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Forum: her2group 03-26-2007, 10:49 AM
Replies: 27
Views: 3,622
Posted By SandyBB
Update from SandyBB -

I actually logged back on to this site today after a long absence because I wanted to see what everyone was saying about Elizabeth Edwards.
I realized I should post an update for those who do...
Forum: her2group 03-26-2007, 10:26 AM
Replies: 16
Views: 2,428
Posted By SandyBB
Finally responding to Kelly's message

Kelly, I actually logged back on to this site today after a long absence because I wanted to see what everyone was saying about Elizabeth Edwards. That's when I saw your private message to me...
Forum: her2group 09-25-2006, 07:53 AM
Replies: 27
Views: 3,622
Posted By SandyBB
We all know how each other feels, that's for sure

The waiting really stinks - and trying to stay positive but all the time wondering if the cancer is pulsing somewhere..
Ella, please do call your onc if the pain continues - Herceptin can cause...
Forum: her2group 09-21-2006, 09:35 AM
Replies: 27
Views: 3,622
Posted By SandyBB
good luck to maria

forgot to add that in- I hope you find the spot on the sternum is nothing but it sure is crappy having to wait to find out, isn't it?...
Also - Sheila, I realized you did mention you had an x-ray in...
Forum: her2group 09-21-2006, 09:30 AM
Replies: 27
Views: 3,622
Posted By SandyBB
Questions for those who were kind enough to reply

Lala, how did they do the bone biopsy - via a needle aspiration or core biopsy? Also, from your profile, it looks like you have liver mets too? Was the bone mets after they knew you had the liver...
Forum: her2group 09-20-2006, 04:41 PM
Replies: 26
Views: 3,310
Posted By SandyBB
Worst 2 years of my life just before diagnosis

Incredible stress with mother dying of cancer, being out of work, father seriously ill, etc. Horrible time for me, worse than the cancer treatment!!!!
Forum: her2group 09-20-2006, 10:08 AM
Replies: 27
Views: 3,622
Posted By SandyBB
Question Bone mets to only one site and no other signs of mets?

Have any of you heard of bone mets appearing in only one spot at first discovery/with no other evidence of metastatic spread?

I was diagnosed as stage 2B in Sept 2003, with 3 positive nodes. Had...
Forum: her2group 08-17-2006, 03:18 PM
Replies: 5
Views: 1,285
Posted By SandyBB
One level increases possible at open enrollment.

Julierene, I am in Human Resources in the private/technology sector and for most of these companies, their policy is to allow you to increase your life insurance by one level at every yearly open...
Forum: her2group 03-03-2006, 06:27 PM
Replies: 5
Views: 1,293
Posted By SandyBB
Weekly Herceptin gives me heartburn

I have to take Zantac pretty regularly. I realized how often I had had it only when I stopped Herceptin for 4 weeks due to a low MUGA score and I never had the heartburn.... the minute I went back...
Forum: her2group 02-27-2006, 08:19 AM
Replies: 36
Views: 4,942
Posted By SandyBB
Rachel, I am glad my post helped to clarify some...

Rachel, I am glad my post helped to clarify some things for you. I think I can understand a little bit of what you are going through. Although I am the one who had breast cancer, my mother passed...
Forum: her2group 02-24-2006, 08:19 AM
Replies: 18
Views: 3,020
Posted By SandyBB
Herceptin doesn't fight against Brain mets?

