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Forum: her2group 02-12-2013, 10:24 PM
Replies: 28
Views: 4,427
Posted By Debra
Re: Echo..Echo...Echo...

I am with the majority. No libido; severe pain. Just simply avoid "the act" at all costs. Just thinking about going through the motions is painful! The only thing I have found to helping even a...
Forum: her2group 02-12-2013, 09:58 PM
Replies: 14
Views: 1,921
Posted By Debra
Re: How many of you worked in professions where you were exposed to radiation I wonde

I have worked as an x-ray technologist since 1990. I was diagnosed in 2005 but have been teaching in the field since 2000 so not "in" exposure areas as much from 2000-2005. I often wondered about my...
Forum: her2group 01-25-2012, 11:30 AM
Replies: 26
Views: 8,162
Posted By Debra
Re:AI differences

I actually didn't know that Rich! Then I wonder why aromasin isn't exclusively prescribed to those that struggle with such awful joint pain from the other two? I can only speak for myself that it...
Forum: her2group 01-24-2012, 10:52 PM
Replies: 26
Views: 8,162
Posted By Debra
Re: How about Aromasin

I did not tolerate tamoxifen or arimidex very well. When I switched to aromasin, it was magical (for lack of a better term)! I had absolutely no joint pain. I tolerated this med for four more...
Forum: her2group 12-15-2011, 06:57 PM
Replies: 27
Views: 5,064
Posted By Debra
Re: Tamoxifen anxiety

One more thing Jane -

I was on Tamoxifen prior to hysterectomy and I felt it was quite tolerable but remember we are all different!
Forum: her2group 12-15-2011, 06:55 PM
Replies: 27
Views: 5,064
Posted By Debra
Re: Tamoxifen anxiety

Hi Jane -

I did opt to have the total hysterectomy. I was 40. I was then able to go on an AI which I was told, at the time, that was more affective for HER2. I am six yrs out now. No...
Forum: her2group 09-03-2010, 07:11 PM
Replies: 19
Views: 2,608
Posted By Debra
Re: Had to stop Tamoxifen

Dianne -
Just curious as to why you were on tamoxifin if you were post-menopausal?? Perhaps I am missing something but I understand that to be the standard for pre-menopausal women.
I do agree...
Forum: her2group 08-12-2010, 06:10 PM
Replies: 3
Views: 1,363
Posted By Debra
Re: Zometa

Thanks Carolyn for your input. I haven't visited with my oncologist yet but will.
I am osteopenic according to my bone density studies and have been on Boniva. However, I have been hearing and...
Forum: her2group 08-11-2010, 09:15 AM
Replies: 3
Views: 1,363
Posted By Debra
Zometa

Quick question. Is it common for doctors to prescribe Zometa to "prevent" bone metastasis or is it usually prescribed when one "has" bone metastasis? Thanks in advance for any replies. The...
Forum: her2group 11-27-2009, 06:50 PM
Replies: 22
Views: 3,161
Posted By Debra
One more question Dianne

Dianne -

Did you have a full stomach when you took the arimidex? I found that if I didn't I really struggled with nausea. With the aromasin however, I can get by without a full stomach even...
Forum: her2group 11-27-2009, 06:46 PM
Replies: 22
Views: 3,161
Posted By Debra
Re: The weakly er+ group

Hi Dianne -

The aromasin is an AI. I am not sure how chemically different it is but it is an AI. I struggled with arimidex-----severe joint pain which is why I switched.
I have DEXA (bone...
Forum: her2group 11-27-2009, 06:11 PM
Replies: 22
Views: 3,161
Posted By Debra
Re: The weakly er+ group

Hi Dianne -

Yes I meant to say four "years'. I edited that post.

