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Forum: her2group 09-07-2006, 04:30 PM
Replies: 19
Views: 2,509
Posted By hope
Unhappy doctors have given up on me

Well I'm still not doing well. My right lung tumors are still progressing and I am on chemo. I take a low dose Xeloda (1500mg/day) due to severe side effects of Xeloda, weekly Herceptin, and Zometa....
Forum: her2group 07-25-2006, 03:52 PM
Replies: 2
Views: 1,281
Posted By hope
Aromitase Inhibitors while on Chemo and ER/PR negative

I would like to thank everyone who responded to my previous update post. I got a lot of valuable information to ask my onc. this Thurs. Still feeling so-so but trying to make the best of every day. ...
Forum: her2group 07-21-2006, 04:50 PM
Replies: 14
Views: 1,781
Posted By hope
Hi Sherry thanks for the prayers. I have already...

Hi Sherry thanks for the prayers. I have already been on Taxotere and Taxol. Like all other chemos worked at first but after 6 months the lung tumors progressed. My onc did give me an option of...
Forum: her2group 07-21-2006, 04:14 PM
Replies: 14
Views: 1,781
Posted By hope
Update on Hope

Well as many of you know that my right lung tumors are progressing and they have been that way since I failed Abraxane in Dec.2005. They put me on Xeloda but on a real low dose (2,000mg) becasue I...
Forum: her2group 07-12-2006, 03:55 PM
Replies: 10
Views: 2,617
Posted By hope
Anxiety problems

I have been suffering from panic attacks even before being diagnosed with BC and have been taking Ativan reguarly for these. Recently these panic attacks have been waking me up at night most likely...
Forum: her2group 06-23-2006, 11:10 AM
Replies: 7
Views: 1,283
Posted By hope
Xeloda dosage?

Well I'm back on Xeloda and Herceptin to try to get rid of these lung mets but I was wondering what your dosages are and cycles. I have been taking Xeloda at 1,500mg/day for 14 days on and 7 off. I...
Forum: her2group 04-28-2006, 10:58 AM
Replies: 107
Views: 11,809
Posted By hope
My deepest sympathy goes out to you and your...

My deepest sympathy goes out to you and your family. I'm glad Linda lived life to the fullest and you did everthing in your power to help her. I will keep you and your family in my prayers and look...
Forum: her2group 04-27-2006, 10:40 AM
Replies: 6
Views: 1,550
Posted By hope
Question about hospice

Hi everyone,

I'm doing slighly better with the in home oxygen and now I am on a one week break from Xeloda. Still getting weekly Herceptin. Next cycle I will take 1,500mg a day (up from...
Forum: her2group 04-12-2006, 01:59 PM
Replies: 7
Views: 1,466
Posted By hope
Unhappy Update on Hope-anyone on Xeloda?

Well it has been a crazy 3 weeks. About 3 weeks ago I got the results of my routine chest CT scan and unfortunately my lung tumors on my right lung are growing again and this time they are growing...
Forum: her2group 03-30-2006, 01:51 PM
Replies: 5
Views: 1,169
Posted By hope
Hi Irene, I was also put on Abraxane and...

Hi Irene,

I was also put on Abraxane and Herceptin in April 2005 and was stable until Feb. 2006. There was some progression in the right lung only. My big tumor went from 8.1cm to 8.6cm and had...
Forum: her2group 03-25-2006, 03:09 PM
Replies: 0
Views: 805
Posted By hope
Regailn is anybody on this

My onc. has perscribed Regalin for some stomach bloating that occurs right after I eat also with some lightheadness too. Has anybody experience this and is on Regalin? What side effects have you...
Forum: her2group 03-25-2006, 03:05 PM
Replies: 5
Views: 1,583
Posted By hope
Abraxane and Xeloda

My Onc and I were discussing about putting me on Abraxane (which I am currently on) and Xeloda. I am progressing slightly in the lungs so maybe adding xeloda as a combo might work better. I have been...
Forum: her2group 03-14-2006, 12:52 PM
Replies: 5
Views: 1,556
Posted By hope
Thoracenticis-Lung Mets

