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Search: Posts Made By: TiffanyS
Forum: her2group 03-03-2017, 11:37 AM
Replies: 129
Views: 58,119
Posted By TiffanyS
Re: Need input!

I’m glad your brain is okay Juls. I have my second brain MRI in a few weeks, and I hope it’s clear!

Sorry to hear that your liver met grew so much in the last few weeks. You’re on treatment now...
Forum: her2group 02-13-2017, 11:19 AM
Replies: 129
Views: 58,119
Posted By TiffanyS
Re: Need input!

Juls, I know how you feel. My oncologist is not overly concerned with the “pimples” that have grown along my scar, and she thinks they are just scar tissue, but is monitoring them for now. I, of...
Forum: her2group 02-13-2017, 08:33 AM
Replies: 129
Views: 58,119
Posted By TiffanyS
Re: Need input!

Hi Juls,

I’m glad that you’re getting more tests done. That way, you’ll know exactly what you’re dealing with when you start the trial. Don’t worry too much about not getting treatment for four...
Forum: her2group 02-10-2017, 05:34 AM
Replies: 129
Views: 58,119
Posted By TiffanyS
Re: Need input!

I’m glad everything went well, and that the oncologist answered all of your questions. It’s sad that the drugs available as standard care where you live are getting less. You would think it would...
Forum: her2group 02-09-2017, 05:46 AM
Replies: 129
Views: 58,119
Posted By TiffanyS
Re: Need input!

Juls, I hope you meeting with the new oncologist goes well today. Keep us posted.

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12/15 – First mammogram
01/16...
Forum: her2group 02-08-2017, 06:14 AM
Replies: 129
Views: 58,119
Posted By TiffanyS
Re: Need input!

Hi Juls, I’m sorry to hear that you had progression on Perjeta. At least it worked for two years, which seems to be the average. I’m hoping to get two to three years on Perjeta before I have to...
Forum: her2group 02-06-2017, 05:31 AM
Replies: 129
Views: 58,119
Posted By TiffanyS
Re: Need input!

I spoke to my doctor about Tucatanib a few weeks ago, and she told me that you can’t take Tacatanib (or be part of the trial for it) until you have taken Perjeta/Herceptin/Taxol and TDM-1 first. She...
Forum: her2group 02-03-2017, 09:56 AM
Replies: 129
Views: 58,119
Posted By TiffanyS
Re: Need input!

When is your daughter’s wedding? I’ve heard that there are very little side-effects with TDM-1, so hopefully you’ll be feeling okay for her wedding. You have to do what you have to do though, and...
Forum: her2group 02-03-2017, 08:23 AM
Replies: 129
Views: 58,119
Posted By TiffanyS
Re: Need input!

Juls, I’m sorry to hear that TDM-1 is not covered in Scotland. It’s too bad because it has helped so many people. Is it because it’s too expensive? If the trial is the only way to get TDM-1, than...
Forum: her2group 02-03-2017, 05:50 AM
Replies: 129
Views: 58,119
Posted By TiffanyS
Re: Need input!

I’m sorry to hear about your progression Juls, but I agree with everyone that joining the trial is the only way to go. At least you’ll get TDM-1, which I’ve heard has worked wonders on a lot of...
Forum: her2group 01-24-2017, 10:57 AM
Replies: 129
Views: 58,119
Posted By TiffanyS
Re: Need input!

Hi Juls, I just read you earlier post regarding your tooth issue, and I’m glad it’s finally been resolved. I’m sorry you had to go through that stress though. I’m also glad that your test results...
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