HonCode

Go Back   HER2 Support Group Forums > Search Forums
Register Gallery FAQ Members List Calendar Search Today's Posts Mark Forums Read

Showing results 1 to 25 of 500
Search took 0.06 seconds.
Search: Posts Made By: SoCalGal
Forum: her2group 03-06-2019, 12:31 PM
Replies: 16
Views: 473
Posted By SoCalGal
Re: 7 years stage IV

I'm almost 12 years stage 4 so try to catch up with me!! Also, you might want to take advantage of recently approved Herceptin as a shot!! NO more infusions. Congrats on the 7 years...keep going :) ...
Forum: her2group 03-06-2019, 12:27 PM
Replies: 3
Views: 159
Posted By SoCalGal
Smile herceptin injection approved!!!!

Lani posted the links and info in a separate thread - but subcutaneous herceptin is now approved in the USA!!!!

For those who are on herceptin only or herceptin with an oral agent, this could be...
Forum: her2group 03-06-2019, 12:22 PM
Replies: 114
Views: 10,691
Posted By SoCalGal
Re: Treatment after Kadcyla?

Hello Juls--Am thinking of you. [[[hugs]]]
Forum: her2group 03-06-2019, 12:12 PM
Replies: 84
Views: 8,865
Posted By SoCalGal
Re: ZW25 clinical trial - day one

Had treatment yesterday - ZW #10.

Had to push it up a week bc sponsor didn't have my drug lot ready on time and trial hosts called me to reschedule. Well, first they asked me to reschedule a day...
Forum: her2group 02-04-2019, 07:57 PM
Replies: 110
Views: 18,963
Posted By SoCalGal
Forum: her2group 02-04-2019, 07:56 PM
Replies: 16
Views: 455
Posted By SoCalGal
Re: Pericarditis Query

Just catching up, Marie, hope you're feeling better!!
Forum: her2group 02-04-2019, 06:56 PM
Replies: 114
Views: 10,691
Posted By SoCalGal
Re: Treatment after Kadcyla?

Juls
Not sure why your onco doesn't seem forthcoming with info. I am frustrated on your behalf!!

Can you search with this link from breastcancer.org? they have a good metastatic search engine. ...
Forum: her2group 02-04-2019, 06:47 PM
Replies: 84
Views: 8,865
Posted By SoCalGal
Re: ZW25 clinical trial - day one

LAUREL!! I'm alive and well-ish. We are rainy rainy here but please come and visit me--warmer then east coast! And mid-west. Below zero??? Crazy cold.

Did treatment 2 weeks ago and tomorrow is...
Forum: her2group 01-11-2019, 06:02 PM
Replies: 114
Views: 10,691
Posted By SoCalGal
Re: Treatment after Kadcyla?

Juls,
Sorry that you are not feeling well. Sciatic pain is horrible, I hope that you get pain managed and answers soon. Any chance of you joining a clinical trial?! Sending hugs and so much love...
Forum: her2group 01-11-2019, 05:58 PM
Replies: 5
Views: 780
Posted By SoCalGal
Re: Mets

Gardener-- "asking for a friend" lol. Please feel free to post your questions in this thread. More helpful to all that way.
Forum: her2group 01-08-2019, 12:35 AM
Replies: 114
Views: 10,691
Posted By SoCalGal
Re: Treatment after Kadcyla?

How are you Juls?
Forum: her2group 01-08-2019, 12:33 AM
Replies: 14
Views: 1,530
Posted By SoCalGal
Re: Brain met ??? Anyone have advice

She's more tired than usual because this stupid disease is exhausting! I had a single brain met zapped via gamma knife in 2008. Gone girl. But I'm still here. You don't say if your wife is still on...
Forum: her2group 01-08-2019, 12:27 AM
Replies: 5
Views: 780
Posted By SoCalGal
Re: Mets

I had a small thickening to the left adrenal that has shrunk on the clinical trial I am on. (ZW25)
Forum: her2group 01-08-2019, 12:19 AM
Replies: 84
Views: 8,865
Posted By SoCalGal
Re: ZW25 clinical trial - day one

