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Search: Posts Made By: WayTooYoung
Forum: her2group 07-13-2016, 05:48 AM
Replies: 8
Views: 4,158
Posted By WayTooYoung
Re: Rapid Weight Loss

Hello everyone and thank you for all your great and wonderful feedback and prayers. Unfortunately, my restaging scans of the MRI of my spine show there is some disease in the cerbellum (brain stem)....
Forum: her2group 07-06-2016, 05:52 AM
Replies: 8
Views: 4,158
Posted By WayTooYoung
Rapid Weight Loss

Hello Ladies,

I am hoping someone can chime in with some advice or experience to share. Last May, I was told that Erubulin was no longer working for me and they took me off the treatment. The Drs...
Forum: her2group 02-11-2016, 07:17 PM
Replies: 1
Views: 3,078
Posted By WayTooYoung
Halaven???

Hello ladies,

Unfortunately today I found out that I have progressed on paclitaxol so Drs are switching me to Halaven. The Dr said the drug is easy to tolerate and that it can be administered...
Forum: her2group 01-16-2016, 11:54 AM
Replies: 11
Views: 6,363
Posted By WayTooYoung
Re: Feeling down...

Thank you for all your wonderful advice ladies! I have been taking following your recommendations and each day has been getting better mentally and physically for me. Thanks so much!
Forum: her2group 01-16-2016, 11:52 AM
Replies: 24
Views: 8,806
Posted By WayTooYoung
Re: Weekly Taxol for Stage IV

Hi Tracy,

I am currently on taxol and herceptin. I get taxol on day 1 and day 8 with one week break. Perhaps you can ask your Onco about that? I too felt pretty defeated when my Dr told me I would...
Forum: her2group 01-07-2016, 07:22 PM
Replies: 11
Views: 6,363
Posted By WayTooYoung
Feeling down...

Hello ladies,

Lately, I have been feeling really down. I am not sure if it's because of the winter weather or the lack of sunlight out there, but I feel frustrated, sad, hopeless, and just tired...
Forum: Herceptin / Tykerb 11-29-2015, 06:17 PM
Replies: 8
Views: 8,475
Posted By WayTooYoung
Re: Tykerb/Xeloda Not Working Anymore :(

Hi Brocoli!

Yes, my Onc requested from La Roche to unblind the study to see if I had received perjeta but they wouldn't.
Forum: her2group 11-24-2015, 03:29 AM
Replies: 8
Views: 4,336
Posted By WayTooYoung
Re: Mets to spine???

Thank you Tracy for your detailed responses to my questions. Now that I am not in pain anymore, I feel hopeful again. I PM you back a long response too. Saw this post after lol.

Becky, I had an...
Forum: Herceptin / Tykerb 11-24-2015, 03:15 AM
Replies: 8
Views: 8,475
Posted By WayTooYoung
Re: Tykerb/Xeloda Not Working Anymore :(

Hi Kerry,

Not sure when this message was posted but I never saw it until now. I was on a tdm1 clinical trial that included a blind study for Perjeta. Since there was a possibility I may have...
Forum: her2group 11-19-2015, 04:35 PM
Replies: 8
Views: 4,336
Posted By WayTooYoung
Re: Mets to spine???

Hi Becky, I had tamoxifen in 2010 but they took me off it when I progressed. I am on Xgeva now. The Dr called me today and asked me how I felt about SBRT to the affected levels in my spine. Not...
Forum: her2group 11-18-2015, 12:45 PM
Replies: 8
Views: 4,336
Posted By WayTooYoung
Mets to spine???

Hi ladies,

Just found out I have metasis to my spine in 5 or 6 places. This is my first experience with bone metasis. I am feeling pretty sad as the taxol/herceptin combo seems to be working...
Forum: Herceptin / Tykerb 08-23-2015, 08:26 PM
Replies: 8
Views: 8,475
Posted By WayTooYoung
Re: Tykerb/Xeloda Not Working Anymore :(

Hi Broccoli! Thank you for the info. I spoke to my Dr on Friday and he said the government only covers herceptin for 2 lines (and I have used them all). But, according to the information you sent me,...
Forum: Keeping Your Mind Off of BC 08-20-2015, 03:02 PM
Replies: 7
Views: 5,298
Posted By WayTooYoung
Re: Exercise

