View Single Post
Old 10-25-2006, 06:22 AM   #5
pattyz
Senior Member
 
Join Date: Mar 2006
Posts: 306
Dear Patty,

Everyone has given you wonderful advice and options. And I concur with them.

I had just 24hrs to do my research and when my medical onc said: you'll need whole brain radiation, I said: I want Gamma Knife.

I was immediately put on Decadron. That does a great job on the symptoms of brain mets, but wrecks havoc with the rest of your body and mind...

It has been over four yrs now, with a total of 24 tumors in brain. I am currently responding (knock wood) to Xeloda/Temodar for 8 lesions... and have been for just over a year.

I've had five seperate focalized radiation treatments to treat 16 brain mets over the course of 18 months... and have been fortunate (and persistant!) in avoiding WBR.

Hang tough.... no matter how terribly frightening this news is... believe me when I say you can survive this, too.

big big hugs,
pattyz xoxox
pattyz is offline   Reply With Quote