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Search: Posts Made By: SoCalGal
Forum: her2group 11-20-2018, 08:32 AM
Replies: 60
Views: 4,090
Posted By SoCalGal
Re: ZW25 clinical trial - day one

Here we go again...zw#6 today. Can’t believe this doc is so defensive and also he doesn’t get it. “An extra favor” ?!?!?! The team member is the scheduler - not a nurse or anyone trained or allowed...
Forum: her2group 11-05-2018, 05:00 PM
Replies: 12
Views: 531
Posted By SoCalGal
Re: 13 years!!!

Great post--keep surviving :)
Forum: her2group 11-05-2018, 04:57 PM
Replies: 15
Views: 824
Posted By SoCalGal
Re: 12 Years Out!

Keep going!!! <3
Forum: her2group 11-05-2018, 04:56 PM
Replies: 60
Views: 4,090
Posted By SoCalGal
Re: ZW25 clinical trial - day one

Tomorrow is ZW25 infusion #5. Had a stable CT scan at 8 weeks and I was very disappointed that it wasn't a TINY BIT of shrinkage on the lung met. I give up so much in QOL on this regime so don't...
Forum: her2group 11-05-2018, 04:43 PM
Replies: 23
Views: 979
Posted By SoCalGal
Re: Aphasia?? First symptom brain mets???

I had an episode about 25 years ago where I woke in the middle of the night and was numb on half my body and then couldn't make the words come out right. Lonnnnng story short, including trip to ER,...
Forum: her2group 10-15-2018, 10:12 PM
Replies: 60
Views: 4,090
Posted By SoCalGal
Re: ZW25 clinical trial - day one

Cathy, Laurel, Lucy, Steph, Sassy, Carol Ann, Juls, Lien, Jra, Marie, Donna, Emily Rebecca----and anyone else following along---
MY MARKERS WENT DOWN! A BUNCH.
I'm super encouraged by this bit of...
Forum: her2group 10-12-2018, 01:41 PM
Replies: 60
Views: 4,090
Posted By SoCalGal
Re: ZW25 clinical trial - day one

Hello lovely her2 people, just me on a check in - doing A Okay. Last cycle I managed more aggressively my diarrhea and it seemed to work as far as not being dehydrated. Still don't understand why...
Forum: her2group 09-22-2018, 10:57 AM
Replies: 60
Views: 4,090
Posted By SoCalGal
Re: ZW25 clinical trial - day one

ZW25 round two was not so good, longggg story short, they waited too long to treat me, over 3 hours after having me take premeds, so 10 minutes in I had an infusion reaction and had to stop drip. I'm...
Forum: her2group 09-22-2018, 10:48 AM
Replies: 7
Views: 1,197
Posted By SoCalGal
Re: DS-8201A Trial

I have a friend who started the trial this past Friday. Her nausea seemed to pass in about a day or two so hopefully will be the same for your wife. I am excited about this trial - the results have...
Forum: her2group 09-22-2018, 09:57 AM
Replies: 2
Views: 738
Posted By SoCalGal
Re: For HER2+ Breast Cancer, Anthracyclines and Trastuzumab Are Safer in Sequence

I'm working on an art project, and incorporating collage in with my art - finally found good use for all those anthem EOB's that I saved. The hall of fame EOB's with the turn downs and tone of voice...
Forum: her2group 09-22-2018, 09:54 AM
Replies: 10
Views: 1,381
Posted By SoCalGal
Re: The Role of Omega 3 and 6 in breast cancer

Hi RB,
Nice to see you on here again. I feel off the vitamins and supplements wagon this year. Good reminder that my good nutrition for the past decade could have played a part in my long term...
Forum: her2group 09-09-2018, 09:33 PM
Replies: 1
Views: 1,401
Posted By SoCalGal
Re: NYT--her2 researcher/Memorial Sloan Kettering hd Jose Baselga-- failur to disclos

