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Search: Posts Made By: pattyz
Forum: her2group 08-23-2009, 12:37 AM
Replies: 17
Views: 1,773
Posted By pattyz
Re: brain mets - loss continues

oh Heather, I wrote a long post to you and now its gone.

I agree with those who replied to you! Go get new onc and those opinions!!!!

Except for the urgent need for a breast cancer...
Forum: her2group 08-22-2009, 11:16 PM
Replies: 21
Views: 4,125
Posted By pattyz
Re: Update: Spinal Fluid me with LEPTO!

Well MS Steph,

If you know something or some one to ask, or a place to look for solid info...PLEASE DO SHARE !!! As I have NOT researched the Lepto at ALL!!! Didn;t want to ofcourse. Didn't want...
Forum: her2group 08-22-2009, 09:29 PM
Replies: 21
Views: 4,125
Posted By pattyz
Update: Spinal Fluid me

Here is an udate email I've just sent out:


Once again, I apologize for the 'blanket' email... but it seems easier for me and all who don't know what's been going on every day...A LOT!!!
...
Forum: her2group 07-31-2009, 03:39 PM
Replies: 41
Views: 3,838
Posted By pattyz
Re: ~Mighty Oak Update~7-29-09! Uggh!

Marie,

Glad to hear about the Temodar. That's what I 'picked' to stay with, since it is the only brain specific chemo. My onc went and chose Avastin for me for now... to see how that works. In...
Forum: her2group 07-22-2009, 09:02 AM
Replies: 4
Views: 1,905
Posted By pattyz
Julie, My first order of recurrance was in...

Julie,

My first order of recurrance was in my mediastinal nodes. Being 2 and a half yrs from dx, my new onc asked if I wanted to have it biopsied. Asked me. When I said yes, he said "you;ll...
Forum: her2group 07-18-2009, 10:47 AM
Replies: 13
Views: 1,524
Posted By pattyz
Harrie, It DID matter to us. But it was for my...

Harrie,
It DID matter to us. But it was for my Lyle... He took TAC for 3 months (well, a decreased taxtore alone after I stopped the A/C). His nipple was totally involved and oozing a bloody...
Forum: her2group 07-06-2009, 09:03 AM
Replies: 10
Views: 1,304
Posted By pattyz
Sue, my orig dx: 12-99

Sue,

I was 50 - dx'd Stage IIIb,

My mets were July & Sept. 2002. I had focalized radiation for the two brain mets - Navelbine/Herceptin worked magic on my internal nodes, small spot on a...
Forum: her2group 07-06-2009, 08:13 AM
Replies: 29
Views: 2,603
Posted By pattyz
WIERD most definitely!!

Flori - WOW! First, I can't think of anyone better "qualified" to be interviewed with this specific focus the intent!

Second: It is one of those cases of reality following thought. Or whatever...
Forum: her2group 07-06-2009, 08:00 AM
Replies: 29
Views: 2,603
Posted By pattyz
Great news!

Brenda!

I missed the whole prior/ness, too. Congrats though, for sure :) That's a LOT of rad beams for that little bug. I'm positive he's in bug hell, lol

xoxopatty
Forum: her2group 07-04-2009, 12:26 PM
Replies: 5
Views: 1,425
Posted By pattyz
Thanks from me, too, Bren

I was glad to see this too, Brenda... it was late for me ie. tired and without much energy... so did not get to read it all.

But, had time to send it to a gal, young teacher, who has "70 brain...
Forum: her2group 06-18-2009, 08:23 AM
Replies: 3
Views: 1,031
Posted By pattyz
Wow! Thanks Marie....... don't know how the hell...

Wow! Thanks Marie....... don't know how the hell you did that. And thanks for the bump, didn't see the first one.

AND I forgot already that I had actually said anything! a daily occurance for...
Forum: her2group 06-15-2009, 07:52 AM
Replies: 0
Views: 964
Posted By pattyz
EMMAY; just to you, dear.

Emmay,

I've sent you a PM here... and I put my direct email addie in, just in case.

XOXOXOpatty
Forum: her2group 06-12-2009, 05:08 PM
Replies: 91
Views: 9,323
Posted By pattyz
Marie... can I say more than just 'hell' here??? ...

Marie... can I say more than just 'hell' here??? Pretend I did, ok.

