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Search: Posts Made By: Lien
Forum: her2group 10-09-2023, 12:40 PM
Replies: 6
Views: 1,485
Posted By Lien
Re: SoCalGal

I am so sorry to read this. Flori was so very much alive. She seemed to be indestructible. I'm really angry that this sneaky disease got her in the end.
Forum: her2group 06-16-2021, 02:11 PM
Replies: 12
Views: 2,826
Posted By Lien
Re: Hello from Flori

Hi Flori,

So wonderful to hear from you! Stable is an amazing, thing, isn't it? Especially when grandchildren come into the picture. Congratulations! May stable be with you for a long, long time.
Forum: her2group 04-17-2021, 06:17 AM
Replies: 5
Views: 1,808
Posted By Lien
Re: tooth paste

If all else fails, you could try plain old sodium bicarbonate. Add a tiny bit of water to make a paste, or wet your brush and dip in the stuff. Add a drop of peppermint oil for taste if you like, but...
Forum: her2group 02-10-2021, 05:56 AM
Replies: 47
Views: 10,277
Posted By Lien
Re: its back

Oh Rats! Not what you wanted to hear. But as you say, lots of mets sisters are doing just fine. I hope you will be one of those. Keep us posted and let us know what you need from us. We are here for...
Forum: her2group 10-05-2020, 12:17 PM
Replies: 10
Views: 2,892
Posted By Lien
Re: 5 years later, In honor of my mother..

I'm sorry for your loss. You were so very young when she passed and yet you write about her like someone much older. It's as if she's tried to share herself with you at double the normal speed, so...
Forum: her2group 09-04-2020, 03:46 AM
Replies: 22
Views: 9,051
Posted By Lien
Re: ENHERTU aka DS8401A

Hi Flori,

Any news? I've been thinking of you.

Jacqueline
Forum: her2group 05-16-2020, 03:19 PM
Replies: 22
Views: 9,051
Posted By Lien
Re: ENHERTU aka DS8401A

Hi Flori,
I haven't been on this board for some time. So glad to read that Enhertu is working! Congrats! I hope your QOL keeps getting better and better. This is amazing news for you and for all...
Forum: her2group 11-23-2019, 02:26 PM
Replies: 7
Views: 3,245
Posted By Lien
Re: Microcalcifications

Haven't had that happen to me. Had some biopsies over the years because of iffy mammo's or ultrasounds. They all turned out to be B9. Hope you are fine too.
Forum: her2group 11-17-2019, 03:31 PM
Replies: 10
Views: 7,966
Posted By Lien
Re: Wife's Demise

So sorry to hear that, Ajit. I remember you writing to this forum all those years ago. I hope you have enough good memories of Sarada to last you a lifetime.
Jacqueline
Forum: her2group 11-17-2019, 03:29 PM
Replies: 13
Views: 4,910
Posted By Lien
Re: Long term survivor checking in!

Congratulations Ruth! I know the feeling. Just had my mammo and all is fine. It will be 16 years in January for me.

I've seen all my boys grow up (ages 19, 24, 28 and 32 now) and am looking...
Forum: her2group 05-26-2019, 07:22 AM
Replies: 111
Views: 27,334
Posted By Lien
Re: ZW25 clinical trial - day one

Oh Flori, of course the fear kicks in. And although we both know there could be lots of other explanations for your symptoms, the one we fear most jumps up and takes over. Holding you in my thoughts...
Forum: her2group 03-06-2019, 09:49 AM
Replies: 24
Views: 6,673
Posted By Lien
Re: Aphasia?? First symptom brain mets???

I only saw this today, or I would have replied straight away. Sounds like a migraine attack to me. Have had them since I was 13, and over the years symptoms changed and changed back. They depend on...
Forum: her2group 03-03-2019, 08:46 AM
Replies: 111
Views: 27,334
Posted By Lien
Re: ZW25 clinical trial - day one

Wondering too. How are you?
Forum: her2group 01-06-2019, 11:28 AM
Replies: 111
Views: 27,334
Posted By Lien
Re: ZW25 clinical trial - day one

Hi Flori,
Just checking how you are doing. Drop us a line if and when you feel like it.

Love
Jacqueline
Forum: her2group 11-01-2018, 08:39 AM
Replies: 10
Views: 5,465
Posted By Lien
Re: Chemo Not Needed for Most Early Breast Cancer: TAILORx

As I live in the Netherlands, things are done differently here. I was borderline Her2 positive and Herceptin was only available for metastatic disease at the time. I had radiotherapy & 5 years of...
Forum: her2group 09-24-2018, 07:39 AM
Replies: 111
Views: 27,334
Posted By Lien
Re: ZW25 clinical trial - day one

Hang in there, Flori! Hope the new drug will make your horizon shine bright before you. Sending hugs for the hard moments. Use as needed.
Forum: her2group 04-01-2018, 03:06 PM
Replies: 39
Views: 14,391
Posted By Lien
Re: Kadcyla ‘n me

Hi Flori,
That sounds really tough. Can't blame you for wanting to discontinue this treatment if the scans are not so great. Still hoping the SE's will subside with subsequent cycles and scans will...
Forum: her2group 03-12-2017, 11:16 AM
Replies: 7
Views: 5,000
Posted By Lien
Re: Oh come on now....

After my surgery I had a huge infection in my scar tissue. It was very painful and I worried about it a lot. Then my oncologist told me that having an infection in the area actually may be...
Forum: her2group 12-16-2016, 03:44 PM
Replies: 40
Views: 16,296
Posted By Lien
Forum: her2group 09-14-2016, 04:33 AM
Replies: 12
Views: 5,736
Posted By Lien
Re: Just Starting Out and Scared To Death

Hi Grammy,

Of course you are scared and out of your depth. Hearing the words: "you have cancer" is a terrible experience. I really thought I was not going to see my kids grow up. They were 3, 8,...
Forum: her2group 08-18-2016, 08:15 AM
Replies: 11
Views: 6,077
Posted By Lien
Re: 10 years and in trouble

Hi Michka,

Sorry to hear you have some progression in your liver and perhaps spine. You might also want ti look into trials in the Netherlands, England and Germany. I can help you with the first...
Forum: her2group 07-31-2016, 08:04 AM
Replies: 10
Views: 4,476
Posted By Lien
Re: Can anybody help please?

Many of us go through the same stages. Especially when you have a business to run and 4 kids to take care of, you may go into survival mode and when you finally, finally feel things are getting under...
Forum: her2group 07-31-2016, 07:53 AM
Replies: 18
Views: 5,413
Posted By Lien
Re: Progress Report from Ceesun!

Excellent news! Hope you will be able to go back to just Vit H and have your hair grow back.
Forum: her2group 07-28-2016, 10:23 AM
Replies: 13
Views: 5,129
Posted By Lien
Re: Anybody taken tamoxifen after 10years of arimidex?

Christal ball, pesky autocorrect set to Dutch language...
Forum: her2group 07-28-2016, 10:22 AM
Replies: 13
Views: 5,129
Posted By Lien
Re: Anybody taken tamoxifen after 10years of arimidex?

Why would you want to keep taking anything after 10 years? Did you have advanced stage disease? Other risk factors? I had 5 years of Arimidex and decided to quit, as the risk reduction after that was...
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