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Search: Posts Made By: Lien
Forum: her2group 04-01-2018, 03:06 PM
Replies: 39
Views: 4,326
Posted By Lien
Re: Kadcyla n me

Hi Flori,
That sounds really tough. Can't blame you for wanting to discontinue this treatment if the scans are not so great. Still hoping the SE's will subside with subsequent cycles and scans will...
Forum: her2group 03-12-2017, 11:16 AM
Replies: 7
Views: 3,791
Posted By Lien
Re: Oh come on now....

After my surgery I had a huge infection in my scar tissue. It was very painful and I worried about it a lot. Then my oncologist told me that having an infection in the area actually may be...
Forum: her2group 12-16-2016, 03:44 PM
Replies: 40
Views: 12,150
Posted By Lien
Forum: her2group 09-14-2016, 04:33 AM
Replies: 12
Views: 4,745
Posted By Lien
Re: Just Starting Out and Scared To Death

Hi Grammy,

Of course you are scared and out of your depth. Hearing the words: "you have cancer" is a terrible experience. I really thought I was not going to see my kids grow up. They were 3, 8,...
Forum: her2group 08-18-2016, 08:15 AM
Replies: 11
Views: 4,496
Posted By Lien
Re: 10 years and in trouble

Hi Michka,

Sorry to hear you have some progression in your liver and perhaps spine. You might also want ti look into trials in the Netherlands, England and Germany. I can help you with the first...
Forum: her2group 07-31-2016, 08:04 AM
Replies: 10
Views: 3,382
Posted By Lien
Re: Can anybody help please?

Many of us go through the same stages. Especially when you have a business to run and 4 kids to take care of, you may go into survival mode and when you finally, finally feel things are getting under...
Forum: her2group 07-31-2016, 07:53 AM
Replies: 18
Views: 4,047
Posted By Lien
Re: Progress Report from Ceesun!

Excellent news! Hope you will be able to go back to just Vit H and have your hair grow back.
Forum: her2group 07-28-2016, 10:23 AM
Replies: 13
Views: 3,732
Posted By Lien
Re: Anybody taken tamoxifen after 10years of arimidex?

Christal ball, pesky autocorrect set to Dutch language...
Forum: her2group 07-28-2016, 10:22 AM
Replies: 13
Views: 3,732
Posted By Lien
Re: Anybody taken tamoxifen after 10years of arimidex?

Why would you want to keep taking anything after 10 years? Did you have advanced stage disease? Other risk factors? I had 5 years of Arimidex and decided to quit, as the risk reduction after that was...
Forum: her2group 06-22-2016, 11:54 AM
Replies: 72
Views: 25,988
Posted By Lien
Re: I think I'm in trouble!

What a journey! Any results yet? It's all very intriguing.
Forum: her2group 01-03-2016, 07:21 AM
Replies: 5
Views: 2,976
Posted By Lien
Re: Advice From the Group

In my country, the Netherlands, Europe, where we have similar outcomes to your country, we have the following schedule:
Checkups every three months for the first 6 months. Then twice a year until...
Forum: her2group 12-15-2015, 03:10 PM
Replies: 40
Views: 12,629
Posted By Lien
Re: Karen has moved on

Thank you for letting us know. It's hard to grasp that she's gone. She was so very much alive. Hugs to all who loved her, laughed with her, felt her warmth, enjoyed her intelligence and shared a part...
Forum: her2group 10-04-2015, 12:41 PM
Replies: 7
Views: 2,705
Posted By Lien
Re: "why did I get breast cancer" starting to be answered & it seems to be 80% bad lu

I guess we want control over our lives and health. That makes life less scary. I remember traveling in Peru and Equador, in 1983, where locals seemed indifferent to the dangers of diseases and...
Forum: her2group 09-13-2015, 11:55 AM
Replies: 9
Views: 2,080
Posted By Lien
Re: Not sure what to do about surgery

Hi Mama Bexar,

Glad you have that behind you. Clear margins and negative nodes are very good news. It seems to me that you have an excellent chance of never having to deal with breast cancer...
Forum: her2group 08-20-2015, 09:12 AM
Replies: 0
Views: 1,109
Posted By Lien
Toupim & post-surgery camisoles

Hi all,

As I was browsing through my Facebook friends, I discovered that someone I used to know has developed the Toupim, a very comfortable hairpiece that isn't itchy or uncomfortable. She...
Forum: her2group 08-16-2015, 12:08 PM
Replies: 17
Views: 24,301
Posted By Lien
Re: A Special Note on Christine's Birthday, From Her Daughter

Dear Danielle and Debra,

Your Mom and Dad made a difference. Because of them, so many women and men feel less afraid, less alone and more hopeful during the toughest time of their lives. Their...
Forum: her2group 08-11-2015, 02:08 PM
Replies: 11
Views: 2,009
Posted By Lien
Re: Melanoma

Hi Janis,

Not fun, this. My best friend is a dermatologist and she says there are quite a few new treatments that are keeping more people recurrence-free after a melanoma diagnosis. So it seems...
Forum: her2group 08-11-2015, 02:04 PM
Replies: 12
Views: 1,895
Posted By Lien
Re: Looking for advice and suggestions please

What a scare! I hope the WBR kills those mets fast. You will not be the first to beat this!


Forum: her2group 08-05-2015, 02:55 AM
Replies: 32
Views: 4,117
Posted By Lien
Re: Going back on Abraxane

Hi Amy,

I'm extremely sensitive to molds too. I found that drying out & spraying the afflicted area with a borax solution really helps. Glad you found a way to deal with it. Often these allergies...
Forum: her2group 07-14-2015, 06:36 AM
Replies: 28
Views: 10,206
Posted By Lien
Re: Teeth

I have had dental problems for a long, long time, ever since some cheapo dentist put some cheap fillings in my mouth. Turned out to be allergic to them and have had health issues since. Breast cancer...
Forum: her2group 07-11-2015, 12:05 PM
Replies: 39
Views: 3,472
Posted By Lien
Re: All clear Mammo and ten years out!

I get checkups with a mamma-care nurse practitioner who works at my breast surgeon's office. If at any time she is worried about anything at all, she calls him in. Because of my scarring, I don't get...
Forum: her2group 07-08-2015, 08:08 AM
Replies: 32
Views: 4,117
Posted By Lien
Re: Going back on Abraxane

Sorry about the tougher chemo. Of course you hate to lose your hair! I never had chemo, but I have a chronic gut infection that makes me look very pale. People kept commenting on that, and it made me...
Forum: her2group 06-25-2015, 02:28 PM
Replies: 3
Views: 1,640
Posted By Lien
Re: THE ABSOLUTE LATEST stats 4 her2+ tumors<2cm ER+,ER-, node+ node- with/without vi

I'm 11 years and 6 months out from diagnosis, never had Herceptin, because it was not yet available in my country for people with such small tumors. I had hormonal tx though. So far no recurrences. ...
Forum: her2group 06-19-2015, 01:35 PM
Replies: 6
Views: 1,392
Posted By Lien
Re: Zolodex

Hi, I was on it for 5 years and didn't find it to be much of a problem. The time-release capsules look quite large, but I actually hardly felt them usually. At least, when the right doc was doing the...
Forum: her2group 06-12-2015, 01:34 PM
Replies: 20
Views: 6,357
Posted By Lien
Re: 10 years later non BRCA ovarian cancer

Hi Cathy,

Sorry to hear they found ovarian ca, but very glad they found it at such an early stage. I have a friend who had ov ca years ago, and she is fine now. Hers was stage 2, so I guess your...
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