Happy 2019 and thanks for checking on me! <3 I was very swept away by family and visiting cousins and holiday madness and I allowed myself to not think about cancer for a couple weeks... ...
Forum: her2group 12-18-2018, 12:00 AM
Replies: 84
Views: 8,865
Posted By SoCalGal
Re: ZW25 clinical trial - day one

Thank you Steph. And lovely Laurel sorry to take so long to show up. Xoxo
Forum: her2group 12-17-2018, 09:56 PM
Replies: 84
Views: 8,865
Posted By SoCalGal
Re: ZW25 clinical trial - day one

Had CT scan today. Went online to see my results - I am stable. And I cannot believe how sad I feel.

Itís been a hell of a two weeks with the trial doc ignoring my emails until I had to email the...
Forum: her2group 11-20-2018, 08:32 AM
Replies: 84
Views: 8,865
Posted By SoCalGal
Re: ZW25 clinical trial - day one

Here we go again...zw#6 today. Can’t believe this doc is so defensive and also he doesn’t get it. “An extra favor” ?!?!?! The team member is the scheduler - not a nurse or anyone trained or allowed...
Forum: her2group 11-05-2018, 05:00 PM
Replies: 12
Views: 1,559
Posted By SoCalGal
Re: 13 years!!!

Great post--keep surviving :)
Forum: her2group 11-05-2018, 04:57 PM
Replies: 15
Views: 1,904
Posted By SoCalGal
Re: 12 Years Out!

Keep going!!! <3
Forum: her2group 11-05-2018, 04:56 PM
Replies: 84
Views: 8,865
Posted By SoCalGal
Re: ZW25 clinical trial - day one

Tomorrow is ZW25 infusion #5. Had a stable CT scan at 8 weeks and I was very disappointed that it wasn't a TINY BIT of shrinkage on the lung met. I give up so much in QOL on this regime so don't...
Forum: her2group 11-05-2018, 04:43 PM
Replies: 24
Views: 2,424
Posted By SoCalGal
Re: Aphasia?? First symptom brain mets???

I had an episode about 25 years ago where I woke in the middle of the night and was numb on half my body and then couldn't make the words come out right. Lonnnnng story short, including trip to ER,...
Forum: her2group 10-15-2018, 10:12 PM
Replies: 84
Views: 8,865
Posted By SoCalGal
Re: ZW25 clinical trial - day one

Cathy, Laurel, Lucy, Steph, Sassy, Carol Ann, Juls, Lien, Jra, Marie, Donna, Emily Rebecca----and anyone else following along---
MY MARKERS WENT DOWN! A BUNCH.
I'm super encouraged by this bit of...
Forum: her2group 10-12-2018, 01:41 PM
Replies: 84
Views: 8,865
Posted By SoCalGal
Re: ZW25 clinical trial - day one

Hello lovely her2 people, just me on a check in - doing A Okay. Last cycle I managed more aggressively my diarrhea and it seemed to work as far as not being dehydrated. Still don't understand why...
Forum: her2group 09-22-2018, 10:57 AM
Replies: 84
Views: 8,865
Posted By SoCalGal
Re: ZW25 clinical trial - day one

ZW25 round two was not so good, longggg story short, they waited too long to treat me, over 3 hours after having me take premeds, so 10 minutes in I had an infusion reaction and had to stop drip. I'm...
Forum: her2group 09-22-2018, 10:48 AM
Replies: 7
Views: 2,057
Posted By SoCalGal
Re: DS-8201A Trial

I have a friend who started the trial this past Friday. Her nausea seemed to pass in about a day or two so hopefully will be the same for your wife. I am excited about this trial - the results have...
Showing results 1 to 25 of 500

 
Forum Jump

All times are GMT -7. The time now is 07:15 PM.


Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2019, vBulletin Solutions, Inc.
Copyright HER2 Support Group 2007
free webpage hit counter