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Search: Posts Made By: Pamelamary
Forum: Herceptin / Tykerb 12-03-2019, 01:14 PM
Replies: 5
Views: 147
Posted By Pamelamary
Re: After 9 years on Herceptin,heart ef crash

Diana, this is always a concern for long term users of Herceptin. My Echo has been slowly sliding downwards. Have you discussed what you could do to improve your heart function? I remember quite a...
Forum: her2group 11-24-2019, 12:03 AM
Replies: 9
Views: 531
Posted By Pamelamary
Re: Looking for hope

Hi there! I am still basically first line, but I know a number of women through an Australian group I am in who are 10+ years and have had many different treatments, including some not specific to...
Forum: her2group 11-19-2019, 12:02 AM
Replies: 6
Views: 456
Posted By Pamelamary
Re: Annual post

Congratulations Jackie - I am close behind you. Here's to many more years for us all! And so thankful for Vitamin H!!!
Best wishes..... Pam
Forum: her2group 10-31-2019, 11:42 PM
Replies: 10
Views: 1,210
Posted By Pamelamary
Re: Wife's Demise

Very sad news. Condolences to you, Ajit, and all your family and friends.
Forum: her2group 09-11-2019, 12:57 AM
Replies: 3
Views: 476
Posted By Pamelamary
Re: Lasker award to Drs Slamon, Ullrich, Shepard

Nice to see a Melbournian among the luminaries.... Well deserved kudos for Slamon, though surely belated? Thanks Lani.
Forum: her2group 09-04-2019, 01:18 AM
Replies: 68
Views: 7,117
Posted By Pamelamary
Re: Whack-a-mole next...

Flori,
I am so sorry to hear this news and remember that these prognoses don't necessarily tell the whole of your story. Wishing you peace and strength...... Pam
Forum: her2group 09-03-2019, 12:59 AM
Replies: 8
Views: 741
Posted By Pamelamary
Re: Site problem?

So not just me - wonder what the problem is?
Forum: her2group 09-02-2019, 01:45 PM
Replies: 8
Views: 741
Posted By Pamelamary
Site problem?

Does anyone have any idea why this site is now appearing in my browser as Not Secure?
Forum: her2group 06-23-2019, 01:11 AM
Replies: 68
Views: 7,117
Posted By Pamelamary
Re: Whack-a-mole next...

Flori - hard to find words, but just keep dancing as long as you can.
Sending love and strength.....Pam
Forum: her2group 06-10-2019, 12:50 AM
Replies: 17
Views: 2,975
Posted By Pamelamary
Re: Brain met ??? Anyone have advice

Glad to hear things are going well - good luck with the next scan.
Forum: her2group 04-29-2019, 12:55 AM
Replies: 12
Views: 1,339
Posted By Pamelamary
Re: Will be 8yrs NED from Stage IV in April

Coming up behind you, Kim, Kai and Diana - currently 7 years stage IV. But not forgetting all those who haven't made it so far. Often think somebody should be studying why some of us continue to...
Forum: her2group 04-17-2019, 04:18 PM
Replies: 124
Views: 15,953
Posted By Pamelamary
Re: Treatment after Kadcyla?

Thank you Iain, and condolences to you and all Julie's family and friends. A sad loss to our community.
Forum: her2group 02-28-2019, 12:05 AM
Replies: 16
Views: 1,181
Posted By Pamelamary
Re: 7 years stage IV

Thanks for all the good wishes - nice to know we are part of a community. Maybe I never would have wanted to be a part of this thing, but am always inspired by the support offered here.
Dawn, are...
Forum: her2group 02-27-2019, 12:07 AM
Replies: 16
Views: 1,181
Posted By Pamelamary
Re: 7 years stage IV

Hi Cathy,
I am on Zometa for the bones - was Osteopaenic (?) before the stage IV diagnosis. Bone density actually improved a bit with several years of Xgeva. However, there are problems with long...
Forum: her2group 02-18-2019, 11:20 PM
Replies: 16
Views: 1,181
Posted By Pamelamary
7 years stage IV

Now celebrating! I haven't updated for a while, but a bone scan last November seemed to show new activity. My oncologist wasn't too concerned as my cancer has been very slow moving, so we just...
Forum: Articles of Interest 02-07-2019, 12:01 AM
Replies: 1
Views: 863
Posted By Pamelamary
Re: MacroGenics’ margetuximab beats Herceptin in phase 3

Great news! A new 3rd line treatment?
Thanks, Nguyen.
Forum: her2group 02-05-2019, 12:38 AM
Replies: 16
Views: 1,109
Posted By Pamelamary
Re: Pericarditis Query

11 years, Marie! Sorry to hear about the latest complications. Almost ironic that some of us may end up less worried about cancer than about other (maybe) unrelated issues. Wishing you clear insight...
Forum: her2group 01-07-2019, 01:51 AM
Replies: 111
Views: 15,606
Posted By Pamelamary
Re: ZW25 clinical trial - day one

Ditto Flori.... hope things are improving - thinking of you!..... Pam
Forum: her2group 01-07-2019, 01:47 AM
Replies: 5
Views: 1,829
Posted By Pamelamary
Re: Mets

Sorry Gardener,
No personal experience, but sure I've read something about this - search the site.
Best wishes.... Pam
Forum: her2group 12-20-2018, 01:35 PM
Replies: 17
Views: 2,975
Posted By Pamelamary
Re: Brain met ??? Anyone have advice

Hi Benk,
While it is hard to get your suspicions confirmed, at least there is only one and you now have a treatment plan. People have had great results from gamma knife. We'll be thinking of your...
Forum: her2group 12-08-2018, 10:29 PM
Replies: 17
Views: 2,975
Posted By Pamelamary
Re: Brain met ??? Anyone have advice

Hi Benk,
Really sorry to hear this. There have been many women here with experience in this area and I am sure some will reply to this thread. You could also search the site for past discussions....
Forum: her2group 11-21-2018, 12:01 AM
Replies: 111
Views: 15,606
Posted By Pamelamary
Re: ZW25 clinical trial - day one

Best wishes, Flori!
Forum: her2group 10-23-2018, 12:00 AM
Replies: 2
Views: 2,262
Posted By Pamelamary
Re: incredible futuristic treatment of her2+ brain mets being developed!!

Sounds exciting, Lani , but I do get a bit depressed at times at the gap between research like this and its implementation. Too many women I know have died recently.....
Best wishes... Pam
Forum: her2group 08-30-2018, 01:37 AM
Replies: 111
Views: 15,606
Posted By Pamelamary
Re: ZW25 clinical trial - day one

Hope this trial works well for you! Can understand the anxiety and distaste for steroids - I used to go so red, my oncologist always knew that I had been taking them as instructed. My husband...
Forum: her2group 08-18-2018, 12:30 AM
Replies: 12
Views: 3,222
Posted By Pamelamary
Re: Oxygen Levels

Katherine,
I guess you have to go with what you have been told by the medicos. You can at least check when your oncologist is around. I can really feel for your reluctance to have oxygen as a...
Showing results 1 to 25 of 457

 
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