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Search took 0.01 seconds. Search: Posts Made By: mickey
Forum: her2group 03-18-2006, 09:37 AM
Replies: 6
Views: 3,844
Posted By mickey
I have muscle weakness BAD

I have muscle weakness BAD
Forum: her2group 02-19-2006, 09:30 AM
Replies: 5
Views: 1,699
Posted By mickey
Gina, what is your typical dose of hercepin. My...

Gina, what is your typical dose of hercepin. My dr started me long ago on a dose based on weight and has never altered it. My CA has recently gone from 18 to 21 to 26 to 28 to 31. Other question ...
Forum: her2group 02-17-2006, 04:17 PM
Replies: 6
Views: 1,308
Posted By mickey
Still on Herceptin. Saving Lapatanib as a later...

Still on Herceptin. Saving Lapatanib as a later stone for me to throw at Goliath. Not down and out yet.
Forum: her2group 02-17-2006, 03:14 PM
Replies: 6
Views: 1,308
Posted By mickey
Mickey's MRI

Not good as usual. I dont write much. My severe borderline debilitating lymphodema makes writing next to impossible. I started xeloda and temodar for brain mets in December. After 2 months,...
Forum: her2group 02-02-2006, 06:57 AM
Replies: 26
Views: 2,817
Posted By mickey
Wishing good news for you. What will a pet show...

Wishing good news for you. What will a pet show that an mri won't? All my tumors have been confirmed with mri with no question of getting a pet. Am I missing an opportunity?
Forum: her2group 01-25-2006, 08:23 AM
Replies: 27
Views: 2,656
Posted By mickey
Yippee!! You are where we want to be

Yippee!! You are where we want to be
Forum: her2group 01-21-2006, 08:19 AM
Replies: 5
Views: 1,193
Posted By mickey
Thanks to all. My prayers will be out on Sunday...

Thanks to all. My prayers will be out on Sunday also
Forum: her2group 01-20-2006, 12:30 PM
Replies: 20
Views: 2,420
Posted By mickey
Sorry, Steph. I do know what this feels like. ...

Sorry, Steph. I do know what this feels like. Did you have symptoms before that warrented the decadron? I did not have it originally but now wish I had. Getting rid of the edima originally would...
Forum: her2group 01-20-2006, 08:41 AM
Replies: 5
Views: 1,193
Posted By mickey
mickeys mets

I will post on my brain mets update as soon as I have an MRI probably end of month. My onc, on the advice of rad onc had recommended a second round of wbr. I decided I would rather try temodar,...
Forum: her2group 01-13-2006, 09:28 AM
Replies: 18
Views: 2,341
Posted By mickey
Patty. I spend most of my day trying to get help...

Patty. I spend most of my day trying to get help with the cost of these drugs. If they were intravenious, it would be medical and not prescription. I have had a little help but very little. The...
Forum: her2group 01-13-2006, 09:24 AM
Replies: 18
Views: 2,341
Posted By mickey
Again thanks all. I hesitate to take many...

Again thanks all. I hesitate to take many suppliments when doing chemo for feer of interaction. Currently on xeloda, hercepton, temodar. taking keppra for possible seisure, decadron for edima and...
Forum: her2group 01-12-2006, 10:54 AM
Replies: 18
Views: 2,341
Posted By mickey
I am so glad to connect with you, Patty. You are...

I am so glad to connect with you, Patty. You are the one that caused me to mention the temodar/xeloda regime to my doc and although he originally said the only option was wbr, he looked this up and...
Forum: her2group 01-12-2006, 10:47 AM
Replies: 2
Views: 825
Posted By mickey
I am on Keppra to prevent seisures, but also,...

I am on Keppra to prevent seisures, but also, decadron, fastimex, xeloda and temodar so I don't know which is doing what. Sorry
Forum: her2group 01-12-2006, 07:03 AM
Replies: 18
Views: 2,341
Posted By mickey
Thanks to all. I do not have balance issues and...

Thanks to all. I do not have balance issues and had previously lost 45 lbs so don't mind that either. It was the weakness and shakiness that bothered me most. Does the muscle mass come back. I am...
Forum: her2group 01-11-2006, 04:53 PM
Replies: 18
Views: 2,341
Posted By mickey
my symptoms are the usual: non sleep and over...

my symptoms are the usual: non sleep and over eat. I can totally handle those with no complaints. The main one I have found is a weakness in my arms and legs and some shakiness. I am still walking...
Forum: her2group 01-11-2006, 02:18 PM
Replies: 18
Views: 2,341
Posted By mickey
decadron

I am trying to differenciate between symptoms of my brain mets and side effects of decadron. Any insite. Thanks,
Forum: her2group 01-09-2006, 09:59 PM
Replies: 7
Views: 1,309
Posted By mickey
wbr did not work for me

wbr did not work for me
Forum: her2group 01-06-2006, 08:20 AM
Replies: 31
Views: 3,486
Posted By mickey
I am so sorry, Lisa. I, too have watched your...

I am so sorry, Lisa. I, too have watched your story and your very great attitude. I, myself have suffered a tremendous set back and sometimes feeling that this cancer wants my brain, BAD. I feel...
Forum: her2group 01-01-2006, 05:26 PM
Replies: 8
Views: 2,025
Posted By mickey
I told you guys I am totally illiterate. How do...

I told you guys I am totally illiterate. How do I get my user ID. I know I have one.
Forum: her2group 01-01-2006, 01:01 PM
Replies: 6
Views: 1,027
Posted By mickey
I am not very computer efficient/ How do I get...

I am not very computer efficient/ How do I get into the chat room?
Forum: her2group 01-01-2006, 09:22 AM
Replies: 10
Views: 1,508
Posted By mickey
sorry!!! No pain yet

sorry!!! No pain yet
Forum: her2group 12-31-2005, 07:21 PM
Replies: 12
Views: 1,611
Posted By mickey
More good info. Thanks.

More good info. Thanks.
Forum: her2group 12-31-2005, 08:56 AM
Replies: 12
Views: 1,611
Posted By mickey
You guys are all so great. I feel moneyis not...

You guys are all so great. I feel moneyis not the issue here and am a little guilty for this conversation. Lolly, I will try that wed site. It is nice you are in my state. I have no income so...
Forum: her2group 12-30-2005, 09:36 AM
Replies: 2
Views: 1,147
Posted By mickey
Thanks for the help Lolly. My insurance only...

Thanks for the help Lolly. My insurance only covers legacy. And I DO have some money. Everyone wants me broke. If I spend everything instead of paying a little a month, I will need to sell my...
Forum: her2group 12-29-2005, 09:17 AM
Replies: 2
Views: 945
Posted By mickey
I used to have so much hope, but don't anymore. ...

I used to have so much hope, but don't anymore. I wish you health and a long future.
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