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Search took 0.01 seconds. Search: Posts Made By: Jaimieh
Forum: her2group 09-01-2015, 07:25 AM
Replies: 4
Views: 2,498
Posted By Jaimieh
Re: CVS Caremark Denying Herceptin Coverage

Missy~ I would call your oncologist, your primary insurance and lastly Caremark (I have a very LOW opinion of the people there). They don't just get to decide that they are discontinuing a drug...
Forum: her2group 11-26-2014, 07:52 AM
Replies: 25
Views: 4,915
Posted By Jaimieh
Re: Is it okay to cuss on here?? Cuz this is a Bitch

Linn. ((Hugs)). You are allowed to feel down but you are more than worth it. I hope today goes quickly and the SE are non existent.
Forum: her2group 08-05-2014, 07:59 PM
Replies: 15
Views: 2,723
Posted By Jaimieh
Re: Good news from my daughter

May Arry get her to NED.
Forum: her2group 07-29-2014, 07:24 PM
Replies: 3
Views: 2,360
Posted By Jaimieh
Re: Re-biopsy what biomarkers to test for

Thank you both. Jackie that is the odd thing was that I recurred after 5 years. I know it happens but I needed to check before I make peace with rads to the super clavicle.
Forum: her2group 07-20-2014, 07:48 AM
Replies: 6
Views: 2,008
Posted By Jaimieh
Re: Questions about penquin cold caps

Valley girl there is another brand dynacap or something similar that is sold thru amazon. If you get a chance check out breast cancer.org about the caps.

I didn't hope that route because it seems...
Forum: her2group 06-09-2014, 11:43 PM
Replies: 8
Views: 2,249
Posted By Jaimieh
Re: Little Pink Houses of Hope (Ocean City, MD) Retreat

We could have. I was just walking past everyone with a black hat on and clearly bald. :). I wish I would have know. I would have loved to meet up with you.
Forum: her2group 06-08-2014, 06:20 PM
Replies: 8
Views: 2,249
Posted By Jaimieh
Re: Little Pink Houses of Hope (Ocean City, MD) Retreat

Karen I wish I had known you were there. I was at the board walk and saw all the shirts on my way back to the car. I was explaining what the organization did to my daughter.
Forum: her2group 05-26-2014, 11:48 PM
Replies: 2
Views: 1,545
Posted By Jaimieh
Re: halo hair?

Crb I used one last time and I am using a new one again. I have a more expensive one this time than last time and I liked the one from tlc direct better than the expensive one. It's my go to head...
Forum: her2group 03-31-2014, 07:06 PM
Replies: 21
Views: 2,942
Posted By Jaimieh
Re: Guess it was a good run... Time for the gloves

Carol Ann I am supposed to get 4 AC's dose dense and 12 taxol's weekly with H& P. Then after I am done a month later I start rads :(.

I did meet the breast surgeon today and she confirmed its in...
Forum: her2group 03-30-2014, 05:13 PM
Replies: 21
Views: 2,942
Posted By Jaimieh
Re: Guess it was a good run... Time for the gloves

So I had a PET on Friday that showed that it is currently only showing in the breast so the plan is a lumpectomy followed by chemo than rads. If I do AC I will be able to get herceptin and perjeta so...
Forum: her2group 03-26-2014, 05:32 AM
Replies: 21
Views: 2,942
Posted By Jaimieh
Re: Guess it was a good run... Time for the gloves

Jenny I had a double mastectomy, implants twice, they were removed, one surgery to clean out my chest cavity, then three reconstructive surgeries with flaps. The lump was on my cancer side at the...
Forum: her2group 03-25-2014, 04:09 PM
Replies: 21
Views: 2,942
Posted By Jaimieh
Guess it was a good run... Time for the gloves

So I found out today that I have a 1x2cm mass that contains IDC that is ER/pr- and her 2+ just like the last time. Now I wait for a PET scan and pray that is is clear. My oncologist is already...
Forum: her2group 02-28-2014, 08:14 AM
Replies: 21
Views: 3,323
Posted By Jaimieh
Re: How long do you think I have??

