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Search: Posts Made By: yanyan
Forum: her2group 12-15-2015, 01:46 PM
Replies: 22
Views: 7,337
Posted By yanyan
Approaching 5 yr cancerversary but running out of options

I was admitted to hospital due to severe shortness of breath. After 1.5 liter fluid was drained from my right lung, my oxygen level still didn't come up. The oncologist who was covering for my Onco...
Forum: her2group 12-10-2015, 06:53 PM
Replies: 48
Views: 30,439
Posted By yanyan
Re: My leptomeningeal journey

Hi Agness! Is ur TMC Doctor in California? If so would you share his info? I am also looking for a good TMC so I don't have to travel back to China for that. Thanks!
Forum: her2group 12-10-2015, 06:04 PM
Replies: 20
Views: 5,848
Posted By yanyan
Re: Progression, starting TDM1

I was on kadcyla for 5 months and the biggest side effect for me was low platelets. My doctor wasn't willing to cut the dosage at first then I progressed so we just moved on to something else.

You...
Forum: her2group 12-09-2015, 09:33 AM
Replies: 43
Views: 11,361
Posted By yanyan
Re: Karen

Bumping this up! Karen is a true inspiration and full of positive energy.
Forum: her2group 12-04-2015, 10:52 PM
Replies: 386
Views: 104,205
Posted By yanyan
Re: Calling all stage iv sisters

Lung mets since July, 2015. Been on many different chemos for skin mets but lung mets are really deteriorating my quality of life. Not sure what I'll be on next...
Forum: her2group 11-26-2015, 06:02 AM
Replies: 5
Views: 3,504
Posted By yanyan
Re: Multiple lung nodules any idea?

Thank you very much ladies for your kind wishes and wise input! I'll be back in the US next week. My doctor is still trying to get Opdivo for me. Mm302 is something I was offered but I was doing...
Forum: her2group 11-24-2015, 10:48 PM
Replies: 5
Views: 3,504
Posted By yanyan
Multiple lung nodules any idea?

While pleural effusion can be drained, multiple lung nodules seem only controllable by systemic therapy. Does anyone have any successful experience in treating this condition? Could avastin be of any...
Forum: her2group 11-23-2015, 02:08 PM
Replies: 43
Views: 11,361
Posted By yanyan
Re: Karen

So glad to see you posting again Karen!!! Wish you a speedy recovery and a happy holiday season!
Forum: her2group 11-05-2015, 12:29 PM
Replies: 4
Views: 2,365
Posted By yanyan
Re: Household income too high for compassionate access! Advice?

Thank you ladies for your input! We are waiting for my insurance company to make a decision. It's scary without any treatment while we are waiting but it doesn't make sense to have me continue on a...
Forum: her2group 11-04-2015, 11:25 PM
Replies: 9
Views: 2,795
Posted By yanyan
Re: No wonder I feel so beat up...

We have been on chemo for so long and my doctor describes it as accumulative side effects which I think are very true. Easy to say we need to eat right and excersise but it's so hard to get out of...
Forum: her2group 11-04-2015, 10:36 PM
Replies: 4
Views: 2,365
Posted By yanyan
Household income too high for compassionate access! Advice?

My doctor recommended Opdivo this week since I'm developing a resistance on Halaven. He said it's available whenever we need it so we decided it's our next drug. The office called me today saying the...
Forum: her2group 11-02-2015, 11:53 PM
Replies: 4
Views: 2,704
Posted By yanyan
Re: MM302 Anyone watching this trial?

Hi Flori ! Also ask your doctor about keytruda and opdivo - the 2 PD-1 immune therapy drug. My friend's UCLA Doctor recommended this for her heavily treated ovarian cancer. Although FDA only approved...
Forum: her2group 11-02-2015, 11:57 AM
Replies: 4
Views: 2,704
Posted By yanyan
Re: MM302 Anyone watching this trial?

