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mkrny · 10-15-2006, 05:54 PM

I'll offer two perspectives on this.

Based on your history I would be surprised if you had any spinal invovlement at this point but I would recommend you aire on the side of caution. I don't want to scare you but I'd push for an MRI of head and spine to rule out mets to these areas. The more likely answer is what others have answered but don't get complacent.

Another thing to try is, if you exercise your legs a bit, so they get a little tired, do you still get the twitching? This reminds me of something my dentist told me a long time ago regarding my grinding of my teeth when I slept. He told me to chew gum during the day to make my jaw muscles a little more tired. It worked.

10-15-2006, 05:54 PM	#4
mkrny Senior Member Join Date: Mar 2006 Location: LI, NY Posts: 38	I'll offer two perspectives on this. Based on your history I would be surprised if you had any spinal invovlement at this point but I would recommend you aire on the side of caution. I don't want to scare you but I'd push for an MRI of head and spine to rule out mets to these areas. The more likely answer is what others have answered but don't get complacent. Another thing to try is, if you exercise your legs a bit, so they get a little tired, do you still get the twitching? This reminds me of something my dentist told me a long time ago regarding my grinding of my teeth when I slept. He told me to chew gum during the day to make my jaw muscles a little more tired. It worked. __________________ Maryann & Ken __________________ Stage IV, Her2/Neu 3+++, Er & Pr positive, Primary mets to brain/CSF, bones & lymphs DX: 2/01, DCIS Rt one, Neoadjuvant chemo, MRM 7/01 Rads to chest, neck, lower spine, pelvis WBR & cyberknife Numerous chemo/hormonal cocktails along the way 10/11/06: Started Trial of Lapatinib/Xeloda, after 2 cycles it is declared a failure for us. 11/24/06: Now starting rads to upper spine then IT herceptin 12/07: Took a turn for the worse and entered hospice. Enjoyed remaining time with family and friends feasting on cookies and sushi. 4/11/07: Peacefully passed on. Maryann will be missed by all.