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Search: Posts Made By: vlcarr
Forum: her2group 07-19-2017, 07:26 PM
Replies: 13
Views: 5,720
Posted By vlcarr
Re: when did you 'break up' with your onco?

I had my yearly visit last December, 8 years out. When I went to make my next appt the girl told me I would be seeing a NP from now on. I was heartbroken. I think because my onc didn't tell me and...
Forum: her2group 08-25-2015, 07:37 PM
Replies: 7
Views: 2,922
Posted By vlcarr
Re: "why did I get breast cancer" starting to be answered & it seems to be 80% bad lu

Thank you for sharing. Of all the reasons I came up with that I deserved to have cancer, I could point out all the people who would have the same reasons and no cancer, even my own mother. So I let...
Forum: her2group 04-29-2014, 06:04 PM
Replies: 1
Views: 772
Posted By vlcarr
Re: questions about abdominal mesh

I got a hernia after my DIEP. It's a long story but he repaired it during the 2nd phase operation. Unfortunately, it came back so had to have mesh repair. A little over a year after the mesh repair I...
Forum: her2group 02-19-2014, 09:55 PM
Replies: 26
Views: 9,217
Posted By vlcarr
Re: Skin basal cell carcinoma and breast cancer?

I had one removed last year too. Basal cell. There was this tiny tiny white thing (looked nothing like a mole) right under my eye. What made me go have it checked out was the feeling that there was...
Forum: her2group 02-05-2014, 09:51 PM
Replies: 16
Views: 1,623
Posted By vlcarr
Re: Pain is exhausting and a crying again. Help...

Sorry to hear you are having so much pain. I started acupuncture a couple months ago and I'm having awesome results with pain management! It can't hurt to try-that was my attitude and I'm so glad at...
Forum: her2group 12-17-2013, 10:24 PM
Replies: 9
Views: 4,960
Posted By vlcarr
Re: Lymphedema Issues

I developed lymphedema during radiation in 2009. It's been a long and frustrating journey for me but I am able to keep it under control. I use compression sleeves, gauntlets and gloves consistently....
Forum: her2group 12-13-2013, 09:19 PM
Replies: 5
Views: 1,566
Posted By vlcarr
Re: Elevated AST and ALT

I like him too!
Forum: her2group 12-13-2013, 05:54 PM
Replies: 5
Views: 1,566
Posted By vlcarr
Elevated AST and ALT

Hi,

I just wanted to share this in case it may help someone else ease their mind at some point. I had my 6 month checkup a week ago and my ALT and AST were elevated so my doctor wanted me to have...
Forum: her2group 10-20-2013, 09:33 PM
Replies: 36
Views: 5,680
Posted By vlcarr
Re: ER/PR negative survivors

Hi, I'm in the club too. So far, so good:)
Forum: her2group 08-10-2013, 06:38 PM
Replies: 3
Views: 615
Posted By vlcarr
Re: Reconstruction date has been bumped/tips?

I had Diep a couple of years ago. It's a rough surgery but I think it's kind of a plus that you stay in the hospital so long. I wish I could remember all the details! Be prepared for very little...
Forum: her2group 07-10-2013, 08:00 PM
Replies: 29
Views: 1,725
Posted By vlcarr
Re: Not any kinds of scans will be done!

CoolBreeze responded to a similar post I think a while back. CoolBreeze, I just want you to know it touched me deeply and if I could give you a high five I would.

With that said, I worried all...
Forum: her2group 07-02-2013, 07:24 PM
Replies: 43
Views: 3,880
Posted By vlcarr
Re: My Wife Rachel Was Just Diagnosed With HER-2+ Breast Cancer (Please Help ...)