This is so disappointing. Corruption is everywhere. I hope my new trial was not recommended because of sitting on the board, but because he really thought it was promising. UGH.
Forum: her2group 09-07-2018, 04:48 PM
Replies: 7
Views: 1,197
Posted By SoCalGal
Re: DS-8201A Trial

Getting a baseline eye exam is all the rage, and all the cool girls are doing it. Okay, seriously - it is the new standard of care with trials now. If you re-read the consent forms, I think it is...
Forum: her2group 08-29-2018, 11:22 AM
Replies: 60
Views: 4,090
Posted By SoCalGal
Cool ZW25 clinical trial - day one

FINALLY started the ZW25 trial on Monday. The only curve ball was a 10mg oral dose of decadron aka dexamethasone. I had a rough time managing the panic anxiety that so much steroid causes me. Just...
Forum: her2group 08-23-2018, 02:29 PM
Replies: 71
Views: 8,131
Posted By SoCalGal
Re: Cancer 'n Me

I’m supposed to start the trial (Zw25) on Monday. I will post a new thread and share my recent clinical trial research in case others are looking. Meantime, I just got a garbled voice mail from the...
Forum: her2group 08-22-2018, 03:40 PM
Replies: 8
Views: 1,959
Posted By SoCalGal
Re: data to select one of these regiments: L+C; T+C; T+V; T+E

Clinical trial with extremely strong early results in heavily pretreated MBC is DS8201. Having 55% response rate when 20% is more what's expected for MBC population.

There is a lot of data:...
Forum: her2group 08-16-2018, 10:22 PM
Replies: 14
Views: 1,563
Posted By SoCalGal
Re: Keytruda

Katherine,
How are you doing today?
Forum: her2group 08-08-2018, 09:26 PM
Replies: 71
Views: 8,131
Posted By SoCalGal
Re: Cancer 'n Me

THIS IS BIG PHARMA:

https://www.businesswire.com/news/home/20180514006244/en/

May 14, 2018 05:00 PM Eastern Daylight Time
VANCOUVER, British Columbia & TOKYO & BASKING RIDGE, N.J.--(BUSINESS...
Forum: her2group 08-08-2018, 09:11 PM
Replies: 9
Views: 1,803
Posted By SoCalGal
Re: Recurrence

Hi and sorry you are back. I'm not that well versed in recurrence but just off the top of my head I'd say get at least one second opinion. Hang in there, fear is the monster! I'm 22 years from my...
Forum: her2group 08-07-2018, 06:24 PM
Replies: 71
Views: 8,131
Posted By SoCalGal
Re: Cancer 'n Me

Thanks Laurel - I appreciate the support <3
Forum: her2group 08-07-2018, 06:23 PM
Replies: 14
Views: 1,563
Posted By SoCalGal
Re: Keytruda

I have a close guy friend who has lung cancer and has been on this for several months, maybe 6 and is in remission and doing well. He is going to Taiwan tomorrow, in between his cycles, so just...
Forum: her2group 08-07-2018, 06:11 PM
Replies: 100
Views: 15,005
Posted By SoCalGal
Forum: her2group 08-07-2018, 06:06 PM
Replies: 71
Views: 8,131
Posted By SoCalGal
Re: Cancer 'n Me

Just a quick update - I am beyond frustrated, it seems the trial people can do whatever the hell they please whenever the hell they want. I don't know if all trials move at a snails pace but this...
Forum: her2group 08-01-2018, 10:24 PM
Replies: 71
Views: 8,131
Posted By SoCalGal
Re: Cancer 'n Me

I met with the USC trial doc. She is young, smart and although she's not the lead investigator she would take care of me while on the ZW25 trial. It is a bi specific antibody, fully humanized and...
Forum: her2group 08-01-2018, 10:14 PM
Replies: 5
Views: 1,409
Posted By SoCalGal
Re: Questions about "Compassionate Use" for Trial Drugs

The compassionate use program is closed right now - not sure when they plan to reopen, I hope soon. I'd call and ask.

Here's what I have learned:
Cascadian Therapeutics was the original pharma...
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