pleased with these numbers. No change at that time on my tumors but did not grow either. I am getting ready to rescan in a couple of weeks and we will see what is going on then. So so far we feel that the treatments are stopping growth. I will update everyone after my next scans.
I believe you are correct and this will be a good drug. Keep the faith and take care. Any questions you may have, feel free to contact me.
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Irene from Tampa
1996 - INFILT DUCTAL CAR.W/ LYMPH NODE INVOLVEMENT. ADRIA/CYTOXIN/5FU
1999 - RECURR. TO AUXILA AND 2 TUMORS IN LIVER
TREAT: STEM CELL REPLACEMENT/HERCEPTIN.
2002 - RECUR TO LIVER
TREAT: NAVELBINE, THEN GEMZAR, THEN XELODA.
2004 - TUMORS STILL IN LIVER
TREAT: RFA TO LIVER
STABLE UNTIL
2004 - TUMOR PROGRESSION IN LIVER.
TREAT: RESECT HALF OF LIVER.
2005 - RECURR TO LYMPH NODE OUTSIDE OF LIVER.
TREAT: TAXOL/CARPO/HERCEPTIN. FAILED ON
THIS TRIO. STARTED ON ABRAXANE.
2006 - PROGRESS WITH 2ND TUMOR GROWTH.
TREAT: AUG. BEGAN ON TYKERB/XELODA
TRIAL. CONSIDERED STABLE TO DATE.
2007 - TAKEN OFF OF TYKERB/XELODA TRIAL DUE TO
PROGRESS STARTING TYKERB/AVASTIN.
NOV 2007 - SCANS SHOW PROGRESS TUMOR GROWTH
IN ABDOM. AND TWO NEW TUMORS IN NECK AREA.
BEGAN HERCEPTIN/AVASTIN/TAXOTERE
Feb 08 - Ixempra/Xeloda
June 08 - Her/DM1 trial
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY."
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