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Search: Posts Made By: Debbie L.
Forum: her2group 09-20-2017, 12:46 PM
Replies: 0
Views: 1,459
Posted By Debbie L.
NCI/Army of Women recruiting HER2+ brain mets recurrence study

http://mailchi.mp/f082cd890a17/brain-metastases-in-her2-positive-breast-cancer?e=ed3f986e6e

Intro (more details in link above): "Researchers at the National Cancer Institute (NCI) need women and...
Forum: her2group 01-18-2017, 04:47 PM
Replies: 36
Views: 13,447
Posted By Debbie L.
Re: Add me to the 10 Years Out Club!

Congratulations, Caya! I didn't know there was a club, so I forgot to join ;-). I'm now nearly 16 years out, much to my happy surprise. In 2001, Herceptin was still in adjuvant trials, and I...
Forum: her2group 01-06-2017, 09:37 PM
Replies: 0
Views: 2,276
Posted By Debbie L.
Breast forms -- grass roots organization

Hi all. Totally serendipitously, I came across this organization that knits (or crochets) custom (and free) breast forms. I thought some of you might be interested, either as users or creators:
...
Forum: her2group 12-13-2016, 09:31 AM
Replies: 15
Views: 3,061
Posted By Debbie L.
Re: Effectiveness of Estrogen blockers

Just off the top of my head, my recollection is that the trials of endocrine treatments show a relative reduction in recurrences in the range of 30-40%. The higher one's risk is, the more the...
Forum: Clinical Trials 12-11-2016, 01:49 AM
Replies: 5
Views: 2,443
Posted By Debbie L.
Re: Update to Tucatinib/ONT380 phase 2 trial

Me too, Pam (following with interest). There was a lot of HER2 at SABCS this year. Including, it seemed to me, more focus on the subgroups within (triple positive, and others that sort out...
Forum: Clinical Trials 12-08-2016, 12:53 PM
Replies: 5
Views: 2,443
Posted By Debbie L.
Update to Tucatinib/ONT380 phase 2 trial

SAN ANTONIO, Texas, Dec. 07, 2016 (GLOBE NEWSWIRE) -- Cascadian Therapeutics, Inc. (NASDAQ:CASC), a clinical-stage biopharmaceutical company, today announced that following a recent meeting with the...
Forum: her2group 09-19-2016, 10:56 AM
Replies: 30
Views: 6,748
Posted By Debbie L.
Re: Diagnosed with 2nd Primary

I'm late seeing this, but wanted to send empathy and lots of good thoughts to you, Paula. If only we knew how to prevent breast cancer (and all cancer) -- I agree with you! Please keep us posted as...
Forum: her2group 08-10-2016, 06:22 AM
Replies: 0
Views: 2,616
Posted By Debbie L.
Researchers seek patient input on study design:

The PI's of this proposed study are including advocates on the planning team, and patient input -- from the very beginning. They are asking several important unanswered questions, so the results...
Forum: her2group 05-03-2016, 11:26 AM
Replies: 6
Views: 2,814
Posted By Debbie L.
Re: CA27.29 blood test

Oh, Cathy -- I think cancer turns us ALL into worry warts, at least some of the time. It's normal, don't worry (smile). And thank you for the thank you, I'm glad the info helped.
Debbie
Forum: her2group 05-03-2016, 07:26 AM
Replies: 6
Views: 2,814
Posted By Debbie L.
Re: CA27.29 blood test

>>I guess I was hoping for no trace of cancer in my system.

Cathy, there may well be no traces of cancer in your system, but (alas) we don't know how to check for that. The tumor markers...
Forum: her2group 04-19-2016, 07:07 AM
Replies: 5
Views: 2,344
Posted By Debbie L.
Re: Megace??

I've never heard of Megace for early breast cancer, either. I've only heard of it for advanced HR+ disease that is resistant to all other endocrine treatment, often when a person can no longer...
Forum: her2group 03-10-2016, 08:29 AM
Replies: 9
Views: 6,598
Posted By Debbie L.
Re: "significantly imroved" 2 yr disease ree survival if 1 yr of neratinib given afte

Thanks for posting this, Lani.

So, what do we think of the information? I've heard that neratinib is a tough one, mostly d/t the diarrhea. Do you think that trying to manage the side effects...
Forum: her2group 03-03-2016, 12:22 PM
Replies: 4
Views: 3,717
Posted By Debbie L.
Re: Anyone on I SPY-2 Trial?

