HER2 Support Group Forums - View Single Post - How do I make a decision about entering trial?

doh2pa · 09-26-2006, 06:41 PM

Hi SkiBunny,

Sorry, I haven't checked the site in a bit. My dad passed away suddenly last week and I have been consumed with that.

I was in the Telemorase Reverse Transcriptase Phase I vaccine with Dr. Susan Domchek at U of P. I was in from May until August when I advanced. I was still taking Herceptin and Faslodex at the same time. I thought I got great care there and when my disease advanced, I was able to use Dr. Domchek for a second opinion (she's great!).

I too asked about the autoimmune repurcussions of vaccine trials. I was told that there had been no data showing this to be a risk factor. Because I was not on a HER2 vaccine, there were no heart risks, but I am sure they will monitor you carefully with MUGAs or ECHOs.

What about you, what trial are you in??

Donna

09-26-2006, 06:41 PM	#14
doh2pa Deceased Join Date: Oct 2005 Location: Chadds Ford, Pa Posts: 206	Hi SkiBunny, Sorry, I haven't checked the site in a bit. My dad passed away suddenly last week and I have been consumed with that. I was in the Telemorase Reverse Transcriptase Phase I vaccine with Dr. Susan Domchek at U of P. I was in from May until August when I advanced. I was still taking Herceptin and Faslodex at the same time. I thought I got great care there and when my disease advanced, I was able to use Dr. Domchek for a second opinion (she's great!). I too asked about the autoimmune repurcussions of vaccine trials. I was told that there had been no data showing this to be a risk factor. Because I was not on a HER2 vaccine, there were no heart risks, but I am sure they will monitor you carefully with MUGAs or ECHOs. What about you, what trial are you in?? Donna Last edited by doh2pa; 09-26-2006 at 06:46 PM..