I can only add that I did TCH and am still here:). As many wise ones told me on this board, it's not easy but doable. I have learned some people tolerate it better than others. The issues I deal with...
Forum: General Cancer News 04-29-2013, 07:27 PM
Replies: 2
Views: 459
Posted By vlcarr
Re: Skin cancer may increase subsequent primary malignancy risk

Well, mine came in reverse. I noticed a spot under my eye around 9 months ago but just thought it was a pimple or something. It didn't go away and appeared to get larger. Keep in mind, larger was...
Forum: her2group 04-25-2013, 12:42 PM
Replies: 9
Views: 1,038
Posted By vlcarr
Re: Nails

I kept having mine done and still do. I have crappy nails and like you, I wanted to keep on getting them done. I never have them long so they are probably short compared to most women who get them. I...
Forum: her2group 02-08-2013, 10:13 PM
Replies: 14
Views: 3,978
Posted By vlcarr
Re: Acrylic nails

I made the decision to keep doing mine throughout my entire treatment and never had any problems. The lady who does mine knew what I was going through and was great and extra diligent. I would have...
Forum: her2group 01-23-2013, 10:49 PM
Replies: 28
Views: 2,892
Posted By vlcarr
Re: Libido is lousy and ...

This is timely. Like Janis, I was just prescribed the ring by my onc. I could not take it any more. The lack of desire was bad enough but the dryness became so bad some days it was uncomfortable to...
Forum: her2group 01-17-2013, 06:10 PM
Replies: 11
Views: 1,072
Posted By vlcarr
Re: Any suggestions for severe heartburn

I was on Nexium pre chemo and still take it, probably always will. It is some awesome stuff. My doctor has to justify it once a year with my insurance and that's a pain. It is costly but I'm able to...
Forum: her2group 11-30-2012, 08:29 PM
Replies: 19
Views: 1,722
Posted By vlcarr
Re: ixempra is next chemo

I saw my oncologist this week for 6 month visit & she said tdm1 in March is what they think. I'm not in your boat Pam but do try & read about new developments so I asked her about it. Of course, I'm...
Forum: her2group 05-19-2012, 09:13 AM
Replies: 18
Views: 3,388
Posted By vlcarr
Re: and then came...lymphedema.

Ran across this yesterday. It's long but says everything I've thought & felt. The first study I've seen of this kind.

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2795115/
Forum: her2group 05-06-2012, 10:35 PM
Replies: 18
Views: 3,388
Posted By vlcarr
Re: and then came...lymphedema.

I so feel your pain. I've been living with lymphedema since radiation. I'm back with my therapists twice a week now. I wish I knew why it flared up this time, but have no clue. I will not lie. I hate...
Forum: her2group 01-21-2012, 11:36 PM
Replies: 5
Views: 1,476
Posted By vlcarr
Re: NeoAllto results: adding lapatinib to herceptin preoperatively increases % PCR vs

Really great to see this. I didn't do this particular trial, but did do one using both herceptin/tykerb before surgery. Tumor gone when surgery was done. So far, so good.
Forum: her2group 11-10-2011, 11:08 PM
Replies: 20
Views: 6,656
Posted By vlcarr
Re: When do the hot flashes stop????!!

The hot flashes and mood swings became too much of an issue for me so I started anti-depressants during my treatment when chemopause kicked in. I see a physchiarist who works with cancer patients. ...
Forum: her2group 08-12-2011, 04:53 PM
Replies: 37
Views: 4,268
Posted By vlcarr
Re: ca.2729 big jump

Hey Pam,

Just wanted you to know I'm thinking of you and sending positive thoughts your way.
Forum: Herceptin / Tykerb 07-11-2011, 04:34 PM
Replies: 3
Views: 3,720
Posted By vlcarr
Re: Herceptin/Tykerb for Stage 1

I did this combo as a clinical trial--a huge success for me as you can see from my signature. Best of luck to you!
Forum: her2group 07-09-2011, 02:22 PM
Replies: 39
Views: 4,247
Posted By vlcarr
Re: Reconstruction

Just wanted to share that I'm 6 weeks out from DIEP on my right breast. My surgeon wanted me to wait a year from radiation before seeking recon. I must say that at the time I really thought I would...
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