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Search: Posts Made By: Ellie F
Forum: her2group 05-31-2016, 10:24 AM
Replies: 36
Views: 12,103
Posted By Ellie F
Re: 12 years Stage 4 - Still A-OK

Hi Mamacze, just logged in and seen your post! Congratulations! Glad you got that pesky met removed from your lung and sooooo glad that herceptin is still working wonderfully well for you. May it...
Forum: her2group 03-11-2016, 12:22 PM
Replies: 3
Views: 3,213
Posted By Ellie F
Re: FABULOUS NEWS..but problematically reported by bbc

Hi all
Been checking this out here in England !
My understanding is that herceptin and lapatinib were given for 2 weeks WITHOUT chemo hence the excitement about the response and the hope that some...
Forum: her2group 11-04-2015, 01:01 PM
Replies: 3
Views: 2,237
Posted By Ellie F
Re: Kadcyla will stay on UK Cancer Drugs Fund

Thanks for posting. Been at the hospital all day so only just heard. I signed it myself and tried to also get as many signatures as I could.
Totally agree we need to continue the pressure!

Ellie
Forum: her2group 11-25-2014, 11:35 AM
Replies: 13
Views: 2,102
Posted By Ellie F
Re: Hey Steph and any others on Zometa

Hi Steph
Thanks for posting about herceptin not having a negative effect on bones. I hadn't been able to find this out and wondered if this may be a cause. I haven't had aromatise inhibitors so I...
Forum: her2group 11-20-2014, 05:05 AM
Replies: 13
Views: 2,102
Posted By Ellie F
Re: Hey Steph and any others on Zometa

Hi all
Thank you so much for the information. I was just about to post asking the same question as Kim!
I was diagnosed with osteoporosis two years ago when a ct scan showed small fractures in my...
Forum: her2group 09-29-2014, 01:38 PM
Replies: 13
Views: 12,489
Posted By Ellie F
Re: "remarkable results" presented for adding Perjeta(pertuzumab)to Herceptin for Sta

Thanks so much for posting. This is such brilliant news! I just wanted to say that I hope this will be available for women in the UK. So far NICE ( the body we have here which determines which drugs...
Forum: her2group 09-12-2014, 12:58 PM
Replies: 17
Views: 2,056
Posted By Ellie F
Re: Dragon is back....need support

Hi Rupali
Firstly so sorry to hear you're facing this battle again.
I have looked back over your previous post and noticed you were originally her2+ and ER + and that you had over a year of...
Forum: her2group 06-02-2014, 01:22 PM
Replies: 27
Views: 4,181
Posted By Ellie F
Re: news from ASCO-- some joyous, some a downer--may set things back a bit

Thanks Lani for the information. As usual very interesting. Was sort of left hoping that Dr Slamon doesn't abandon his mission to 'cure' or at least turn her2 into a manageable long term condition. I...
Forum: her2group 05-28-2014, 01:32 PM
Replies: 41
Views: 5,676
Posted By Ellie F
Re: Ten Years Stage 4 and still A-OK

Happy birthday, sorry a little late but so pleased to hear your news! May it continue forever!

Love from England

Ellie
Forum: her2group 04-25-2014, 11:21 AM
Replies: 7
Views: 2,556
Posted By Ellie F
Re: cancer drug turned down by NHS for cost

Hi
Checking in to just add how dismayed we are here in England that another cancer drug has been turned down by the bean counters! This happened with lapatinib and others! At present some of these...
Forum: her2group 02-08-2014, 04:52 AM
Replies: 24
Views: 2,466
Posted By Ellie F
Re: HELP please!! First time on taxotere

Hi
Sorry to hear you're having a bad time. It's one of the most difficult cancer drugs. There are lots of good mouth washes available that really work. As for the rash myself and Chelee had...
Forum: her2group 01-05-2014, 12:36 PM
Replies: 42
Views: 4,588
Posted By Ellie F
Re: ELAINE M - Another member has her wings