I can't think of what I sent that must be written off if it was not tried?

My onc wants to go right to Irinotecan w/my...
Forum: her2group 06-12-2009, 04:24 PM
Replies: 25
Views: 3,081
Posted By pattyz
Marie, Not knowing anything about what is...

Marie,

Not knowing anything about what is exactly available to you I hesitate to say.

I'm pretty sure you can at the very least call the hospice available to you, find out, have a meeting...
Forum: her2group 06-12-2009, 04:11 PM
Replies: 91
Views: 9,323
Posted By pattyz
Well hell. You know that I hate this is the...

Well hell. You know that I hate this is the latest 'news' for Ed... and for YOU.

I just this morning faxed 7 pages of detailed info my onc asked for at yest. appt. These meds are what we are...
Forum: her2group 06-12-2009, 03:45 PM
Replies: 15
Views: 2,140
Posted By pattyz
Thank you dear, that meant alot to me. And...

Thank you dear,

that meant alot to me. And Lyle really liked his own message and kisses ofcourse :)

He just had another opportunity to 'have my back'. Took me to ER on Sunday, me crying...
Forum: her2group 06-12-2009, 05:24 AM
Replies: 15
Views: 2,140
Posted By pattyz
Alice, Thank you so much for your most kind...

Alice,

Thank you so much for your most kind thoughts. We would not mind at all, sharing any part of Lyle's experience w/ male bc.

He in fact feels a bit 'special' being in such a minority....
Forum: her2group 06-11-2009, 08:07 AM
Replies: 15
Views: 2,140
Posted By pattyz
Alice, Marie obviously has the low down on...

Alice,

Marie obviously has the low down on MaleBC.

My Lyle, at age 70, was dx'd w/Stage IIIb bc ER+ PR+ two yrs ago this month. Same stage as me back in Jan. 2000. He is not Her2+ however.
...
Forum: her2group 05-21-2009, 07:04 AM
Replies: 15
Views: 2,300
Posted By pattyz
Marie... I'm so relieved for you both to...

Marie...

I'm so relieved for you both to get Ed' pain under control in whatever way that works! The consequences and 'side effects' of pain, on a scale of 10+, become devastating and can fast...
Forum: her2group 05-19-2009, 06:51 AM
Replies: 4
Views: 1,391
Posted By pattyz
Huh!

Thanks for this, Lani. (and all the other gems you post).

I fall into this catagory for sure...... so I tend toward the validity of these particular rat tests!

My story is a bit long, but...
Forum: her2group 05-07-2009, 09:00 AM
Replies: 33
Views: 3,116
Posted By pattyz
Marie... Two issues that I may have...

Marie...

Two issues that I may have suggestions for, or not... don't know if you've gone over these already with someone else.

1) Wgt loss. My solution has been Megace. A nasty taking...
Forum: her2group 05-07-2009, 08:23 AM
Replies: 18
Views: 2,036
Posted By pattyz
My own experience in part...

My own brain mets were dx'd a bit over 2 1/2 yrs. from org. dx of Stage IIIb.

I have not had Gamma Knife. However, I HAVE had two other forms of the focalized rads to treat them, a total of 16...
Forum: her2group 04-18-2009, 09:30 AM
Replies: 12
Views: 2,297
Posted By pattyz
Emmay...... I'm just so sorry to hear of your...

Emmay...... I'm just so sorry to hear of your sister's added burden...

I did well for viseral mets on Navelbine/Herceptin. I am certain there are 'new' combinations that have proven better than...
Forum: her2group 04-08-2009, 10:41 AM
Replies: 36
Views: 4,370
Posted By pattyz
You are way too young, dear!!

Since I have avoided WBR since 9/02, this is what I have to offer. I wish it was not so long:

Dec. 1999: Age 50, Dx'd Invasive Ductal & Inflammatory.

Jan. 2000: Mast., 6/26 pos. nodes....
Forum: her2group 11-18-2008, 07:35 AM
Replies: 14
Views: 1,774
Posted By pattyz
Well Steph... Once again, I am just...

Well Steph...

Once again, I am just extremely LUCKY... Lucky that Lyle is able to make the drive at age 71, and that his bc is 'behaving' on the Tamoxifen. I used to help w/ the driving, but not...
Showing results 1 to 25 of 307

 
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