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Search took 0.01 seconds. Search: Posts Made By: VirginiaGirl
Forum: her2group 03-07-2011, 04:02 AM
Replies: 17
Views: 2,088
Posted By VirginiaGirl
Re: increased risk of breast cancer in daughters of older fathers

My dad was 37 when I was born (i'm an identical twin, sister & 3 other sibs have no bc but dad died of stomach cancer). But my husband - and father of my daughter - is 13 years older than me. He was...
Forum: her2group 03-07-2011, 03:15 AM
Replies: 26
Views: 5,166
Posted By VirginiaGirl
Re: if had or brain mets please share your knowledge

Hi Pam & everybody,
I was dx with brain mets end of Jan, immediately started wbr, and just now am getting around to writing everyone. First, thank you for all the supportive responses I received,...
Forum: her2group 01-27-2011, 03:57 AM
Replies: 17
Views: 2,882
Posted By VirginiaGirl
Add me to the brain mets list

Hi Ladies,
It's been a while since I've posted, I usually lurk though. But now I find it's time to write since last week I was dx with those damn brain mets, and have already started WBR (3 down, 11...
Forum: her2group 09-27-2010, 10:59 AM
Replies: 3
Views: 3,331
Posted By VirginiaGirl
Re: Time Frame of Side Effects After First Chemo?

Hi Ginny,
It's hard to tell what causes what side effects since it's a ton of meds all at once and everyone really does respond differently. It looks like from your signature that this is your first...
Forum: her2group 09-08-2010, 10:37 AM
Replies: 82
Views: 17,881
Posted By VirginiaGirl
Re: What can we do about the delay of TDM-1

As one of those people who were looking to T-DM1 as my next promising treatment option, I too am very disappointed, and scared, that it may well be another 2 years before it's approved. I was...
Forum: her2group 05-15-2010, 04:01 AM
Replies: 66
Views: 9,910
Posted By VirginiaGirl
Re: Five years out???

I was 5 years out in February. They were not giving Herceptin for early stagers at that time. After mets were diagnosed the following year, I got Herceptin. Still waiting for NED...
Forum: her2group 05-02-2010, 03:44 AM
Replies: 22
Views: 3,301
Posted By VirginiaGirl
Re: It might be possible to keep you hair during chemo

Interesting thread. Back in Feb I started seeing a holistic nurse to get my nutrition/eating habits up. My onc, who never addresses this kind of stuff, was thrilled I was taking a multi-vitamin,...
Forum: her2group 04-09-2010, 04:03 AM
Replies: 13
Views: 1,271
Posted By VirginiaGirl
Re: Nuclear Med & Homeland Security

I have never received a card, but for a couple years now after every PET/CT they tell me to avoid flying or going to the White House!
Forum: Diet and Nutrition 03-20-2010, 05:13 AM
Replies: 8
Views: 2,923
Posted By VirginiaGirl
Re: Nutritionist/Dietician Trained in Oncology

Last time I saw my onc, I gently fussed at him for not having any visible sources of info and/or referrals for support for the patients. (I'm a social worker, so I notice this kind of stuff). I told...
Forum: Diet and Nutrition 03-20-2010, 05:02 AM
Replies: 4
Views: 3,233
Posted By VirginiaGirl
Re: Doctor diagnosed with Cancer talks about food.

I have his book, Anti Cancer: A New Way of Life, read it a few years ago and have to admit it kind of scared me, because it is so hard to eat in a truly healthy way. I am re-focusing my energies on...
Forum: her2group 03-20-2010, 04:40 AM
Replies: 26
Views: 3,443
Posted By VirginiaGirl
Re: Mets to bone

Hi Lopsided,
I have mets to my bones, that's really the only place, all through my spine and hips. I finished abraxane/herceptin in November and it took care of the couple lymph nodes that went...
Forum: her2group 03-20-2010, 03:57 AM
Replies: 24
Views: 2,605
Posted By VirginiaGirl
Re: My mother and Husband have both died in 4 weeks

Charlotte,
I'm so sorry to hear of your losses, such significant ones and so close together. I hear your fear and sadness, and I'm lifting you up in prayer right now, that you may be filled with the...
Forum: Herceptin / Tykerb 03-20-2010, 03:34 AM
Replies: 19
Views: 6,780
Posted By VirginiaGirl
Re: Tykerb/Xeloda, side effects??

