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Esther · 10-18-2006, 08:31 PM

Well, here's my update....We went in last night to Cedars-Sinai for a pre-op MRI, spent the night down there, then checked in at 10:45 in the morning. At 1:30 Dr. neuro's came to my stretcher where I was waiting for sugery, and said the pre-op MRI showed all the swelling was gone due to the decadron I had started on Friday, and the previous growth trend had stopped. There had been no new growth since Sept 29. The symptoms have dissapeared since I've been on the decadron as well.

Given that finding, they were recommending not doing the surgery at this time, but to continue to monitor it as it was more likely that the growth had been from radiation reactions. They are recommending the Tykerb trial and will help me forward my records to try to begin ASAP.

What a swtich!!! Part of me just wanted the darn thing OUT!! Part of me is relieved at no surgery. This means that I now have the luxury of time to try the Tykerb, and given the positive results some have been reporting, perhaps this will be a good thing.

I'm sitting here reeling, wondering if I've made the right choice to cancel the surgery. I had a very short time to consider it, and the surgical team was recommending "NO"

What a rollercoaster this has become!!!

10-18-2006, 08:31 PM	#1
Esther Senior Member Join Date: Sep 2005 Location: Riverside, CA Posts: 484	My surgery update..... Well, here's my update....We went in last night to Cedars-Sinai for a pre-op MRI, spent the night down there, then checked in at 10:45 in the morning. At 1:30 Dr. neuro's came to my stretcher where I was waiting for sugery, and said the pre-op MRI showed all the swelling was gone due to the decadron I had started on Friday, and the previous growth trend had stopped. There had been no new growth since Sept 29. The symptoms have dissapeared since I've been on the decadron as well. Given that finding, they were recommending not doing the surgery at this time, but to continue to monitor it as it was more likely that the growth had been from radiation reactions. They are recommending the Tykerb trial and will help me forward my records to try to begin ASAP. What a swtich!!! Part of me just wanted the darn thing OUT!! Part of me is relieved at no surgery. This means that I now have the luxury of time to try the Tykerb, and given the positive results some have been reporting, perhaps this will be a good thing. I'm sitting here reeling, wondering if I've made the right choice to cancel the surgery. I had a very short time to consider it, and the surgical team was recommending "NO" What a rollercoaster this has become!!!