Hi ladies,

I am naturally very active and currently take boxing and muay tai classes. The excercise drills can be intensive, so I am wondering if the intesity of the excercise can be harmful. I...
Forum: her2group 08-20-2015, 02:49 PM
Replies: 8
Views: 2,082
Posted By WayTooYoung
Re: Taxol/Herceptin

Karina 14, my heart goes out to you. I was reading all that you have had to endure and you seem so put together. I am a mess right now. What are you on now? Is TDM1 working? I am not sure why they...
Forum: Herceptin / Tykerb 08-19-2015, 11:13 PM
Replies: 8
Views: 8,475
Posted By WayTooYoung
Re: Tykerb/Xeloda Not Working Anymore :(

I am not sure how my Dr explained it yesterday. I tried calling him to confirm but am awaiting for a call back. They are putting me on a patient assistance program...so I guess maybe its not covered...
Forum: her2group 08-19-2015, 11:10 PM
Replies: 8
Views: 2,082
Posted By WayTooYoung
Re: Taxol/Herceptin

Hi Everyone and thank you for all your posts and support. Regarding Perjeta...when I enrolled in the clinical trial for TDM1, they had a double blind study that involved perjeta (pertuzumab...
Forum: her2group 08-18-2015, 05:55 PM
Replies: 8
Views: 2,082
Posted By WayTooYoung
Taxol/Herceptin

Hi...not sure where to post this question. I learned today that I have regressed while on tykerb/xeloda. Dr is suggesting taxol/herceptin. What can I expect? And if I was herceptin resistant to begin...
Forum: Herceptin / Tykerb 08-18-2015, 05:49 PM
Replies: 8
Views: 8,475
Posted By WayTooYoung
Tykerb/Xeloda Not Working Anymore :(

Hi folks,

I just found out today that I have progressed on tykerb/xeloda. Ct Scan shows I have 5 lesions on my lungs and possibly one in the liver. I jave fluid build up in my lungs which is...
Forum: Herceptin / Tykerb 02-03-2015, 08:11 PM
Replies: 2
Views: 5,472
Posted By WayTooYoung
Re: Tykerb/Xeloda

Hello Jene1835, so good to hear from you. I don't come on this often so it's always nice to see someone is commenting with their experiences or sending me messages of hope. I am tolerating my...
Forum: Herceptin / Tykerb 12-06-2014, 06:03 PM
Replies: 2
Views: 5,472
Posted By WayTooYoung
Tykerb/Xeloda

I started a new thread as I am unsure what proper etiquette is for this forum...hope that is okay. I just started treatment today and am feeling all sorts of anxiety. I am hoping someone can help...
Forum: Herceptin / Tykerb 12-06-2014, 01:39 PM
Replies: 6
Views: 6,088
Posted By WayTooYoung
Re: Any info about Tykerb + Capecitibine (Zeloda)???

Thank you for all your posts. I am from Canada and wad on the Marianne Trial (TDM1+Herceptin+Pertuzamab). The Pertuzumab my have been a placebo but I am not sure because it was a blind study. Since i...
Forum: Herceptin / Tykerb 12-02-2014, 08:03 PM
Replies: 6
Views: 6,088
Posted By WayTooYoung
Any info about Tykerb + Capecitibine (Zeloda)???

Hello ladies,
My recent scans shows metastasis to the lungs and lower spine. One of the options Dr is recommending is Tykerb+Capecitibine...As always, I am scared of starting a new...
Forum: her2group 05-03-2014, 08:43 AM
Replies: 4
Views: 1,629
Posted By WayTooYoung
Re: Vinorelibine + Herceptin???

Hello Ladies, and thank you for sharing your experiences with each drug. I finally decided to go for vinorelibine + herceptin and had my first infusion yesterday. I did not opt for taxol +...
Forum: her2group 04-20-2014, 07:14 AM
Replies: 4
Views: 1,629
Posted By WayTooYoung
Vinorelibine + Herceptin???

Hello Ladies,

I went for a second opinion and the Oncologist at Sunnybrook suggested two treatments:

1) Vinorelibine + Herceptin with Focal Radiation in the future for lung met

OR

2)...
Forum: her2group 03-31-2014, 08:38 PM
Replies: 2
Views: 772
Posted By WayTooYoung
Aromasin + Affinitor???

Hello Ladies...it's been a very long time since I have posted anything. It seems that every time I am back, I have bad news to report on. Well...it's back...but this time, they found a nodule on my...
Showing results 1 to 25 of 52

 
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