Lori,
What AWESOME news! I can imagine how you're having a hard time wrapping your brain around it! Very cool! If there's no tumor left, what is the surgery? Mastectomy? Congratulations again, and...
Forum: Keeping Your Mind Off of BC 03-14-2010, 06:28 AM
Replies: 605
Views: 57,350
Posted By VirginiaGirl
Re: The Campfire

Hi Everybody,
Love the campfire idea, glad it's still going since I've just found the "campsite." And reading about the pros & cons of outhouses, I have to wonder - did anyone bring toilet paper?
...
Forum: her2group 03-14-2010, 05:35 AM
Replies: 7
Views: 1,668
Posted By VirginiaGirl
Re: Stomach Sounds-yikes :tykerb-herceptin combo

For the first time the other night I experienced the gurgling churning stomach at bedtime. The only difference I could relate it to was not having waited a full hour after eating before taking the...
Forum: her2group 03-14-2010, 05:08 AM
Replies: 13
Views: 3,876
Posted By VirginiaGirl
Re: Taxotere/Herceptin for Bone Mets?????

Suzanne,
I have mostly bone mets and got about a year of NED from taxotere/herceptin. Then I did taxol/herceptin, and found that combo much easier, I suspect because it was done weekly as opposed to...
Forum: her2group 03-06-2010, 06:53 AM
Replies: 22
Views: 2,022
Posted By VirginiaGirl
Re: Hutchi, you in politics now!?

"I would rather have breast cancer than be a politician..."

LOL! I think I agree with you!
Forum: her2group 03-06-2010, 06:48 AM
Replies: 7
Views: 1,668
Posted By VirginiaGirl
Re: Stomach Sounds-yikes :tykerb-herceptin combo

Ceesun,
I went to see a holistic nurse before starting the tykerb/xeloda and she has me taking a probiotic (which is good bacteria like in some yogurts only thousands more of them, can find it at a...
Forum: Herceptin / Tykerb 03-06-2010, 05:28 AM
Replies: 9
Views: 2,470
Posted By VirginiaGirl
Re: Started Tykerb today

I'm in the middle of my second cycle of T/X, so far still only occasional D. I had a serious bout after eating a large apple with lunch one day, so I've gone back to bananas, and try to eat a baggie...
Forum: Herceptin / Tykerb 03-06-2010, 05:18 AM
Replies: 19
Views: 6,780
Posted By VirginiaGirl
Re: Tykerb/Xeloda, side effects??

Hi Lori,
Just wanted to know about the results of your brain MRI, maybe you posted that elsewhere? Hope everything came out great!
Forum: her2group 02-25-2010, 04:50 PM
Replies: 16
Views: 1,495
Posted By VirginiaGirl
Re: how many of you are getting Zometa?

Hi Jean,
Since mets to my bones I've gotten Zometa, usually once a month for the duration of whatever chemo I was doing at the time, and I do think it has been helpful in controlling the cancer. I...
Forum: Herceptin / Tykerb 02-22-2010, 06:52 PM
Replies: 31
Views: 11,164
Posted By VirginiaGirl
Re: Something that seems to work for diarrhea

Probiotics are considered a supplement. The brand I got is by American Health and is called Acidophilus, and it has 3 strains of good bacteria. My nurse told me to just follow the instructions on the...
Forum: her2group 02-22-2010, 03:42 PM
Replies: 22
Views: 2,717
Posted By VirginiaGirl
Re: HOPE!! 4 year Metastatic Young Survivor

Congratulations, Shona, on your 4 year cancerversary! I was diagnosed at age 39, and I just marked my 5th cancerversary. Here's to many, many more for all of us!
Peace and Blessings,
Forum: Herceptin / Tykerb 02-22-2010, 03:24 PM
Replies: 31
Views: 11,164
Posted By VirginiaGirl
Re: Something that seems to work for diarrhea

I went to see a holistic nurse, and she put me on probiotics - like what you find in yogurt only tons more of the good bacteria. I got it at a vitamin shop. In reading about probiotics, it's good for...
Forum: Herceptin / Tykerb 02-22-2010, 03:18 PM
Replies: 9
Views: 2,470
Posted By VirginiaGirl
Re: Started Tykerb today

Hi Derita,
I started Tykerb/Xeloda about 10 days ago, and so far, so good, though I have forgotten to take it a couple times, still getting used to a new routine. I've had bad diarrhea only one time...
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