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Search: Posts Made By: valleygirl
Forum: her2group 12-02-2019, 11:14 AM
Replies: 8
Views: 331
Posted By valleygirl
Re: Looking for hope

Hi SoCalGal!

Currently on the HER2CLIMB and stable. Lots of side effects. On heart meds, bad echo,
drugs have caused ulcers and just found out I have osteoporosis from treatment. Before this...
Forum: her2group 11-23-2019, 04:00 PM
Replies: 8
Views: 331
Posted By valleygirl
Looking for hope

Looking to hear from long term stage 4 survivors who have been on several lines of treatment. I'm stage 4 and on my 3rd line and second trial. The longer I go the more nervous I get. At the beginning...
Forum: her2group 03-20-2019, 08:13 AM
Replies: 12
Views: 1,316
Posted By valleygirl
Re: Will be 8yrs NED from Stage IV in April

Thanks for the update, LOVE hearing this!!! I'm 4 years stage 4. Currently on my second trial and praying for many more years
Forum: Herceptin / Tykerb 10-28-2018, 04:54 PM
Replies: 4
Views: 2,972
Posted By valleygirl
Re: Herceptin and Joint Stiffness

Yes, I agree with Lani. I get my Herceptin with just sterile water. I was in horrible pain before the change
Forum: her2group 09-29-2018, 05:08 PM
Replies: 3
Views: 2,505
Posted By valleygirl
Re: ? counteract hand-foot syndhrome from Xeloda

I don't have the blisters, but my feet burn horribly. I follow a facebook page for people who are currently on Xeloda and they recommend Eucerin, coconut oil and Aquaphor.
Forum: her2group 08-08-2018, 04:52 AM
Replies: 14
Views: 3,193
Posted By valleygirl
Re: Keytruda

I was on Keytruda along with TDM1 for 18 months. Very easy drugs, tolerated it much better then Herceptin and perjeta. Was able to travel to Italy, Paris and Croatia while
on it. Very doable, I had...
Forum: her2group 07-27-2018, 12:20 PM
Replies: 124
Views: 15,882
Posted By valleygirl
Re: Treatment after Kadcyla?

Hi SoCalGal,

What trial are you going on? I've been approved for the HER2CLIMB, waiting to hear if I get approved for DS-8201a in Human Epidermal Growth Factor Receptor 2 (HER2)-Positive Breast...
Forum: her2group 07-05-2018, 04:45 AM
Replies: 4
Views: 2,994
Posted By valleygirl
Re: HER2Climb & SPORE

Sorry, it's the AVIATOR, not SPORE

https://clinicaltrials.gov/ct2/show/NCT03414658?term=17-455&recrs=ab&cond=HER2-positive+Breast+Cancer&rank=1
Forum: her2group 07-04-2018, 10:40 AM
Replies: 4
Views: 2,994
Posted By valleygirl
HER2Climb & SPORE

Anyone on the HER2CLIMB or SPORE trials? Had progression on my last
one and looking for something new. Just wondering what the side effects are and how long you've been on it.

Thanks!!!! Denise
Forum: her2group 07-03-2018, 06:54 AM
Replies: 124
Views: 15,882
Posted By valleygirl
Re: Treatment after Kadcyla?

I was on a trial for Kadcyla & Keytruda and they have failed. Not sure what my next move will be. I'm curious to know what ai is that is added to Kadcyla. I'm also thinking about the HER2CLIMB. My...
Forum: her2group 05-27-2018, 04:09 PM
Replies: 8
Views: 4,139
Posted By valleygirl
Re: Long time, no see!

