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Search: Posts Made By: jhandley
Forum: her2group 10-06-2010, 02:27 AM
Replies: 4
Views: 1,711
Posted By jhandley
Wink experience with zometa?

Hi everyone
since i seem to have some bone mets on my L2 I am having a bone scan tomorrow and then plan to go on zometa. Any side effects?
Forum: her2group 10-04-2010, 11:54 PM
Replies: 16
Views: 2,291
Posted By jhandley
Forum: her2group 10-04-2010, 11:49 PM
Replies: 19
Views: 4,416
Posted By jhandley
Re: Do Omega-3 supplements disrupt sleep?

Both Q10 and DHA cross the bbb. Q10 provides energy to every cell so it stands to reason it will perk you up..I take it only in the morning. otherwise no sleep!
jackie (down under)
Forum: her2group 09-30-2010, 04:34 AM
Replies: 33
Views: 3,849
Posted By jhandley
Re: brain mets have arrived

Hi all
finished a 5 day course of wbr..but boy am I fatigued!
Forum: her2group 09-22-2010, 10:19 PM
Replies: 9
Views: 1,629
Posted By jhandley
Red face Re: jackie(down under) rad for brain mets update

Hi Steph
The CT scan said the bone mets look like a differentiated cell line. I guess if they are her 2 then herceptin will work on them?
Forum: her2group 09-21-2010, 08:20 PM
Replies: 9
Views: 1,629
Posted By jhandley
Wink jackie(down under) rad for brain mets update

Hi everyone having a 5 day course of wbr for small mets in the cerebellum..had 2 and 3 to go already feeling less sick.
Still on hercetpin for liver and lung but worried about bone mets on L2 that...
Forum: her2group 09-16-2010, 11:20 PM
Replies: 28
Views: 4,051
Posted By jhandley
Red face Re: Found my lump 10 years ago today!

Hi Steph
My 10 years will be in April next year. I have been a MBC survivor for 5 years this week. I am starting wbr for brain mets on Monday..I also have non her2+ bone lesions on L2 and possible...
Forum: her2group 09-13-2010, 08:53 PM
Replies: 33
Views: 3,849
Posted By jhandley
Re: brain mets have arrived

HI everyone
having an mri tomorrow and a ct to see if rest of body clear.
Will update soon. Thankyou for all your support.
jackie(down under)
Forum: her2group 09-11-2010, 10:52 PM
Replies: 33
Views: 3,849
Posted By jhandley
Unhappy brain mets have arrived

Hi all
I have some brain mets so would appreciate any advice. Seeing the onc to morrow.
Jackie (down under)
Forum: her2group 09-08-2010, 06:53 PM
Replies: 12
Views: 3,045
Posted By jhandley
Wink Re: help please..mood swings on herceptin

Hi RB
I take high dose DHA and am back on flaxseed oil daily which is helping. Right now I have a mre pressing problem..I have had unsteadiness for about 5 days and am having a head CT this...
Forum: her2group 09-06-2010, 01:29 AM
Replies: 12
Views: 3,045
Posted By jhandley
Wink help please..mood swings on herceptin

Hi all
I am having shocking mood swings on herceptin..any suggestions please. I took some flaxseed oil at noon which helped but I cant stomach it in the morning.
It is affecting my life...
Forum: her2group 09-02-2010, 01:08 AM
Replies: 35
Views: 5,566
Posted By jhandley
Re: Turmeric

Life Extension Foundation have a formulation with black pepper that is very well absorbed.
Jackie (down under)
Forum: her2group 08-30-2010, 01:20 AM
Replies: 24
Views: 3,110
Posted By jhandley
Re: 5 Years Out

well done lexi girl!
Jackie (down under)
Forum: her2group 08-27-2010, 09:56 AM
Replies: 14
Views: 2,352
Posted By jhandley
Red face Re: New Mets to brain/WBR

Hi Sally
No wisdom to share except "one day at a time". You can get through this.
Jackie (down under)
Forum: Diet and Nutrition 08-15-2010, 02:33 AM
Replies: 3
Q10
Views: 1,929
Posted By jhandley
Wink Q10

A recent study confirms that supplementation with antioxidants including coenzyme Q10 benefits patients with aggressive late-stage cancer, improving overall wellbeing and lengthening survival time....
Forum: Articles of Interest 08-15-2010, 01:54 AM
Replies: 2
Views: 8,357
Posted By jhandley
Re: Betulinic Acid (Birch)

sounds very good!
Forum: her2group 08-15-2010, 01:35 AM
Replies: 7
Views: 1,890
Posted By jhandley
Re: Difficult decision

Hi
I wouldn't worry too much about lymphodema..just make the decision based on what is best medically for you.
Cheers
Jackie (down under)
Forum: her2group 08-15-2010, 01:27 AM
Replies: 6
Views: 1,376
Posted By jhandley
Re: Question on veins post-chemo

Hi
I use my arm that I had lymph nodes out for blood tests and herceptin and have done so for 4 years without any problems. Chemo I have in the other arm.

Cheers
Jackie (down under)
Forum: her2group 08-13-2010, 06:26 AM
Replies: 139
Views: 19,447
Posted By jhandley
Re: Joe passed on this evening

Hi Danielle
He was a true gentleman and we will miss him dreadfully. He was such a rock for us all even all the way "down under". Did he have any words for us? You know tears will be shed for him...
Forum: her2group 08-12-2010, 11:05 PM
Replies: 10
Views: 1,722
Posted By jhandley
Smile last chemo today yay!

Hi everyone
Just had my last abraxane and herceptin today. Will be staying on the Vit H as before. I am so pleased to be finished chemo! The third time in 9.5 years.
Now I just need them to...
Forum: her2group 08-12-2010, 10:59 PM
Replies: 8
Views: 1,960
Posted By jhandley
Re: taxotere and herceptin w/o carboplatin

I have just had my last abraxane with herceptin. This was a very tolerable combination..I worked 3 days a week, went on outdoor ed camps and xc skiing in the worst side effects week. I know that...
Forum: her2group 08-08-2010, 03:14 AM
Replies: 10
Views: 2,246
Posted By jhandley
Re: help for sinus pain please!

Hi everyone
Thanks so much for all your advice. I have a nasal spray and will try the Vicks and hot compress.
Cheers
Jackie (down under)
Forum: her2group 08-05-2010, 04:15 PM
Replies: 10
Views: 2,246
Posted By jhandley
Wink help for sinus pain please!

Hi all
I am suffering constant sinus pain from herceptin. This is so debilitating that it was the main reason I went off herceptin after 4 years before...and subsequently relapsed after 8 months.
...
Forum: Herceptin / Tykerb 08-04-2010, 02:33 AM
Replies: 6
Views: 3,549
Posted By jhandley
Re: best treatment for herceptin sinus issues?

Hi
Yes a CT scan shows inflammation of the sinuses 8 months after going off herceptin. It has got a lot worse since I went back on abraxane and herceptin 15 weeks ago.

I will try a steamer....
Forum: Herceptin / Tykerb 08-01-2010, 09:33 PM
Replies: 6
Views: 3,549
Posted By jhandley
Wink best treatment for herceptin sinus issues?

Hi everyone
Soon I will be back on herceptin only and already have persistent sinus problems..faceache and headache. Has anyone got a favorite treatment for this?
I was on herceptin for 4 years...
Showing results 1 to 25 of 329

 
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