Maryanne,
What's happening to you and your family seems unbelievable. and my heart goes out to all of you and I wish your daughter the best in testing results.
I found this link for you and I think this maybe what your looking for.
http://www.ters.com/
I don't know if there are any state programs but you may want to also get in touch with the EPA.
As well, here is a related article:
http://medicine.plosjournals.org/per...l.pmed.0020061
Good luck,
Al