I think I had mine until day 21 but I was on TCH. However, when it started coming out I shaved it because it hurt :(.
Forum: her2group 01-28-2014, 08:26 AM
Replies: 5
Views: 1,822
Posted By Jaimieh
Re: why you should interpret all death statistics with skepticism

I used to do Data entry for Pfizer and you would be shocked at what the FDA considers and adverse event (meaning something caused by the medication). I actually got reprimanded at one point because...
Forum: her2group 04-12-2013, 08:27 PM
Replies: 30
Views: 8,124
Posted By Jaimieh
Re: TCH Therapy...6 OR 4 Cycles...

I had a 1.3 cm tumor and I had 6 rounds of TCH. I kept looking and praying that there would be a study that showed 4 was fine. I never found it and I made it thru the 6. After the fact I am glad I...
Forum: her2group 02-05-2013, 12:14 AM
Replies: 26
Views: 3,179
Posted By Jaimieh
Re: Hospital stay & Hair Loss...makes for a full week:(

Jessica I am glad that you listened to your oncologist and that you are now back home. I hope you continue to feel better.

PS- I found that 50% benedryl mixed with 50% mylanta helped with my...
Forum: her2group 09-12-2012, 07:08 PM
Replies: 10
Views: 1,580
Posted By Jaimieh
Re: No more visits to Onc- is this right?

I think you maybe in the market for a new oncologist.

Our standard here in most of the US is too follow the patient for at least 5 years.
Forum: her2group 06-27-2012, 06:52 PM
Replies: 4
Views: 1,197
Posted By Jaimieh
Re: Has anyone had a free flap done?

I had hip flap done 2+ years ago and I love my new girls. I tried implants which failed for me and if I had known free flaps where an option from the beginning I would have done that.
Forum: her2group 04-15-2012, 04:58 PM
Replies: 39
Views: 3,704
Posted By Jaimieh
Re: Courtney

My thoughts and prayers are with her husband, family and all that loved her. She was such an inspiration to everyone to never give up.
Forum: her2group 01-24-2012, 03:08 PM
Replies: 24
Views: 3,218
Posted By Jaimieh
Re: Building a Freeway of Love for Courtney - TONIGHT!

Left my thoughts and prayers on her CB site. I hope they come up with the best plan for Courtney. She has always amazed me with her ability to take complete control over her care.
Forum: her2group 11-09-2011, 10:00 AM
Replies: 15
Views: 2,718
Posted By Jaimieh
Re: In the hospital and need advice

I had something similiar and I am sorry to say that I lost my implants but I went with NOLA and had flap reconstruction surgery. They will not do the surgery while you are having chemo (I believe)...
Forum: her2group 08-18-2011, 06:28 PM
Replies: 26
Views: 5,475
Posted By Jaimieh
Re: Intrathecal Herceptin Update

My thoughts and prayers are with you on the 22nd that they find out that the little buggers are just necrotic tissue. I am glad to hear that your markers are coming down.
Forum: her2group 08-18-2011, 06:22 PM
Replies: 60
Views: 10,751
Posted By Jaimieh
Re: HER2 learning more is it a bad thing?

Okay I am going to throw my 2 pennies in. You had a 1.5 mm so that is VERY small, serious but small. I know one person who had a small idc who did not have chemo or herceptin and she is 3+ years...
Forum: her2group 08-12-2011, 09:30 PM
Replies: 25
Views: 6,478
Posted By Jaimieh
Re: Women under 40

I was diagnosed 12/24/08 after just turning 32 that October. I was stage 1 er/pr- and her+.

I didn't handle chemo well at all but I made it thru. I had TCH and I had a host of weird SE's that...
Forum: her2group 08-01-2011, 09:04 PM
Replies: 10
Views: 3,257
Posted By Jaimieh
Re: Looking for a new plastic surgeon

What type of surgery are you looking at ?? I had a free flap in NOLA and I HIGHLY recommend and of the doctors at the Breast Restoration Center (I had Dr. Sullivan and Dr. Trahan).

I also...
Showing results 1 to 25 of 73
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