My secondary oncologist wanted me to enroll in the trial when I had only skin mets in May. However I was not ready because I was heading off for radiation so I couldn't accommodate the wash out...
Forum: her2group 10-16-2015, 02:56 PM
Replies: 10
Views: 5,682
Posted By yanyan
Re: Anyone on Keytruda or Opdivo

Thank you everyone for your encouragement! I'm hoping to spend 3 weeks in Europe this summer with my 9 yr old. She is been wanting to visit the Eiffel Tower and Amsterdam. This trip is on the bucket...
Forum: her2group 10-15-2015, 08:24 PM
Replies: 10
Views: 5,682
Posted By yanyan
Re: Anyone on Keytruda or Opdivo

A friend of mine has ovarian cancer and she is also given this medicine. One of them has severe side effects not sure which one so she's on the other one. With keytruda you need to be tested for...
Forum: her2group 10-15-2015, 10:52 AM
Replies: 10
Views: 5,682
Posted By yanyan
Anyone on Keytruda or Opdivo

My Onco said Opdivo is available for me if I want to use it. Opdivo and Keyteuda are both PD-1 drug. Anyone on it ?
Forum: her2group 10-11-2015, 02:16 PM
Replies: 3
Views: 2,314
Posted By yanyan
Re: MET UP " Die In " this Tuesday , Oct 13 , Wash. DC

Glad to hear you and Lorraine are going and that Lorraine is still going strong!!
Forum: her2group 09-10-2015, 02:57 PM
Replies: 10
Views: 2,438
Posted By yanyan
Re: How do you deal with lung mets?

Thank you all ladies for your encouragement and support. Talked to my oncologist who also agreed that we need to use several modalities to kill this cancer since I have failed quite a few chemo...
Forum: her2group 08-24-2015, 12:09 PM
Replies: 10
Views: 2,438
Posted By yanyan
Re: How do you deal with lung mets?

If your wife's skin mets keep popping up outside the radiation port then it is exactly like my case in a way that the cancer is in the lymphatic system. Radiation should be reserved for more severe...
Forum: her2group 08-24-2015, 08:58 AM
Replies: 10
Views: 2,438
Posted By yanyan
Re: How do you deal with lung mets?

Thanks Karen ! I had carboplatin with my initial treatment in 2011. Here on the west coast TCH is a standard proctol for her2 breast cancer. But I'm not sure how it works without adding taxol to it ....
Forum: her2group 08-24-2015, 08:09 AM
Replies: 10
Views: 2,438
Posted By yanyan
How do you deal with lung mets?

I started halaven for skin and lung mets 3 weeks ago. I have been coughing for almost 2 months and after 900ml was drained from my right lung I'm still coughing but it has been a lot better since I...
Forum: her2group 08-22-2015, 04:26 PM
Replies: 15
Views: 2,912
Posted By yanyan
Re: lung mets, CT scan, and going off chemo

My situation is a bit different. I had been in herceptin and perjeta for almost a year although I have never been NED. My problem was skin mets but they didn't progress until just recently it has...
Forum: her2group 08-13-2015, 07:33 PM
Replies: 4
Views: 1,720
Posted By yanyan
Immune therapy anyone?

I just started my new chemo halaven last Tuesday after significant progression in my skin and lungs. I'm still at shock that it hit so fast just in May I had a clean scan and totally normal tumor...
Forum: her2group 07-02-2015, 08:28 AM
Replies: 27
Views: 3,882
Posted By yanyan
Re: IT Hercepton and update on Saygoon

Best of luck on the IT treatment Paula! A few members on this website have had positive results with this procedure. I'm so thankful people in this support group are such a well of knowledge.
Forum: her2group 06-03-2015, 09:04 PM
Replies: 2
Views: 1,235
Posted By yanyan
Re: Anybody have experience with Imiquimod or Photodynamic therapy

Sorry to hear about your wife's recurrence. I'm in the same boat. If the recurrence is in previously treated area, it could mean a change in the way it's treated be of benefit. If the recurrence is...
Showing results 1 to 25 of 382

 
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