The article states:

Now, breast specialists in particular are reporting an increasing number of women who beat back cancer elsewhere in the body, only to have it flare in the brain. It seems to...
Forum: her2group 02-24-2006, 07:55 AM
Replies: 36
Views: 4,942
Posted By SandyBB
Your mom's cellulitis is caused by lymphedema - most likely

Rachel, cellulitis such as your mom's, and with her history, is usually caused by lymphedema. Lymphedema results when there are too few nodes in the area (i.e. removed during the cancer surgery) or...
Forum: her2group 02-21-2006, 09:33 AM
Replies: 23
Views: 3,660
Posted By SandyBB
Nose problems back after 4 week MUGA break

I had to take a 4 week break in Herception since my MUGA score had dropped. (I was on a weekly schedule.) I also got a break from the nose issues.
I started back up 2 weeks ago and so did the...
Forum: her2group 02-21-2006, 08:14 AM
Replies: 10
Views: 3,884
Posted By SandyBB
Consider using a compression sleeve

Val, I have had full blown lymphedema in my affected arm - had nodes removed and radiated and developed it after a bad cat scratch. I have been told by my specialist to always wear a compression...
Forum: her2group 11-15-2005, 11:12 AM
Replies: 36
Views: 4,942
Posted By SandyBB
20 nodes removed

Sassy, 20 nodes removed - 3 of which were malignant.
Forum: her2group 11-15-2005, 10:55 AM
Replies: 37
Views: 4,194
Posted By SandyBB
Can Herceptin cause high blood pressure?

I did a search on the site, and didn't come up with anything directly - and I read the herceptin.com web site and saw nothing -
I have had 4 infusions of herceptin (1.9 years after finishing...
Forum: her2group 11-10-2005, 07:00 PM
Replies: 5
Views: 1,322
Posted By SandyBB
mine was nothing - hopefully yours too

I discovered a "bump" just like you described earlier this year. (9months after finishing all treatments for stage 2B). I expected my breast surgeon to poo-poo me, but he whipped out a needle and...
Forum: her2group 11-02-2005, 11:28 AM
Replies: 36
Views: 4,942
Posted By SandyBB
Exclamation Feather touch is correct - rough further injures lymph vessels

I had severe lymphedema in my arm this past winter. A deep cat scratch, although treated with antibiotic ointment and a bandaged, caused my entire arm to swell painfully. It was six times larger than...
Forum: her2group 10-19-2005, 10:59 AM
Replies: 12
Views: 1,682
Posted By SandyBB
I meant infusion

not transfusion - message above!
Forum: her2group 10-19-2005, 10:58 AM
Replies: 12
Views: 1,682
Posted By SandyBB
so far so good

I just started "preventative" herceptin last Friday. I felt fine all through the infusion, but did run a temp and felt flu-ish later that night, but I woke up Saturday feeling fine.
I did not have...
Forum: her2group 10-19-2005, 10:51 AM
Replies: 25
Views: 3,618
Posted By SandyBB
My onc called me to go on it

I started Herceptin just this past Friday. I was diagnosed 2 years ago as stage 2B and had pretty aggressive chemo and radiation (finished up in 4/2004). I am also on tamoxifen. I have had no signs...
Forum: Clinical Trials 10-04-2005, 09:38 AM
Replies: 27
Views: 7,804
Posted By SandyBB
Could the disconnect be with metastatic vs non mets?

I just replied, then thought about this - could I only receive weekly infusions because I don't have mets?
Forum: Clinical Trials 10-04-2005, 09:27 AM
Replies: 27
Views: 7,804
Posted By SandyBB
My onc told me it wasn't "approved" for 3 week dosing..

I am in the US and I am starting herceptin next week - weekly for one year. My onc said something about the FDA ( I think that's who she referenced) not approving the 3 week schedule, but that they...
Forum: her2group 09-30-2005, 02:35 PM
Replies: 7
Views: 1,774
Posted By SandyBB
Cool Me too!

Left handed and pre-meno - someone told me about it and I thought it was a joke. I did a google search and found a reliable article on it. Amazing...
Forum: her2group 09-30-2005, 01:30 PM
Replies: 26
Views: 3,652
Posted By SandyBB
Post Stage 2B

I am scheduled to begin Herceptin weekly for a full year as a preventative measure as I do not have any signs of recurrance. I was diagnosed with stage 2B IDC in Sept of 2003, 2.5 cm tumor, 3 of 20...
Showing results 1 to 25 of 25

 
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