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Forum: her2group

08-28-2012, 10:29 AM

Replies: 18

vaccine results may not be as straight-forward as thought--a bit disconcerting!

Views: 2,951

Posted By shelleyd

Re: vaccine results may not be as straight-forward as thought--a bit disconcerting!

I got started as a patient advocate by volunteering to speak with anyone in the trial who asked to speak with another participant. Some people have questions and concerns and want to hear others...

Forum: her2group

08-27-2012, 10:58 AM

Replies: 18

vaccine results may not be as straight-forward as thought--a bit disconcerting!

Views: 2,951

Posted By shelleyd

Re: vaccine results may not be as straight-forward as thought--a bit disconcerting!

We should start an area on this site for those of us participating in vaccine trials. I will be happy to share published articles I have with any one. Just email me at sdodt@me.com.
I volunteer as a...

Forum: her2group

08-27-2012, 08:07 AM

Replies: 18

vaccine results may not be as straight-forward as thought--a bit disconcerting!

Views: 2,951

Posted By shelleyd

Re: vaccine results may not be as straight-forward as thought--a bit disconcerting!

will be happy to send you recent pulbications on the DCIS/Her2 Dc vaccine trial. I am interested in the AE37 too. These vaccines will be the future of BC treatment once FDA approved. We are the...

Forum: her2group

08-26-2012, 07:25 AM

Replies: 18

vaccine results may not be as straight-forward as thought--a bit disconcerting!

Views: 2,951

Posted By shelleyd

Re: vaccine results may not be as straight-forward as thought--a bit disconcerting!

Hi lizabeth, I will be happy to keep you posted. My email is sdodt@me.com. I speak with Dr. C.frequently so these first few patients results have not yet been published. We are about 10 patients away...

Forum: her2group

08-25-2012, 08:28 PM

Replies: 18

vaccine results may not be as straight-forward as thought--a bit disconcerting!

Views: 2,951

Posted By shelleyd

Re: vaccine results may not be as straight-forward as thought--a bit disconcerting!

Hi Lani, I think I can clear this up. I am an actual participant in this trial for the DCIS pulsed DC vaccine for DCIS/Her2/neu+you are mentioning. When the trial began all patients with DCIS and...

Forum: her2group

02-09-2012, 07:26 PM

Replies: 3

four shots of antiher2 vaccine seem to "eradicate" DCIS ?prevent IDC

Views: 1,552

Posted By shelleyd

Re: four shots of antiher2 vaccine seem to "eradicate" DCIS ?prevent IDC

Dr. Brian Czerniecki is developing a NEW vaccine for patients with Her2+ BC following Chemo and herceptin. Dr. Angela DeMichele at the University of Pennsylvania in Medical Oncology is also working...

Forum: her2group

09-07-2011, 02:24 PM

Replies: 6

Clinical Trial - Vaccine Therapy in Treating Patients with DCIS of the Breast

Views: 7,510

Posted By shelleyd

Re: Clinical Trial - Vaccine Therapy in Treating Patients with DCIS of the Breast

Just wanted to update everyone on Dr. Czerniecki's DCIS/Her2/neu vaccine trial at P\University of Pennsylvania. I ask him and he told me he is seeing immune response in 90% of trial patients, 40% of...

Forum: her2group

03-10-2011, 07:25 PM

Replies: 14

need to attack her family receptors on multiple fronts for best efficacy

Views: 2,366

Posted By shelleyd

Re: need to attack her family receptors on multiple fronts for best efficacy

The Her2 vaccine I got at Penn Medicine could be loaded up with the Her3 protein too. I am going to ask Dr. Czerniecki. He told me he thought that triple negative breast cancer was really another...

Forum: her2group

03-10-2011, 07:23 PM

Replies: 4

Heceptin injected thru blood brain barrier

Views: 1,382

Posted By shelleyd

Re: Heceptin injected thru blood brain barrier

She survived an additonal 27 months. I want people to get better forever. That is why I only trust vaccines. Maybe nanotechnology can get particles small enough to work on brain mets. We need...

Forum: her2group

02-16-2011, 07:26 PM

Replies: 6

Clinical Trial - Vaccine Therapy in Treating Patients with DCIS of the Breast

Views: 7,510

Posted By shelleyd

Re: Clinical Trial - Vaccine Therapy in Treating Patients with DCIS of the Breast

I participated in this trial. Had no side effects and it ate all my DCIS/Her2/neu. Dr. Czerniecki wants to include invasive Her2/neu, triple negative and ER recpetor + in the next trial. Will keep...

Forum: her2group

02-10-2011, 07:28 PM

Replies: 15

Apheresis Help

Views: 1,859

Posted By shelleyd

Re: Apheresis Help

Sometimes they can do the leukapheresis through the veins on each side of your neck. I had a vaccine made at U Penn for DCIS/Her2/neu and had what they called leukapheresis (collection of white blood...

Forum: Breast Cancer News

10-24-2010, 07:51 PM

Replies: 1

UTube--breast cancer vaccine Cleveland Clinic

Views: 2,604

Posted By shelleyd

Re: UTube--breast cancer vaccine Cleveland Clinic

Dr. Thouy got $1,300,000 stimulus money to start his trial. He asked for 6 million. Unfortunately, it will take 10 years. I participated in a DCIS/Her2/neu trial at the University of Pennsylvania for...

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