Yes, I'd like to hear from long term warriors. I've been on TDM1 and Keytruda a little over a year. Been having a hard time with fatigue and joint pain. Have been out on LTD for the past 6 months. I...
Forum: her2group 04-15-2018, 04:04 PM
Replies: 4
Views: 3,697
Posted By valleygirl
stage 4 ladies, can use some hope

I've been stage 4 going on 3 years now. Currently on a clinical trail after
Herceptin and perjeta failed me. I'm currently stable but always waiting for the hammer to drop. I'm out currently on STD....
Forum: her2group 02-17-2018, 02:54 PM
Replies: 6
Views: 4,486
Posted By valleygirl
Re: Trends in tumor markers

It's scary, mine look exactly like yours. I'm currently stable on TDM1 and Keytruda, my tumor makers have been slowly creeping up. They are still within normal limits, but I don't think they have...
Forum: her2group 02-12-2018, 10:01 AM
Replies: 2
Views: 4,243
Posted By valleygirl
Re: Research Study Opportunity

You posted this on the 11th, are the available dates correct?
Forum: her2group 12-13-2017, 09:57 PM
Replies: 14
Views: 8,393
Posted By valleygirl
Forum: her2group 12-07-2017, 08:15 PM
Replies: 0
Views: 3,634
Posted By valleygirl
thoughts???

http://www.sciencemag.org/news/2017/11/your-gut-bacteria-could-determine-how-you-respond-cutting-edge-cancer-drugs
Forum: her2group 10-01-2017, 05:59 PM
Replies: 129
Views: 52,367
Posted By valleygirl
Re: Need input!

I'm currently on TDM1 and Keytruda. Currently stable
Forum: her2group 04-13-2017, 06:03 PM
Replies: 11
Views: 10,162
Posted By valleygirl
Re: What’s the next step once Perjeta/Herceptin and T-DM1 stop working?

Wish I knew about the Kadcyla and Neratinib trial, what state are you in? I'm currently on Kadcyla and Keytruda. I have to fly to Boston for infusions.
Forum: her2group 02-01-2017, 04:28 PM
Replies: 12
Views: 4,263
Posted By valleygirl
Sophia

Anyone have any experience with the SOPHIA trial? H&P has stopped working and looking at doing this trial. What are the side effects? Do you lose your hair? Bone pain? Diarrhea?
Forum: her2group 01-30-2017, 05:26 PM
Replies: 3
Views: 4,585
Posted By valleygirl
Herceptin and perjeta have stopped working

Hello,

Got scan results back today and H&P is no longer doing it's job.
thinking my next move is TDM1. My doctor is kind of leaving it up to me. She said I could also start chemo in pill...
Forum: her2group 10-17-2016, 01:48 PM
Replies: 18
Views: 5,075
Posted By valleygirl
Re: Stage IV and totally stressed

Sorry you're going through this to, it sucks. I'm forever second guessing everything I do. am I eating right, seeing the right doctors, should I start alternative treatments, keep working. I can't...
Forum: her2group 10-15-2016, 04:20 PM
Replies: 18
Views: 5,075
Posted By valleygirl
Stage IV and totally stressed

Stage IV is so stressful. I'm HER2 ER- PR-. I stress about what I should be eating. I stress about if I should continue to work. I stress about money, should I take the vacations now and use my...
Forum: her2group 08-10-2016, 01:51 PM
Replies: 6
Views: 3,907
Posted By valleygirl
Re: Heart health for stage 4

Colleen, you're amazing! after working 8 hours I'm done.
Forum: her2group 08-03-2016, 07:11 PM
Replies: 6
Views: 3,907
Posted By valleygirl
Heart health for stage 4

Hello,
What do you stage 4 ladies do to keep your heart healthy? I've been stage 4 for 2 years and worry about the damage Herceptin and perjeta is doing to my heart. My echos run about 52. Want...
Forum: her2group 06-28-2016, 03:00 PM
Replies: 36
Views: 12,611
Posted By valleygirl
Re: 12 years Stage 4 - Still A-OK

So happy for you!!!! You give me so much hope. I will be 2 years stage 4 in a few weeks with mets to lungs. Haven't reached NED yet, but stable on perjeta and Herceptin.
Showing results 1 to 25 of 117

 
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