I had hoped someone more knowledgeable would give you an answer here. I do know that the I-SPY2 trial is what is called an "adaptive design" trial, so the drugs used are not only specific to the...
Forum: her2group 02-21-2016, 10:21 AM
Replies: 9
Views: 3,343
Posted By Debbie L.
Re: ketogenic diet and blood glucose

This is interesting. And dense! However, if I'm reading this study (http://ajcn.nutrition.org/content/95/2/506.short) correctly (click on free full text for the PDF), the percent of the population...
Forum: her2group 02-03-2016, 09:23 AM
Replies: 12
Views: 4,531
Posted By Debbie L.
Re: Small lumps found between neck and shoulders...

Diane, reading your post brought back to me all the times I got worried over similar things. It's normal to be hypervigilant and anxious in these early years after diagnosis -- but that doesn't make...
Forum: her2group 01-15-2016, 05:32 PM
Replies: 3
Views: 17,412
Posted By Debbie L.
Re: Advocacy education and participation opportunities

Thanks for chiming in, Agness.

This essay (http://www.huffingtonpost.com/fran-visco/put-advocates-in-charge-o_b_8983528.html) from NBCC's Fran Visco appeared today in the Huffington Post. It's...
Forum: her2group 01-09-2016, 10:03 AM
Replies: 3
Views: 17,412
Posted By Debbie L.
Advocacy education and participation opportunities

I'm starting this new thread for us to post programs and opportunities that we are aware of, for interested patients to educate themselves and participate in patient advocacy. If possible, include...
Forum: her2group 01-09-2016, 09:47 AM
Replies: 9
Views: 2,884
Posted By Debbie L.
Re: Puzzled??

I agree that trial eligibility both for vaccines and in general can be confusing. There are many reasons for this. For example, usually the early trials (stage I and sometimes II) are designed more...
Forum: her2group 01-02-2016, 09:15 AM
Replies: 8
Views: 3,091
Posted By Debbie L.
Re: Decadron-has anyone had this removed from chemo treatments?

I think the Decadron is given for 2 separate reasons.

With taxanes, it's part of the premeds, to prevent an allergic reaction (so that part is less negotiable). It's actually one of the main...
Forum: her2group 12-26-2015, 09:39 AM
Replies: 12
Views: 3,481
Posted By Debbie L.
Re: Bracing Myself For A Swift Kick Into Menopause

Europa, it's like almost everything else about cancer treatment -- each person reacts differently. For you, if you have side effects, it will be tricky to sort out which ones are are caused by the...
Forum: her2group 11-16-2015, 08:55 AM
Replies: 11
Views: 3,252
Posted By Debbie L.
Re: Sentinel Node Biopsy and Lymphedema Risk

I think it would be more accurate to say that after SLNB your risk of lymphedema is lower. Even to say it's "very low". But probably not zero.

If you google "sentinel lymph node biopsy...
Forum: her2group 11-10-2015, 07:55 PM
Replies: 15
Views: 3,476
Posted By Debbie L.
Re: Did anyone NOT lose hair OR nails on TCH protocol? All replies appreciated!

SA and others, I started a new thread to talk about adjuvant Perjeta/pertuzumab.

Debbie L.
Forum: her2group 11-10-2015, 07:54 PM
Replies: 4
Views: 3,054
Posted By Debbie L.
Adjuvant Perjeta/pertuzumab

This discussion started over on SpiritualAbundance's TCH/hair&nail thread but I think it deserves its own thread.

I saw people posting that she should check into Perjeta. The last I had paid...
Forum: her2group 11-08-2015, 10:02 AM
Replies: 6
Views: 2,448
Posted By Debbie L.
Re: How long did it take for WBC to be normal?

Me too, always low (usually in the 3K range). However, I have not been sick more than normal -- rarely more than a few mild colds a year. So I figure my immune system must still be capable of...
Forum: her2group 11-06-2015, 05:26 PM
Replies: 11
Views: 4,959
Posted By Debbie L.
Re: Anyone taking/taken Taxotere and Carboplatin with Herceptin???

Dear SA. I'm sorry you had such a hard day. I think most of us would agree that these early days, especially when setting up the treatment plan -- are darn hard. Once you get in the swing of it;...
Showing results 1 to 25 of 462

 
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