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Search: Posts Made By: Donna H
Forum: her2group 02-10-2024, 01:42 PM
Replies: 3
Views: 363
Posted By Donna H
Re: Pink eraser

Thanks for the intel. I have an oncology appointment Friday and will ask my doctor about it.
Forum: her2group 02-05-2024, 06:16 PM
Replies: 3
Views: 363
Posted By Donna H
Pink eraser

Has anyone heard of or know about the Pink Eraser trials? It is more of a vaccine than treatment, from what I understand
Forum: her2group 12-08-2023, 01:00 PM
Replies: 4
Views: 445
Posted By Donna H
Re: Tukysa

Forgot to say, yes my side effects are the same as what your wife is experiencing. I was cautioned about the peeling and blistering palms of hands and soles of feet....trying to stay head of that!
Forum: her2group 12-08-2023, 11:44 AM
Replies: 4
Views: 445
Posted By Donna H
Re: Tukysa

My progression was shown on bone scan and ct scans.
Forum: her2group 12-06-2023, 08:57 AM
Replies: 4
Views: 445
Posted By Donna H
Tukysa

Is anyone on Tukysa? I had progression on Enhertu, so have switched to Tukysa and capecitabine. Both are oral chemos.
Forum: her2group 10-31-2023, 06:43 AM
Replies: 7
Views: 610
Posted By Donna H
Re: Her 2 climb with doxil (doxorubicin)

I am also on Enhertu but have no experience with this trial. But I am interested to hear any comments. I had progression while on Enhertu, so my dose was increased and I had 10 radiation...
Forum: her2group 04-29-2023, 06:48 AM
Replies: 1
Views: 1,075
Posted By Donna H
Re: 18 years

Congrats on 18 years!
Forum: her2group 04-17-2023, 08:09 AM
Replies: 3
Views: 1,253
Posted By Donna H
Re: Evusheld

I was told the trial has been canceled because it didnt seem effective against the new variants. Maybe an updated version is being worked on? I need to ask if I should get another booster when...
Forum: her2group 03-27-2023, 09:08 AM
Replies: 3
Views: 1,253
Posted By Donna H
Re: Evusheld

I started Evusheld the beginning of this year. So far so good! And no apparent side effects.
Forum: her2group 02-22-2023, 02:19 PM
Replies: 26
Views: 3,790
Posted By Donna H
Re: Enhertu

I get echos every 3 months, and I also get bone and ct scans every 3 months. So far the echos have always been good. The other scans have been stable since I started on Enhertu.
Forum: her2group 02-17-2023, 09:12 AM
Replies: 26
Views: 3,790
Posted By Donna H
Re: Enhertu

I dont have chills as such but I am cold most of the time. I layer up like Im living in at the north pole.

I have been on Enhertu for over a year now. Crazy it has been so long. Last scans...
Forum: her2group 09-24-2022, 07:32 AM
Replies: 26
Views: 3,790
Posted By Donna H
Re: Enhertu

I have bone mets and am on Enhertu - just had 11th treatment. Bone mets (left femur, spine and pelvis) are either stable or slightly reduced according to last scan. I have next scans on Oct 17th.
...
Forum: her2group 07-27-2022, 01:26 PM
Replies: 26
Views: 3,790
Posted By Donna H
Re: Enhertu

Got my scan results. All look good - either stable or reduction in tumor size. I see my oncologist Friday to discuss in detail and get another treatment of Enhertu. BTW - I had to shave my head...
Forum: her2group 07-11-2022, 12:32 PM
Replies: 26
Views: 3,790
Posted By Donna H
Re: Enhertu

Not my hands, but my eye lids have gotten darker - almost like I have eye shadow on when I dont (and not a very attractive color!!). My digestive tract is still having a difficult time adjusting. ...
Forum: her2group 06-11-2022, 12:48 PM
Replies: 26
Views: 3,790
Posted By Donna H
Re: Enhertu

I just had my 7th Enhertu yesterday. Felt really off last night - exceptionally tired - yet I woke up at 3:30 this morning! My dose and pre-meds have been adjusted to better manager side effects....
Forum: her2group 05-18-2022, 09:37 AM
Replies: 14
Views: 3,055
Posted By Donna H
Re: radio-embolization

Turns out i needed a second Y90 radioembolization. Doc found 2 new tumors while doing the first procedure and those were in the other lobe of the liver so couldnt be addressed at the first...
Forum: her2group 05-18-2022, 09:31 AM
Replies: 26
Views: 3,790
Posted By Donna H
Re: Enhertu

Just Enhertu plus premeds and at home anti nausea meds.
Forum: her2group 03-11-2022, 07:44 AM
Replies: 26
Views: 3,790
Posted By Donna H
Re: Enhertu

Hi Smim-

I dont know how to access the group on facebook. I have never been a facebook user. I get treatment #3 next Friday. So far, the worst side effects have fatigue and constipation. And...
Forum: her2group 01-26-2022, 08:16 AM
Replies: 26
Views: 3,790
Posted By Donna H
Re: Enhertu

Thanks. I'm not on facebook.....but I might have to join just for that.
Forum: her2group 01-24-2022, 11:56 AM
Replies: 26
Views: 3,790
Posted By Donna H
Enhertu

I had my first treatment with Enhertu on Friday. So far the side effects are minimal - I have a stomach ache and the usual fatigue. Of course, both could still be a result of the second Y90...
Forum: her2group 01-18-2022, 09:45 AM
Replies: 5
Views: 1,682
Posted By Donna H
Re: No more 10 years

Hi-
I will be starting Enhertu this Friday. The Herceptin/Perjeta combo wasn't working so on to a new option. I am glad to have options - just wish they weren't needed! I will let you know how it...
Forum: her2group 11-24-2021, 12:02 PM
Replies: 6
Views: 2,235
Posted By Donna H
Re: Goodbye Herceptin?

My insurance (here in the US) only covers bio-similars as well.
Forum: her2group 11-05-2021, 07:49 AM
Replies: 14
Views: 3,055
Posted By Donna H
Re: radio-embolization

I had the Y90 treatment on Tuesday. SO far so good - although Tuesday night and Wednesday morning were rough. Strange thing, on the doctors report of the procedure said the 2 new tumors he saw...
Forum: her2group 10-27-2021, 09:08 AM
Replies: 14
Views: 3,055
Posted By Donna H
Re: radio-embolization

The procedure is scheduled for Tuesday. During the mapping procedure, the onc discovered 2 new tumors on my liver. So if the first procedure goes well, I will need a second to take care of the 2...
Forum: her2group 10-04-2021, 11:28 AM
Replies: 14
Views: 3,055
Posted By Donna H
Re: radio-embolization

Mapping procedure is scheduled for the 14th. Any thoughts on taking the risk of the actual procedure (assuming I am a candidate)? My husband and friends all think I should absolutely do it. But as...
Showing results 1 to 25 of 257

 
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