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Kim,
I have all copies of lab work, scans, etc. The only thing I don't have are the doctor's notes. I think it would probably be a good idea to get as much as possible. Most providers charge a fee for your records -- at least they did in VA. When I moved from VA to GA last year I went to each of my providers and got my complete medical file from each. Most of them charged per page and I think there was one provider that just charged a set fee. I feel it was worth it. Who ever knew that I'd be diagnosed with cancer! I sure was glad I had all my medical records.
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Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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