Thread: lymphedema
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Old 09-27-2006, 04:22 PM   #6
Sandy H
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Join Date: Feb 2005
Location: Norridgewock, Maine
Posts: 778
I always wear a sleeve (off the shelf works for me) day and night. Do my manual massage every night and morning with the sleeve off. I put two sleeves on when I fly and do not take them off for a couple of hours after landing. I try to drink lots of water and no salt. Should not left anything over 5 pounds that is a gallon of milk, no repetative motion, pushing or pulling with that arm. Wear a I.D. bracelet on the arm so no one will take B/P, blood, or finger stick in the arm. If you get a cut of any kind or scratch be sure to clean it and use some kind of antibiotic ointment on it and watch for infection. No hot showers, hot tubs, or saunas. I call it my dead arm. All this info I have written will be covered by a specialist. It is manageable once it is under control. Wishing you well, hugs, Sandy
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Dx. 03/01, Rt. IBC
AC/Taxatere
Rt. MRM-with graft Lt. simple
5 rads-skin mets
Herceptin, taxol, carboplatin (taxol seem to be the magic drug)
Navelbine & xeloda (did not work)
topical miltex for skin mets
Tykerb/xeloda
thoracentesis x 2 left lung fluid shows cancer cells
Port removal (4 years) with power port replacement
Doxil
Updated 05-07 Scans show no bone or organ involvement we shall see!




I shall not pass this way again. Any good I can do or any kindness that I can show let me not defer or neglect it for I shall not pass this way again.
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