It took me about six weeks to get use to the AI. I started on tamoxifen but then switched after the hysterectomy.
I...
Forum: her2group 11-27-2009, 06:03 PM
Replies: 4
Views: 1,760
Posted By Debra
Re: Sounds very familiar

Hello -
I just wanted to let you know your situation sounds quite like mine. After starting an exercise regime, I too started with radiatiing hip pain in low back and gluteus area. It too would be...
Forum: her2group 11-27-2009, 05:48 PM
Replies: 22
Views: 3,161
Posted By Debra
Re: The weakly er+ group

Hello -

I am weekly er+. I am +18 as far as estrogen goes which I am told is weekly positive. Not sure if that is true or not.
I am on aromasin and have been for almost three years. I really...
Forum: her2group 03-06-2009, 07:14 PM
Replies: 3
Views: 2,222
Posted By Debra
I too don't get it either.

I am 17% Est. and 15% prog. I would guess that too is considered weak. Neither one of my two oncologists questioned going on an AI. I even had a hysterectomy at the age of 41 in order to be on an...
Forum: her2group 01-17-2009, 10:34 PM
Replies: 22
Views: 5,133
Posted By Debra
did the double

Hi had them both removed and do not regret it one bit. I was 40. Some would say that is young to lose both if you can save one. I did not want to live the rest of my life "feeling" and "wondering"...
Forum: her2group 12-16-2008, 08:08 AM
Replies: 7
Views: 1,286
Posted By Debra
Thank you!

Thanks so much for the replies. That is exactly what I wanted to hear gals! I was under the impression that zometa was only for existing bone mets creating bone destruction but I am understanding...
Forum: her2group 12-14-2008, 11:35 PM
Replies: 7
Views: 1,286
Posted By Debra
Who gets Zometa?

Can anyone clarify who would be a candidate for Zometa? Does one have to have bone metastasis to receive zometa or are some oncologists providing this to women to treat bone loss from treatments? I...
Forum: her2group 10-02-2008, 09:04 AM
Replies: 21
Views: 2,914
Posted By Debra
Thankyou so much!

Well everyone - I had a good cry today! Not because I am still in a down mood but because I am so thankful to have you all on this site when I address something because you all are the only ones that...
Forum: her2group 09-30-2008, 08:30 PM
Replies: 21
Views: 2,914
Posted By Debra
Unhappy Well I'm just going to ask

I often don't post questions as I usually feel my questions will sound frivvy but I am in the mood to not care tonight.

How is one suppose to know they are NED or not when one doesn't have...
Forum: her2group 09-10-2008, 08:57 PM
Replies: 18
Views: 1,872
Posted By Debra
I agree Marejo

So true -

I don't post very often at all but everyday I check up on everyone to see how they are doing. I believe the reason I don't post is because I often feel I don't have anything to...
Forum: her2group 08-31-2008, 05:29 PM
Replies: 47
Views: 8,156
Posted By Debra
What would I have done differently?

As far as treatment goes, I don't believe I would change anything. I was aggressive all the way. Both breasts removed and a hysterectomy at age 40. I guess I decided to go gungho with everything...
Forum: her2group 07-21-2008, 07:04 PM
Replies: 17
Views: 2,281
Posted By Debra
Yes to the arm sleeve----no problems. I have...

Yes to the arm sleeve----no problems. I have flown a number of times since my surgery and have had no problems. Put the sleave on one hour before flying and leave on for about two hours after. I...
Forum: her2group 05-26-2008, 09:12 AM
Replies: 1
Views: 955
Posted By Debra
Osteoporosis Drugs: Difference between anyone?

Does anyone have any hard facts comparing the osteoporosis drugs? Such as Boniva verses Evista verses Actonel verses whatever else is out there? My doctor just prescribed Boniva as it is monthly so...
Forum: her2group 05-14-2008, 05:38 PM
Replies: 10
Views: 6,365
Posted By Debra
Yes - The best way to describe mine is a...

Yes - The best way to describe mine is a boat-motor sound from a distance. I too thought it was just in my bedroom. I even crawled in the attic thinking it was the attic fan. No one else in my...
Showing results 1 to 25 of 136
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