Well I met with my pulmonary specialists about my increasing shorntness of breath. I looked at my latest chest scans and there is not only some progression in right lung tumors but quite a bit of...
Forum: her2group 03-07-2006, 10:47 AM
Replies: 1
Views: 1,105
Posted By hope
Unhappy Update on Hope

Well I got the results of CT chest, bone scan, and CT pelvis. All of abdomen OK, bone scan stable execpt for some moderate uptake in upper thoracic spine, onc. wasn't too worried. Well the bad news...
Forum: her2group 03-03-2006, 11:47 AM
Replies: 17
Views: 2,263
Posted By hope
Unhappy Bad News but some also good

Well I got the results of CT chest, bone scan, and CT pelvis. All of abdomen OK, bone scan stable execpt for some moderate uptake in upper thoracic spine, onc. wasn't too worried. Well the bad news...
Forum: her2group 02-21-2006, 08:19 PM
Replies: 17
Views: 2,263
Posted By hope
Need Prayers for Tom.

I'm getting a CT chest scan tom. 2/22 to follow up on how well Abraxane is working on my lung tumors. I've been on Abraxane since April 2005 and the last scan showed stability and some shrinkage but...
Forum: her2group 02-11-2006, 05:26 PM
Replies: 15
Views: 1,827
Posted By hope
Hi JoJo, I am praying for you and hope everthing...

Hi JoJo, I am praying for you and hope everthing goes well the PET Scan and on the way to full recovery again. Hope
Forum: her2group 02-04-2006, 08:31 PM
Replies: 5
Views: 1,895
Posted By hope
Need help on Flaxseed

My onc. said that nutrionists are saying that flaxseed is not benifical to BC patients because of the plant phytoestrogens might fuel tumor growth eveb=n in ER/PR - patients. Do any of you have any...
Forum: her2group 02-04-2006, 07:47 PM
Replies: 19
Views: 2,052
Posted By hope
My thoughts and prayers are with you. God is a...

My thoughts and prayers are with you. God is a miraculous lord and I know he will bring you safely through this trying time. Hope
Forum: her2group 01-29-2006, 09:00 PM
Replies: 3
Views: 957
Posted By hope
Irene, I have been on Abraxane, Herceptin,...

Irene,

I have been on Abraxane, Herceptin, and Zometa since April 2005. Previous chest CT scans show stable lung tumors but I still have radiation pnuminitis. The greratest side effect form...
Forum: her2group 01-22-2006, 08:42 PM
Replies: 20
Views: 2,420
Posted By hope
Sorry to hear about your news. You will continue...

Sorry to hear about your news. You will continue to be in my prayers. You have always been a great inspiration to me. Hope
Forum: her2group 01-17-2006, 07:55 PM
Replies: 28
Views: 2,967
Posted By hope
Red face Update

Thanks for all your prayers! My MRI showed no new tumor growth but the radiated tumor still show necrosis and increased edema. My radiation onc. wants me to increase my decadron to 2mg/day to 4mg/day...
Forum: her2group 01-15-2006, 09:28 PM
Replies: 39
Views: 4,282
Posted By hope
Count me in. I will be praying at 12 noon PST....

Count me in. I will be praying at 12 noon PST. Hope
Forum: her2group 01-10-2006, 10:06 PM
Replies: 28
Views: 2,967
Posted By hope
Emergency brain MRI

I am scheduled for a emergency brain MRI this Thurs. due to increasing dizzyness, increased blurred vision, loss of balence etc... Please pray for me I will keep ypu updated. Hope
Forum: her2group 01-10-2006, 10:03 PM
Replies: 3
Views: 1,265
Posted By hope
Neuropathy Problems on Abraxane

Sorry I have to repost I originally posted on Nicola's post on update on Lapatinib clinical trial by mistake. Thanks to Al, Lolly and Steph N. for responding.

I have been on Abraxane since April...
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