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Forum: her2group 07-22-2007, 12:44 PM
Replies: 9
Views: 1,202
Posted By TheresaM
thanks, think it will work out

Thanks all for your suggestions. I know my onc here is unlikely to take call from the out of state doc. He does't return calls, even my urgent ones to get a CT read, for example. I know my out of...
Forum: her2group 07-21-2007, 07:06 PM
Replies: 9
Views: 1,202
Posted By TheresaM
How to prescribe over state lines?

Hello all: I have a problem I hope someone can help with. I cannot get my general oncologist (the only doc available to me where I am) to prescribe xeloda/tykerb for me because it ceased to work on...
Forum: her2group 07-21-2007, 06:56 PM
Replies: 31
Views: 3,982
Posted By TheresaM
prescribing drugs for patients in other states?

THanks again everyone. Update is my conservative generalist onc here is reluctant to prescribe xeloda/tykerb for me since it ceased working on me in the past, although it was the only thing that...
Forum: her2group 07-20-2007, 05:31 PM
Replies: 31
Views: 3,982
Posted By TheresaM
Thanks everyone, and update

Thanks again for all your kind messages and your encouragement. My breathing continues to worsten, oxygen is at max, making me fear I don't have many days left. Strangely, other than not being able...
Forum: Herceptin / Tykerb 07-17-2007, 07:49 PM
Replies: 4
Views: 1,820
Posted By TheresaM
how are you getting tykerb offlabel?

flori: just curious. why did ur onc recommend tykerb offlabel with your new chemos? will ur insurance pay?
tks.
tykerb/xeloda was the only drug combo that ever worked for me, albeit for a short...
Forum: her2group 07-17-2007, 07:33 PM
Replies: 31
Views: 3,982
Posted By TheresaM
okay back on the attack

To all who so generously offered your suggestions or just sympathy, I wanted to provide an update:

I began Hospice today, they have such great support services, and they permit me to stay on the...
Forum: her2group 07-14-2007, 10:51 PM
Replies: 65
Views: 6,508
Posted By TheresaM
lung mets - experience varies

ummm, i was shocked at someone's post that lung mets seem easy to get rid of? huh? i think some of us cancer patients live in different worlds than others! like those that say breast cancer is...
Forum: her2group 07-14-2007, 07:27 PM
Replies: 31
Views: 3,982
Posted By TheresaM
Lani

thanks for your sugestions. unfortunately i'm in hawaii and can no longer fly for a clinical trial, using oxygen 24/7, already nearly cranked to the max.

I've done avastin and herceptin, neither...
Forum: her2group 07-14-2007, 07:22 PM
Replies: 31
Views: 3,982
Posted By TheresaM
Becky

Becky, thanks for your suggestions. i'll email my onc about adding tykerb or abraxane. my probem right now is weakness, could hardly drag my body into the car to go downtown one last time yesterday....
Forum: her2group 07-14-2007, 07:18 PM
Replies: 31
Views: 3,982
Posted By TheresaM
Shell...

Shell, your story sounds similar to mine, but congrats on staying alive more than two years after your lung mets. how are your lung mets now?

how do you know abraxane is working, sounds like you...
Forum: her2group 07-12-2007, 04:40 PM
Replies: 31
Views: 3,982
Posted By TheresaM
Desperate for hope: anyone er-, pr+, HER2+++ but nonresponsive to Herceptin/Tykerb?

Hello all: I am er-, but pr+ and HER2+++. I never responded to Herceptin (had it with Taxol/carboplatin and then with Navelbine, no response). I'm stage IV and feel I probably only have a few days...
Forum: Clinical Trials 05-02-2007, 12:28 PM
Replies: 4
Views: 4,138
Posted By TheresaM
How did you do on avastin?

Appreciate any experience you care to share about using avastin, as I am trying to get it, with gemcitabine/cisplatin.
thanks,
Theresa
Forum: her2group 05-02-2007, 11:30 AM
Replies: 6
Views: 1,763
Posted By TheresaM
Thanks all

Michelle, very interesting story you have. No, I was stage IIb when dx, the cancer just plowed through every treatment, first going through lymphs, then lungs, then skin, then abdomen. I'm on my...
Forum: her2group 05-01-2007, 05:09 PM
Replies: 6
Views: 1,763
Posted By TheresaM
A different kind of survivor's poll..

After reading all the wonderful stories in the survivor poll, a couple of things really stood out for me - all or just about all people who reached NED either responded to Herceptin and/or were...
Forum: her2group 05-01-2007, 04:48 PM
Replies: 31
Views: 3,519
Posted By TheresaM
interested in how your trial goes

Chrisy: I'm very interested in how your avastin/tykerb trial goes. I'm about out of options (tykerb/xeloda only worked for a few weeks before I got necrotic bowel and had to stop), and I just...
Forum: Clinical Trials 05-01-2007, 03:00 PM
Replies: 9
Views: 5,739
Posted By TheresaM
HKI-272 was a bust for me

Hi all, just to update you: I did exactly one month on Wyeth's tyrosine kinase inhibitor HKI-272 in a phase II trial at Seattle. It did not work on me, my lung mets progressed massively in that...
Forum: Clinical Trials 04-10-2007, 10:53 AM
Replies: 9
Views: 5,739
Posted By TheresaM
I have started HKI-272 trial..

Hello all, just to let you know I began the Wyeth Phase-II trial of HKI-272 one week ago. I will keep all posted as to results. I have mets in both lungs, extensively in lymph system, in abdomen...
Forum: Clinical Trials 04-10-2007, 10:51 AM
Replies: 7
Views: 3,803
Posted By TheresaM
Ragini you do show one sign of hope...

Ragini: I am like you, except that I've never responded to any chemo or experimental drug at all, let alone for a couple of months. The only one was the EAP trial and I got about 5 weeks of...
Forum: her2group 03-06-2007, 09:06 PM
Replies: 8
Views: 1,736
Posted By TheresaM
tykerb/xeloda

Betty: tykerb/xeloda was the only drug combo that ever slowed my cancer growth (it was my fourth cytotoxic regime, herceptin was a total bust for me). It work like a miracle on my skin mets, lung...
Forum: her2group 03-06-2007, 09:01 PM
Replies: 8
Views: 1,274
Posted By TheresaM
Navelbine/herceptin a bust for me

Hi: I did 6 months of Herceptin/Navelbine but I never responded to it. My cancer continued to grow and finally metastasized to my lungs during this treatment. I didn't respond to...
Forum: her2group 03-06-2007, 08:17 PM
Replies: 9
Views: 1,454
Posted By TheresaM
big decisions

Melody: My impression, after 3.5 yrs on the her2+ bandwagon, and extensive research and interaction with other Her2+ folks, is that if you respond to Herceptin you may not re-occur. However, if you...
Forum: her2group 02-26-2007, 09:13 PM
Replies: 15
Views: 1,856
Posted By TheresaM
Take heart, you have every reason to be hopeful

Cathy take heart. You are one of the lucky ones in the sense that you responded to a treatment before. There is no reason to believe you will not respond again. It's a rollercoaster for sure, but...
Forum: Clinical Trials 02-15-2007, 10:46 PM
Replies: 9
Views: 5,739
Posted By TheresaM
Hki-272

Hi, did your sister start the HKI-272? I have a friend who has been on it 4.5 months. She has extensive mets and seems to be responding to this drug quite well. I also aim to try it once the...
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