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Support...it comes in many forms...some think they are supporting you but they are really in denial about the whole situation.
My parents are there for support, but both are elderly, I hate to burden them.
My husband thinks everything will be fine...somewhat in a denial mode.
My children I believe (and they are grown) what I have is the same as having a bad cold! Maybe they don't want to accept. Denial also?????
My friends give me the pep talks...you are doing so well, you dont' look sick!...they are just trying to make the situation comfortable I guess.
Brothers and Sisters...there is a split here...I have a brother and sister that call all the time, show some interest, and 2 that I never hear from. Distance sometimes takes away fear.
BC Support Groups HER2 and Hooter Pals are there for the good and the bad! At least at this place, others know what its like! I am allowed to be myself, and get that boost I need to continue to fight!
Myself I rely on myself to go to my treatments alone, Dr appts, scans...it is kind of an independence thing and it gives me time to let my thoughts wander and feel that I am fighting for myself...which in turn makes me stronger for my family.
God and Faith have been a real comfort....he never gives us more than we can handle....although sometimes I feel he is pushing the limit! I have found that prayer heals the mind to give us strength to get through this.
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"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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