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Old 08-20-2006, 04:24 PM   #3
chrisy
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Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
Talking

Chelee, Great questions!
I've been blessed with a great support network and "get" different things from each type of support so it is difficult to say which is best. This is really long, because I continue to be awed by the depth of support I received.

Sources of support:
1. My family. My husband who loves me dearly and supports me best by doing just that, and making me laugh. My sister and niece, who live in Chicago (way too far away!). These people are my reason for living.
2. Friends who maintained a continuous flow of cards, well wishes, emails, and social contact during my treatment. Somehow when I was at my lowest, someone would out of the blue send me a note of encouragement.
3. Co-workers and business associates. From my staff to the President and Owner of the company, these people were INCREDIBLE! They set up "meal service" and transportation to/from treatments, prayed for me, allowed me to work from home when I needed to and rose the the challenge of keeping things going while I was functioning at (ever so slightly! LOL!) less than 100%. I feel I found true love in the workplace. I know that not everybody gets support from their workplace so I know how lucky I am.
4. The local "cancer support community". I met a lot of people when I had my initial diagnosis and was a "peer navigator" through a local womens cancer support center. When I found out the cancer had recurred, these people were the first I called, because I knew they understood.
5. Support groups - this Her2support group is the best online support group I found. The knowledge and information as well as "support" is incredible. I also went to some local support groups which were good in the sense that I could talk about things that were difficult to discuss with family/friends.

Best source of support:
Sounds a bit irreverent to say God, but since I view all of the above as little miracles... For info, this site. For practical support, my work associates. For love, my family.

Did anybody "disappear":
I expected this when I got the diagnosis of mets, because people just can't deal with that. This may yet happen in the future. I did not have anyone "leave", and in fact was surprised that some casual friends became closer friends. I did have some instances of people saying incredibly insensitive and stupid things! My favorite was "I was trying to put myself in your shoes and think of how I would feel. I always wanted to die first, too". I just chalk those up to people don't know what to say - and remind myself that they are coming from a place of love despite how it comes out!

Gotta go praise Him for all my blessings...

Thanks Chelee, for opening this topic.
Chris
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Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial

5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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