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Search: Posts Made By: valleygirl
Forum: Herceptin / Tykerb 10-28-2018, 04:54 PM
Replies: 4
Views: 1,440
Posted By valleygirl
Re: Herceptin and Joint Stiffness

Yes, I agree with Lani. I get my Herceptin with just sterile water. I was in horrible pain before the change
Forum: her2group 09-29-2018, 05:08 PM
Replies: 3
Views: 525
Posted By valleygirl
Re: ? counteract hand-foot syndhrome from Xeloda

I don't have the blisters, but my feet burn horribly. I follow a facebook page for people who are currently on Xeloda and they recommend Eucerin, coconut oil and Aquaphor.
Forum: her2group 08-08-2018, 04:52 AM
Replies: 14
Views: 1,433
Posted By valleygirl
Re: Keytruda

I was on Keytruda along with TDM1 for 18 months. Very easy drugs, tolerated it much better then Herceptin and perjeta. Was able to travel to Italy, Paris and Croatia while
on it. Very doable, I had...
Forum: her2group 07-27-2018, 12:20 PM
Replies: 71
Views: 5,654
Posted By valleygirl
Re: Treatment after Kadcyla?

Hi SoCalGal,

What trial are you going on? I've been approved for the HER2CLIMB, waiting to hear if I get approved for DS-8201a in Human Epidermal Growth Factor Receptor 2 (HER2)-Positive Breast...
Forum: her2group 07-05-2018, 04:45 AM
Replies: 4
Views: 1,409
Posted By valleygirl
Re: HER2Climb & SPORE

Sorry, it's the AVIATOR, not SPORE

https://clinicaltrials.gov/ct2/show/NCT03414658?term=17-455&recrs=ab&cond=HER2-positive+Breast+Cancer&rank=1
Forum: her2group 07-04-2018, 10:40 AM
Replies: 4
Views: 1,409
Posted By valleygirl
HER2Climb & SPORE

Anyone on the HER2CLIMB or SPORE trials? Had progression on my last
one and looking for something new. Just wondering what the side effects are and how long you've been on it.

Thanks!!!! Denise
Forum: her2group 07-03-2018, 06:54 AM
Replies: 71
Views: 5,654
Posted By valleygirl
Re: Treatment after Kadcyla?

I was on a trial for Kadcyla & Keytruda and they have failed. Not sure what my next move will be. I'm curious to know what ai is that is added to Kadcyla. I'm also thinking about the HER2CLIMB. My...
Forum: her2group 05-27-2018, 04:09 PM
Replies: 8
Views: 2,160
Posted By valleygirl
Re: Long time, no see!

Yes, I'd like to hear from long term warriors. I've been on TDM1 and Keytruda a little over a year. Been having a hard time with fatigue and joint pain. Have been out on LTD for the past 6 months. I...
Forum: her2group 04-15-2018, 04:04 PM
Replies: 4
Views: 3,280
Posted By valleygirl
stage 4 ladies, can use some hope

I've been stage 4 going on 3 years now. Currently on a clinical trail after
Herceptin and perjeta failed me. I'm currently stable but always waiting for the hammer to drop. I'm out currently on STD....
Forum: her2group 02-17-2018, 02:54 PM
Replies: 6
Views: 3,870
Posted By valleygirl
Re: Trends in tumor markers

It's scary, mine look exactly like yours. I'm currently stable on TDM1 and Keytruda, my tumor makers have been slowly creeping up. They are still within normal limits, but I don't think they have...
Forum: her2group 02-12-2018, 10:01 AM
Replies: 2
Views: 3,846
Posted By valleygirl
Re: Research Study Opportunity

You posted this on the 11th, are the available dates correct?
Forum: her2group 12-13-2017, 09:57 PM
Replies: 14
Views: 7,848
Posted By valleygirl
Forum: her2group 12-07-2017, 08:15 PM
Replies: 0
Views: 3,268
Posted By valleygirl
thoughts???

http://www.sciencemag.org/news/2017/11/your-gut-bacteria-could-determine-how-you-respond-cutting-edge-cancer-drugs
Forum: her2group 10-01-2017, 05:59 PM
Replies: 129
Views: 50,172
Posted By valleygirl
Re: Need input!

I'm currently on TDM1 and Keytruda. Currently stable
Forum: her2group 04-13-2017, 06:03 PM
Replies: 11
Views: 9,382
Posted By valleygirl
Re: What’s the next step once Perjeta/Herceptin and T-DM1 stop working?

Wish I knew about the Kadcyla and Neratinib trial, what state are you in? I'm currently on Kadcyla and Keytruda. I have to fly to Boston for infusions.
Forum: her2group 02-01-2017, 04:28 PM
Replies: 12
Views: 4,074
Posted By valleygirl
Sophia

Anyone have any experience with the SOPHIA trial? H&P has stopped working and looking at doing this trial. What are the side effects? Do you lose your hair? Bone pain? Diarrhea?
Forum: her2group 01-30-2017, 05:26 PM
Replies: 3
Views: 4,061
Posted By valleygirl
Herceptin and perjeta have stopped working

Hello,

Got scan results back today and H&P is no longer doing it's job.
thinking my next move is TDM1. My doctor is kind of leaving it up to me. She said I could also start chemo in pill...
Forum: her2group 10-17-2016, 01:48 PM
Replies: 18
Views: 4,827
Posted By valleygirl
Re: Stage IV and totally stressed

Sorry you're going through this to, it sucks. I'm forever second guessing everything I do. am I eating right, seeing the right doctors, should I start alternative treatments, keep working. I can't...
Forum: her2group 10-15-2016, 04:20 PM
Replies: 18
Views: 4,827
Posted By valleygirl
Stage IV and totally stressed

Stage IV is so stressful. I'm HER2 ER- PR-. I stress about what I should be eating. I stress about if I should continue to work. I stress about money, should I take the vacations now and use my...
Forum: her2group 08-10-2016, 01:51 PM
Replies: 6
Views: 3,646
Posted By valleygirl
Re: Heart health for stage 4

Colleen, you're amazing! after working 8 hours I'm done.
Forum: her2group 08-03-2016, 07:11 PM
Replies: 6
Views: 3,646
Posted By valleygirl
Heart health for stage 4

Hello,
What do you stage 4 ladies do to keep your heart healthy? I've been stage 4 for 2 years and worry about the damage Herceptin and perjeta is doing to my heart. My echos run about 52. Want...
Forum: her2group 06-28-2016, 03:00 PM
Replies: 36
Views: 12,043
Posted By valleygirl
Re: 12 years Stage 4 - Still A-OK

So happy for you!!!! You give me so much hope. I will be 2 years stage 4 in a few weeks with mets to lungs. Haven't reached NED yet, but stable on perjeta and Herceptin.
Forum: her2group 04-09-2016, 06:54 AM
Replies: 6
Views: 3,413
Posted By valleygirl
Stage 4, need more options

Hello,

Currently on Herceptin and Perjeta and have progression in lungs. What are my options and side effects?
Forum: her2group 02-20-2016, 04:21 PM
Replies: 10
Views: 4,254
Posted By valleygirl
Re: Progression, need options

Hi Laurel,
Thanks for asking. I have an appointment for a second opinion at Penn med and another with Sloan-Kettering. Both before my cruise. Still hoping to go, just have to see what they say
Forum: her2group 02-05-2016, 07:31 PM
Replies: 10
Views: 4,254
Posted By valleygirl
Progression, need options

Well I have progression and need some help deciding my next step. Dr. Wanted to start Taxotere now. I decided to wait because she stopped my perjeta and I missed 3 treatments because of my echo....
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