Very very sorry to hear this news.
Glad that she won her battle against breast cancer, she brought a lot of hope.
Ellie
Forum: her2group 01-05-2014, 12:25 PM
Replies: 13
Views: 1,863
Posted By Ellie F
Re: 5 Year Breast Cancerversary with a side of Non-Hodgkin's Lymphoma

Hi Alice
Congratulations on 5 years NED. Am sorry to hear you're facing another issue but am sure you'll deal with it as before with bc.
May I ask if there is any connection between this new...
Forum: Herceptin / Tykerb 12-11-2013, 06:07 AM
Replies: 5
Views: 5,878
Posted By Ellie F
Smile Subcutaneous herceptin

Hi everyone
My onc centre has started using sub cutaneous herceptin recently. Anyone had any experience with it?

Thanks
Ellie
Forum: Breast Cancer Newsfeed 11-29-2013, 04:42 AM
Replies: 3
Views: 1,191
Posted By Ellie F
Forum: her2group 11-27-2013, 07:57 AM
Replies: 8
Views: 1,618
Posted By Ellie F
Re: Did I miss something on Fob (full of beans)

Hi all,
I also had emails from FOB but these stopped in the summer. I knew she was weak and having a hard time admitted to hospital. I have had a huge sense of foreboding about her but hope we will...
Forum: her2group 11-21-2013, 04:09 AM
Replies: 189
Views: 22,959
Posted By Ellie F
Re: NEDenise Has Died

Stunned, don't know what to say or feel, just very shocked and distressed foe her family. She was such a brave warrior I can't believe she's gone. Knew it was bad but didn't realise how bad.
Rest in...
Forum: her2group 11-20-2013, 03:03 PM
Replies: 6
Views: 1,928
Posted By Ellie F
Re: Chilly temperatures help cancers grow

Thanks, absolutely fascinating Fern! It's certainly true about feeling chilly after treatment! Will be turning the temp up here in the uk!
Hugs
Ellie
Forum: her2group 11-20-2013, 05:52 AM
Replies: 2
Views: 1,394
Posted By Ellie F
Re: Pertuzumab reverses resistance to TDM-1!!! Thank you, Neil Spector

Thanks Lani
Good news for sure! Surely very soon we should be able to stop her2 breast cancer in its tracks! Thank God we have such bright people fighting our corner!

Ellie
Forum: her2group 11-18-2013, 12:49 PM
Replies: 16
Views: 2,132
Posted By Ellie F
Re: Eyebrows

Hi
I also had mine done 2 years after taxotere. I rate it as one of the best things I did after bc. I also had the individual hairs done rather than a solid block. I'm due to have mine topped up...
Forum: her2group 11-11-2013, 01:36 PM
Replies: 14
Views: 1,370
Posted By Ellie F
Re: To give a little encouragement

Sherry, so lovely to hear from you and doing great! I also wondered if you were still on herceptin and if so have you any plans to stop?

Hugs
Ellie x
Forum: Articles of Interest 10-25-2013, 11:15 AM
Replies: 24
Views: 7,293
Posted By Ellie F
Re: Pattern of recurrence of early bc differs by intrinsic subtype & proliferation in

Thanks for posting this information. I've waded through and hope I've grasped it! I think ER - PR- her2 + are classified as her 2 enriched?? Is this right? If so the second peak opens lots of...
Forum: her2group 10-23-2013, 04:21 AM
Replies: 20
Views: 2,169
Posted By Ellie F
Re: Power Port...No blood return

Sorry to be chipping in a bit late but wanted to say this has happened to me also on 3 occasions. As well as the other tips it's worth trying to get them to adjust the position of the needle by...
Forum: her2group 10-18-2013, 10:35 AM
Replies: 29
Views: 4,076
Posted By Ellie F
Re: How long Should I continue herceptin ?

Hi Andi
Looks like there's very little research out there! Think there may be lessons uto learn from women like yourself who have remained NED after stopping! It may give clues and directions to why...
Forum: her2group 10-17-2013, 09:03 AM
Replies: 2
Views: 1,103
Posted By Ellie F
Re: a Game Changer? how about if we could detect early& prevent invasion of her2+ DC

Eyes and breast connected? Or have I misunderstood?

Ellie
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